INNOVATIONS IN HEALTH LITERACY RESEARCH
WORKSHOP SUMMARY
Cori Vancheri, Rapporteur
INSTITUTE OF MEDICINE
OF THE NATIONAL ACADEMIES
THE NATIONAL ACADEMIES PRESS
Washington, D.C.
www.nap.edu
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NOTICE: The project that is the subject of this report was approved by the Governing Board of the National Research Council, whose members are drawn from the councils of the National Academy of Sciences, the National Academy of Engineering, and the Institute of Medicine.
This study was supported by contracts between the National Academy of Sciences and the Agency for Healthcare Research and Quality (HHSP233200900537P), GlaxoSmithKline, Johnson & Johnson, and the Missouri Foundation for Health (09-0290-HL-09). Any opinions, findings, conclusions, or recommendations expressed in this publication are those of the author(s) and do not necessarily reflect the view of the organizations or agencies that provided support for this project.
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Suggested citation: IOM (Institute of Medicine). 2011. Innovations in Health Literacy Research: Workshop Summary. Washington, DC: The National Academies Press.
THE NATIONAL ACADEMIES
Advisers to the Nation on Science, Engineering, and Medicine
The National Academy of Sciences is a private, nonprofit, self-perpetuating society of distinguished scholars engaged in scientific and engineering research, dedicated to the furtherance of science and technology and to their use for the general welfare. Upon the authority of the charter granted to it by the Congress in 1863, the Academy has a mandate that requires it to advise the federal government on scientific and technical matters. Dr. Ralph J. Cicerone is president of the National Academy of Sciences.
The National Academy of Engineering was established in 1964, under the charter of the National Academy of Sciences, as a parallel organization of outstanding engineers. It is autonomous in its administration and in the selection of its members, sharing with the National Academy of Sciences the responsibility for advising the federal government. The National Academy of Engineering also sponsors engineering programs aimed at meeting national needs, encourages education and research, and recognizes the superior achievements of engineers. Dr. Charles M. Vest is president of the National Academy of Engineering.
The Institute of Medicine was established in 1970 by the National Academy of Sciences to secure the services of eminent members of appropriate professions in the examination of policy matters pertaining to the health of the public. The Institute acts under the responsibility given to the National Academy of Sciences by its congressional charter to be an adviser to the federal government and, upon its own initiative, to identify issues of medical care, research, and education. Dr. Harvey V. Fineberg is president of the Institute of Medicine.
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PLANNING COMMITTEE ON INNOVATIONS IN HEALTH LITERACY RESEARCH*
SHARON E. BARRETT, Health Literacy Staff Consultant,
Association of Clinicians for the Underserved
CINDY BRACH, Senior Health Policy Researcher,
Agency for Healthcare Research and Quality, U.S. Department of Health and Human Services
JULIE A. GAZMARARIAN, Associate Professor,
Emory University Rollins School of Public Health
JEAN KRAUSE, Executive Vice President and CEO,
American College of Physicians Foundation
MICHAEL PAASCHE-ORLOW, Associate Professor of Medicine,
Boston University School of Medicine
ROUNDTABLE ON HEALTH LITERACY*
GEORGE ISHAM (Chair), Medical Director and Chief Health Officer, HealthPartners
SHARON E. BARRETT, Health Literacy Staff Consultant,
Association of Clinicians for the Underserved
CINDY BRACH, Senior Health Policy Researcher,
Center for Delivery, Organization, and Markets, Agency for Healthcare Research and Quality
CAROLYN COCOTAS, Senior Vice President,
Quality and Corporate Compliance, F.E.G.S. Health and Human Services System
ARTHUR CULBERT, President and CEO,
Health Literacy Missouri
MICHAEL L. DAVIS, Senior Vice President,
Human Resources, General Mills, Inc.
BENARD P. DREYER, Professor of Pediatrics,
New York University School of Medicine, and
Chair,
American Academy of Pediatrics Health Literacy Program Advisory Committee
DEBBIE FRITZ, Director,
Policy and Standards, Health Management Innovations Division, GlaxoSmithKline
MELODY GOLLER, Health Education Manager,
Scientific Activities Division, American Academy of Family Physicians Foundation
MARTHA GRAGG, Vice President of Program,
Missouri Foundation for Health
LINDA HARRIS, Team Leader,
Health Communication and eHealth Team, Office of Disease Prevention and Health Promotion, U.S. Department of Health and Human Services
BETSY L. HUMPHREYS, Deputy Director,
National Library of Medicine, National Institutes of Health
TERRIS KING, Deputy Director,
Office of Clinical Standards and Quality, Centers for Medicare & Medicaid Services
JEAN KRAUSE, Executive Vice President and CEO,
American College of Physicians Foundation
MARGARET LOVELAND,
Global Medical Affairs, Merck & Co., Inc.
RUTH PARKER, Professor of Medicine,
Emory University School of Medicine
YOLANDA PARTIDA, Director,
National Program Office, Hablamos Juntos, University of California, San Francisco, Fresno Center for Medical Education & Research
CLARENCE PEARSON, Consultant
SCOTT C. RATZAN, Vice President,
Global Health, Johnson & Johnson
WILL ROSS, Associate Dean for Diversity, Associate Professor of Medicine,
Washington University School of Medicine
WILLIAM SMITH, Senior Scientist and Director,
Academy for Educational Development
PATRICK WAYTE, Vice President,
Marketing and Health Education, American Heart Association
AMY WILSON-STRONKS, Project Director,
Division of Standards and Survey Methods, and
Principal Investigator,
Hospitals, Language, and Culture Study, The Joint Commission
WINSTON F. WONG, Medical Director,
Community Benefit, Disparities Improvement and Quality Initiatives, Kaiser Permanente
Study Staff
LYLA M. HERNANDEZ, Senior Program Officer
SUZANNE LANDI, Research Assistant
ROSE MARIE MARTINEZ, Director,
Board on Population Health and Public Health Practice
Reviewers
This report has been reviewed in draft form by individuals chosen for their diverse perspectives and technical expertise, in accordance with procedures approved by the National Research Council’s Report Review Committee. The purpose of this independent review is to provide candid and critical comments that will assist the institution in making its published report as sound as possible and to ensure that the report meets institutional standards for objectivity, evidence, and responsiveness to the study charge. The review comments and draft manuscript remain confidential to protect the integrity of the process. We wish to thank the following individuals for their review of this report:
Leonard Epstein, Health Resources and Services Administration
Elizabeth Hahn, Northwestern University Feinberg School of Medicine
Alice Horowitz, University of Maryland School of Public Health
Sandra Smith, University of Washington Center for Health Education and Research in Seattle
Although the reviewers listed above have provided many constructive comments and suggestions, they did not endorse the final draft of the report before its release. The review of this report was overseen by Hugh Tilson, University of North Carolina School of Public Health. Appointed by the Institute of Medicine, he was responsible for making certain that
Acknowledgments
The support of the sponsors of the Institute of Medicine Roundtable on Health Literacy made it possible to plan and conduct the workshop on innovations in health literacy research which this report summarizes. Sponsorship for the Roundtable comes from the Agency for Healthcare Research and Quality, GlaxoSmithKline, Johnson & Johnson, and the Missouri Foundation for Health.
The Roundtable wishes to express its appreciation to Michael Paasche-Orlow for preparation and presentation of a paper summarizing the Health Literacy Annual Research Conference. The Roundtable is also grateful to Lisa Cooper and Dean Schillenger for their presentations on the role of health literacy in health disparities research; to Joshua Seidman and Michael Wolf for their presentations on health literacy in health information technology; and to David Baker and Debra Roter for their presentations on building the field of health literacy research. Thanks also go to Cynthia Baur for presentation of the HHS National Action Plan to Improve Health Literacy; to Carolyn Clancy and Raynard Kingdon for their presentations on the importance of the National Action Plan; and to Terry Davis and Rima Rudd for their presentations on the role of health literacy research in the National Action Plan.
The Roundtable would also like to thank the members of the workshop planning committee for their efforts in developing an excellent workshop agenda. Members of the planning committee were Sharon Barrett, Cindy Brach, Julie Gazmararian, Jean Krause, and Michael Paasche-Orlow.
Contents
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Contrasting Themes, |
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