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Beyond the HIPAA Privacy Rule:

Enhancing Privacy, Improving Health Through Research

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Status: Available Now

Size: 334 pages, 6 x 9

Publication Year:2009

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Authors:
Sharyl J. Nass, Laura A. Levit, and Lawrence O. Gostin, Editors; Committee on Health Research and the Privacy of Health Information: The HIPAA Privacy Rule; Institute of Medicine
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Description:

In the realm of health care, privacy protections are needed to preserve patients' dignity and prevent possible harms. Ten years ago, to address these concerns as well as set guidelines for ethical health research, Congress called for a set of ...
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Table of Contents
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Front Matter	i-xiv
Summary	1-14	(skim)
Overview of Conclusions and Recommendations	15-62	(skim)
1 Introduction	63-74	(skim)
2 The Value and Importance of Health Information Privacy	75-110	(skim)
3 The Value, Importance, and Oversight of Health Research	111-152	(skim)
4 HIPAA, the Privacy Rule, and Its Application to Health Research	153-198	(skim)
5 Effect of the HIPAA Privacy Rule on Health Research	199-244	(skim)
6 A New Framework for Protecting Privacy in Health Research	245-284	(skim)
Appendix A: Previous Recommendations to the Department of Health and Human Services	285-292	(skim)
Appendix B: Commissioned Survey Methodology	293-300	(skim)
Appendix C: Committee Member and Staff Biographies	301-310	(skim)
Abbrevations and Acronyms	311-314	(skim)
Glossary	315-320	(skim)

Description

In the realm of health care, privacy protections are needed to preserve patients' dignity and prevent possible harms. Ten years ago, to address these concerns as well as set guidelines for ethical health research, Congress called for a set of federal standards now known as the HIPAA Privacy Rule.

In its 2009 report, Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research, the Institute of Medicine's Committee on Health Research and the Privacy of Health Information concludes that the HIPAA Privacy Rule does not protect privacy as well as it should, and that it impedes important health research.

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