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Conclusions and Recommendations
Pages 43-47

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From page 43...
... NCI-designated cancer centers should play a central role as agents of national policy in advancing palliative care research and clinical practice, with initiatives that address many of the barriers identified in this report.
From page 44...
... programs that can be adopted by other cancer centers and hospitals. Activities should income, but not be limited to, the following: · formal testing and evaluation of new and existing practice guidelines for palliative and end-of-life care; · pilot testing "quality indicators" for assessing end-of-life care at the level of the patient and the institution; · incorporating the best palliative care into NCI-sponsored clinical trials; · innovating in the delivery of palliative and end-of-life care, incoming collaboration with local hospice organizations; · disseminating information about how to improve end-of-life care to other cancer centers and hospitals through a variety of media; · uncovering the determinants of disparities in access to care by minority populations that should be served by the center and developing specific programs and initiatives to increase access; these might include educational activities for health care providers and the community, setting up outreach programs, and so forth; · providing clinical and research training fellowships in medical and surgical oncology in end-of-life care for admit and pediatric patients; · creating facility development programs in oncology, nursing, and social work; and · providing in-service training for local hospice staff in new palliative care techniques.
From page 45...
... Professional societies, particularly the American Society of Clinical Oncology, the Oncology Nursing Society, and the Society for Social Work Oncology, should encourage their members to facilitate the development and testing of guidelines and their eventual implementation, and should provide leadership and training for nonspecialists, who provide most of the care for cancer patients. Recommendation 7: The recommendations in the NCPB report Enhancing Data Systems to Improve the Quality of Cancer Care (see Appenalix BJ should be applied equally to palliative and end-of-life care as to other aspects of cancer treatment.
From page 46...
... ~It in a high-profile strategic research agenda that can be pursued by NCI and its research partners over the short and long terms. lIn 1999, NCI initiated State of the Science Meetings focused on specific types of cancer "to bring together the Nation's leading multidisciplinary experts, to identify the important research questions for a given disease and help define the scientific research agenda that will assist us in addressing those questions."
From page 47...
... CONCEUSIONS AND RECOMMENDATIONS 4 7 Recommendation 9: NCI should establish the most appropriate institutional locus (or more than oneJ for palliative care, symptom control, and other end-of-life research, possibly within the Division of Cancer Treatment and Diagnosis. Recommendation 10: NCI should review the membership of its advisory bodies to ensure representation of experts in cancer pain, symptom management, and palliative care.


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