Enhancing Privacy, Improving Health Through Research (2009)
Table of Contents
Sharyl J. Nass, Laura A. Levit, and Lawrence O. Gostin, Editors; Committee on Health Research and the Privacy of Health Information: The HIPAA Privacy Rule; Board on Health Sciences Policy (HSP); Board on Health Care Services (HCS); Institute of Medicine (IOM)
In the realm of health care, privacy protections are needed to preserve patients' dignity and prevent possible harms. Ten years ago, to address these concerns as well as set guidelines for ethical health research, Congress called for a set of federal standards now known as the HIPAA Privacy Rule.
In its 2009 report, Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research, the Institute of Medicine's Committee on Health Research and the Privacy of Health Information concludes that the HIPAA Privacy Rule does not protect privacy as well as it should, and that it impedes important health research.
Robert M. Hauser, Maxine Weinstein, Robert Pool, and Barney Cohen, Editors; Panel on Collecting, Storing, Accessing, and Protecting Biological Specimens and Biodata in Social Surveys; National Research Council