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Ethical Considerations for Research on Housing-Related Health Hazards Involving Children

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Size: 216 pages, 6 x 9

Publication Year:2005

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Authors:
Bernard Lo and Mary Ellen O'Connell, Editors, Committee on Ethical Issues in Housing-Related Health Hazard Research Involving Children, Youth, and Families
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Ethical Considerations for Research on Housing-Related Health Hazards Involving Children explores the ethical issues posed when conducting research designed to identify, understand, or ameliorate housing-related health hazards among children. Such research involves children as subjects and is conducted in the ...
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Table of Contents
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Front Matter	i-xx
Executive Summary	1-12	(skim)
1 Introduction	13-23	(skim)
2 Housing and Health	24-40	(skim)
3 Grimes v. Kennedy Krieger Institute: Revisiting the Ethical Issues	41-61	(skim)
4 Characteristics of Housing Health Hazards Research	62-75	(skim)
5 Community Involvement	76-98	(skim)
6 Parental Permission, Consent, and Payment	99-123	(skim)
7 Researchers' Responsibilities	124-144	(skim)
8 Research Oversight	145-162	(skim)
References	163-188	(skim)
Appendix Biographical Sketches of Committee Members and Staff	189-196	(skim)

Description

Ethical Considerations for Research on Housing-Related Health Hazards Involving Children explores the ethical issues posed when conducting research designed to identify, understand, or ameliorate housing-related health hazards among children. Such research involves children as subjects and is conducted in the home and in communities. It is often conducted with children in low-income families given the disproportionate prevalence of housing-related conditions such as lead poisoning, asthma, and fatal injuries among these children. This book emphasizes five key elements to address the particular ethical concerns raised by these characteristics: involving the affected community in the research and responding to their concerns; ensuring that parents understand the essential elements of the research; adopting uniform federal guidelines for such research by all sponsors (Subpart D of 45 CFR 46); providing guidance on key terms in the regulations; and viewing research oversight as a system with important roles for researchers, IRBs and their research institutions, sponsors and regulators of research, and the community.

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