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Venture Philanthropy Strategies to Support Translational Research Workshop Summary (2009) / Chapter Skim
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5 Communications
Pages 47-52

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From page 47...
... Good communication builds the foundation of trust between a voluntary health organization, its researchers, institutional partners, and constituents -- trust that can lead to a powerful, positive reputation for the foundation, which has an impact on funding and effectiveness in the field. It is also a process of education and an exchange of ideas, and a good communication strategy needs to recognize that different audiences need different messages communicated via different media, said Sophia Colamarino, vice president of research at Autism Speaks.
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From page 48...
... ACTING VERSUS REACTING Cathy Carlson, senior director of research information for the Research and Clinical Programs Department of the National Multiple Sclerosis Society, advised that it was key to have advance notice from either grantees or medical journals about upcoming publications or results so that communication strategies can take advantage of opportunities to showcase readiness and a plan of action. Carlson agreed that communication often becomes most critical when doing damage control or when trying to balance the high expectations for a very promising drug versus BOX 5-1 Steps to Creating Open Communication • Show where the foundation wants to go.
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From page 49...
... The communication difficulties can actually drive the work itself. Louis DeGennaro, chief scientific officer of the Leukemia & Lymphoma Society, explained that the society bundles its research projects into disease-specific research portfolios of roughly 10 projects per portfolio, with roughly $1 million annual funding in each.
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From page 50...
... For some workshop participants, this ear to the ground starts with individuals giving presentations around the country and coming face-to-face with constituents. For others, such as the National Multiple Sclerosis Society, it is an information resource center that is mostly centralized and acts as a central call-in center so that the society can track statistics on its constituents' hot-button issues.
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From page 51...
... Groups like Genetic Alliance serve as community outposts. Key points from session five are captured below (Box 5-3)
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Key Terms

  • venture philanthropy
  • communication strategies
  • genetic alliance
  • specific project
  • communication strategy

  • prostate cancer
  • cancer foundation
  • research process
  • communication builds
  • fosters communication

  • translational research
  • research event
  • research portfolios
  • research information
  • fective communication

  • ground starts
  • cathy carlson
  • versus reacting
  • acting versus
  • sophia colamarino

  • clinical programs
  • chapter networks
  • diverse stakeholders
  • significant management
  • chief scientific

  • participants discussed
  • developed tools
  • resource center
  • molecular mechanisms
  • process requires


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