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Appendix B: Information on Selected Variables
Pages 96-106

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From page 96...
... Appendix B Information on Selectecl Variables INFORMATION ON SELECTED VARIABLES dataset: site of death: cause of death: demographics: household: social supports: illnesses: physical symptoms: physical function: psychological symptoms: LSOA SES household composition (age, relationship) social history list of 13 serious conditions 6 ADLS, 6 IADLs, mobility, falling, dizziness, incontinence quality of life: cognition: health services utilization support services: satisfaction with care: 96
From page 97...
... . cognition: NMFS cause of death: SES relationship of people living with hypertension, heart attack, angina, stroke, Alzheimer, dementia, mental health, diabetes cancer, asthma, emphysema, bronchitis, cirrhosis, arthritis mobility, ADL, IADL trouble understanding, remembering, recognizing, problem behaviors health services utilization support services: satisfaction with care: family care: out-of-pocket costs: 97 did family members help/live with/help pay for care decedent funds and family expenses includes "help at home" INFORMATION ON SELECTED VARIABLES dataset: site of death: demographics: NHANES cause of death: SES
From page 98...
... . cogmhon: DESCRIBING DEATH IN AMERICA delineates all members of household extensive list of conditions extensive pain questionnaire difficulty doing 19 activities self reported memory problems or confusion health services utilization support services: satisfaction with care: family care: out-of-pocket costs: INFORMATION ON SELECTED VARIABLES dataset: site of death: demographics: household: social supports: illnesses: physical symptoms: physical function: MEPS cause of death: SES respondent lists conditions for each family member Pam ADL, IADL, mobility questions psychological symptoms: feeling anxious or blue quality of life: cognition: memory loss, confusion, decision making, supervision for safety health services utilization support services: satisfaction with care: general satisfaction, experience any difficulty, delay or lack of care
From page 99...
... APPENDIX B family care: out-of-pocket costs: detail info about caregivers purchased medicines; alternative care (total expenditures only) INFORMATION ON SELECTED VARIABLES dataset: site of death: demographics: household: social supports: illnesses: physical symptoms: physical function: MDS cause of death: SES marital status; lived alone prior to adm family involvement; contact with relatives and close friends checklist plus open ICD coding pain, shortness of breath ADLS specificially and pattern psychological symptoms: mood, psychological well-being quality of life: cognition: memory, skills, delirium health services utilization support services: satisfaction with care: family care: out-of-pocket costs: INFORMATION ON SELECTED VARIABLES dataset: site of death: demographics: household: social supports: illnesses: 99 PSID cause of death: SES relationships
From page 100...
... . cognition: health services utilization support services: satisfaction with care: family care: out-of-pocket costs: incl paid paid nurse/aide coming to home INFORMATION ON SELECTED VARIABLES dataset: OASIS site of death: cause of death: demographics: SES household: spouse, other family, friend, paid help social supports: illnesses: physical symptoms: physical function: diagnostic codes pain, shortness of breath, nausea, bowel function ADLS, IADS psychological symptoms: "emotional" problems quality of life: .
From page 101...
... . NDI cause of death: SES cognition: health services utilization support services: satisfaction with care: family car: out-of-pocket costs: INFORMATION ON SELECTED VARIABLES dataset: site of death: demographics: household: social supports: illnesses: physical symptoms: physical function: psychological symptoms: quality of life: 101 NHHCS cause of death: SES family, nonfamily primary or other diagnoses receives help from this agency regarding ADLs, IADLs
From page 102...
... . cogmhon: health services utilization support services: satisfaction with care: family care: out-of-pocket costs: DESCRIBING DEATH IN AMERICA relationship to primary caregiver only as primary or secondary source of payment INFORMATION ON SELECTED VARIABLES dataset: site of death: demographics: household: social supports: illnesses: physical symptoms: physical function: psychological symptoms: quality of life: .
From page 103...
... fatigue, tiredness, pain single item about "major activity limitation"; ADLs, IADLs, Nagi psychological symptoms: depression, anxiety, emotional problem quality of life: cognition: limited by difficulty remembering or confus~ons
From page 104...
... . cognition: health services utilization support services: satisfaction with care: NHEFS cause of death: SES # in household ever had; doctor ever told arthritis, heart attack, stroke, diabetes, cancer, fx hip, osteoporosis, etc.
From page 105...
... . cognition: health services utilization support services: satisfaction with care: mini mental 105
From page 106...
... . cognition: 14 questions on AHEAD Wave 1 dementia screening instrument, memory, reasoning health services utilization support services: satisfaction with care: family care: out-of-pocket costs: living with, assisting ADLS nursing home, prescriptions, in-home medical care, assistance with ADLs and IADLS


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