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Appendix Workshop Agenda Institute of Medicine National Cancer Policy Forum The Keck Center of the National Academies 500 5th Street, NW Keck 201 Washington, D.C. 20001 March 30, 2007 6:30 pm Thursday, March 29, 2007 at the Henley Park Hotel Dinner 8:00 am Friday, March 30, 2007 at the Keck Center, Room 101 Continental Breakfast 8:30 am Welcome, Opening Remarks, Approval of Minutes, Forum Updates, Other Business Harold Moses 9:15 am The Promise and Pitfalls of Cancer-Related Genetic Counseling and Testing Patricia A. Ganz, UCLA 121
122 cancer-RELATED GENETIC TESTING AND COUNSELING 9:55 am Current and Future Demand for Cancer-Related Genetic Counseling and Testing Services Robin Bennett, Senior Genetic Counselor, Clinic Manager, University of Washington Medical Center 10:35 am Break 10:50 am Implications of Home Tests and Direct to Consumer Advertising Gail Javitt, Law and Policy Director, Genetics and Public Policy Center, Johns Hopkins University 11:30 am Delivery and Research Issues-Healthcare Provider Supply and Preparedness Mark H. Greene, Chief, Clinical Genetics Branch, DCEG, NCI 12:10 pm Lunch 1:00 pm Delivery and Research Issues-Providing Community-Based Services Jeff Weitzel, Director, Department of Clinical Cancer Genetics, City of Hope Cancer Center 1:40 pm Delivery and Research Issues-Reaching Underserved Groups Chanita Hughes-Halbert, Director, Community and Minority Cancer Control Program, University of Pennsylvania 2:20 pm �������������������� Reimbursement Issues Debra Lochner Doyle, Manager, Genetic Services Section, Washington State Department of Health 3:00 pm Break 3:15 pm Psychological Impact on Patients and Families Marc Schwartz, Associate Professor of Oncology, Co-Director, Cancer Control, Georgetown University
APPENDIX: WORKSHOP AGENDA 123 3:55 pm Implications for Access to Health and Life Insurance Henry T. Greely, Professor Law and Genetics, Stanford Center for Biomedical Ethics, Stanford University 4:35 pm Concluding Remarks and Adjourn Harold Moses