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When Children Die:

Improving Palliative and End-of-Life Care for Children and Their Families

Status: Available Now

Size: 712 pages, 6 x 9

Publication Year:2003

HARDBACK + PDF$53.00

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Authors:
Marilyn J. Field and Richard E. Behrman, Editors, Committee on Palliative and End-of-Life Care for Children and Their Families
Authoring Organizations

Description:
The death of a child is a special sorrow. No matter the circumstances, a child s death is a life-altering experience. Except for the child who dies suddenly and without forewarning, physicians, nurses, and other medical personnel usually play a ...
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Reviews:
"...a most impressive report... This is essential reading for anyone involved in pediatric palliative care. Even if you don't deal with children, this book contains a wealth of information applicable to all palliative care that will make you want ...
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Table of Contents
Select a link below to start reading online free!
Front Matter	i-xxii
Summary	1-18	(skim)
1. Introduction	19-40	(skim)
2. Patterns of Childhood Death in America	41-71	(skim)
3. Pathways to a Child	72-103	(skim)
4. Communication, Goal Setting, and Care Planning	104-140	(skim)
5. Care and Caring From Diagnosis Through Death and Bereavement	141-179	(skim)
6. Providing, Organizing, and Improving Care	180-233	(skim)
7. Financing of Palliative and End-of-Life Care for Children and Their Families	234-292	(skim)
8. Ethical and Legal Issues	293-327	(skim)
9. Educating Health Care Professionals	328-349	(skim)
10. Directions for Research	350-391	(skim)
References	392-444	(skim)
Appendix A: Study Origins and Activities	445-448	(skim)
Appendix B: Prognostication Scores	449-475	(skim)
Appendix C: Assessing Health-Related Quality in End-of-Life Care for Children and Adolescents	476-508	(skim)
Appendix D: Cultural Dimensions of Care At Life	509-552	(skim)
Appendix E: Bereavement Experiences After the Death of a Child	553-579	(skim)
Appendix F: End-of-Life Care in Emergency Medical Services for Children	580-598	(skim)
Appendix G: Education in Pediatric Palliative Care	599-637	(skim)
Appendix H: Progress in Pediatric Palliative Care in New York State--A Demonstration Project	638-664	(skim)
Appendix I: Committee Biographical Statements	665-670	(skim)
Index	671-690	(skim)

Description

The death of a child is a special sorrow. No matter the circumstances, a child s death is a life-altering experience. Except for the child who dies suddenly and without forewarning, physicians, nurses, and other medical personnel usually play a central role in the lives of children who die and their families. At best, these professionals will exemplify medicine with a heart. At worst, families encounters with the health care system will leave them with enduring painful memories, anger, and regrets.

When Children Die examines what we know about the needs of these children and their families, the extent to which such needs are and are not being met, and what can be done to provide more competent, compassionate, and consistent care. The book offers recommendations for involving child patients in treatment decisions, communicating with parents, strengthening the organization and delivery of services, developing support programs for bereaved families, improving public and private insurance, training health professionals, and more. It argues that taking these steps will improve the care of children who survive as well as those who do not and will likewise help all families who suffer with their seriously ill or injured child.

Featuring illustrative case histories, the book discusses patterns of childhood death and explores the basic elements of physical, emotional, spiritual, and practical care for children and families experiencing a child s life-threatening illness or injury.

Reviews

"...a most impressive report... This is essential reading for anyone involved in pediatric palliative care. Even if you don't deal with children, this book contains a wealth of information applicable to all palliative care that will make you want to provide better and more appropriate care for your patients, whatever their ages."
-- IAHPC (International Association for Hospice and Palliative Care) e-Newsletter, August 2004

Authoring Organizations

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