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Symposium Summary
Pages 1-9

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From page 1...
... of private and public health care purchasers, who discussed their interest and role in c1linical research. Repeated themes inclutledt the need to encourage collaboration among researchers and between academic health centers and for-profit companies; the needs to clevelop ways of rewarding collaborative research, particularly in academia; the need to develop good data and information management systems that can support huge databases and facilitate mining of clinical information while protecting patient privacy; and the need for more consistent standards for these highly valuable, large, automated population-based research resources, which could permit more effective crossdata system record linkages for population based research.
From page 2...
... John Gallin, M.D., director of the NIH Warren Grant Magnuson Clinical Center and NTH Associate Director for Clinical Research. stated that the biggest challenge facing clinical research in the coming decade is data management.
From page 3...
... Challenges for the future include finding ways to facilitate multidisciplinary, multicenterecl research, fund capital and infrastructure intensive research, and reward collaborative research in academia. Rouncitable member William Crowley, M.D., Director of Clinical Research and Chief of the Reproductive Endocrine Unit at Massachusetts General Hospital, Director of the National Center for Infertility Research, and Professor of Medicine at Harvarc!
From page 4...
... tools" that meet compliance standards in clinical practice. Christopher Chute, M.D., Dr.P.H., Professor of Medical Informatics and Associate Professor of Epidemiology at the Mayo Clinic, discussed the use of patient data for research purposes.
From page 5...
... Stan Huff, MD, Senior Medical Informaticist at Intermountain HealthCare, gave a presentation entitled "Integrating Clinical Research and Patient Care at Intermountain HealthCare Using Data Exchange and Terminology Stanciards." Intermountain HealthCare is a not-for-profit corporation of 22 hospitals, 24 clinics, 14 urgent care centers, health plans, and physicians' divisions. They are using their clinical information systems to monitor and assess quality assurance, patient outcomes, complication rates, and disease outbreaks.
From page 6...
... Dr. Wennberg assessed why this type of research has failed to have a major impact on practice variations: physicians resist evidence-based practice, outcomes research does not keep up with dynamic changes in medical theory, the central role of patient choice for elective treatment is neglected, and that outcomes research has yet to address "supply-sensitive" clinical practice styles (for instance, increased availability of health care services like laboratory testing may increase a physician's referral/prescribing behavior)
From page 7...
... ~ . ~ Larry Green, M.D., Director of the Center for Policy Studies in Family Practice and Primary Care of the American Academy of Family Physicians, gave a presentation entitled "PracticeBased Primary Care Research Networks: A Critical Clinical Research Infrastructure Able to Uncover Origins of Illness and Discover New Remedies for the Bulk of Medical Practice." Dr.
From page 8...
... For instance, insurers are feeling intense pressure to finance clinical research, particularly because they must deal with demands from patient groups to pay for unproven therapies. One option is for insurers to develop a separate fund so employees can purchase additional coverage that covers the cost of clinical research.
From page 9...
... from the bad regarding product and procedure outcomes. He believes there will be new opportunities for investigators to conduct research on large-scale datasets collected by payers in the near future.


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