Innovations in Service Delivery in the Age of Genomics Workshop Summary (2009) / Chapter Skim
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Appendix B: Speaker Biosketches
Appendix B: Speaker Biosketches
Pages 61-68
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From page 61... ...
She was a visiting scientist at the Centers for Disease Control and Prevention in 1998 and is a fellow of the American College of Physicians. She has served on the NIH National Advisory Council for Human Genome Research and the Secretary's Advisory Committee on Genetic Testing.
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From page 62... ...
Before returning to the University of Washington, he was the Kerr White Visiting Scholar at the Agency for Healthcare Research and Quality and an Atlantic Fellow in Public Policy at University College London. Catherine DesRoches, Dr.PH., is an assistant in health policy at the Institute for Health Policy at Massachusetts General Hospital and an instructor in the Department of Medicine (Health Policy)
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From page 63... ...
At the University of California, San Francisco, Medical C enter, she provided clinical services for clients of all ages about general and metabolic genetics and coordinated clinical trials for enzyme replacement therapy. Her efforts to increase awareness and access to genetic services and her dedication to setting high standards for providing reliable, professional services through the Internet have led to nationwide lectures, workshops, and training sessions for a variety of audiences, from con sumers to health care providers.
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From page 64... ...
Before joining the Department of Health, she served as a cytogenetic technologist with Memorial Sloan-Kettering Cancer Research Center and as the senior genetic counselor for the Jones Institute for Reproductive Medicine, the Children's Hospital of the King's Daughters in Virginia, and Women and Infants Hospital in Rhode Island. She is a national leader, serving as a member of the Health Care Professional Advisory Committee and Current Procedural Terminology adviser for the American Medical Association, a founding member of the Economics of Genetic Services Committee of the American College of Medical Genetics, past president of the National Society of Genetic Counselors, and a founding member and past president of the Coalition of State Genetic Coordinators.
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From page 65... ...
Shappell was employed by Myriad Genetic Laboratories, Inc., where she provided hereditary cancer consultation and education to patients, physicians, and Myriad employees about hereditary cancer and genetic testing by telephone. Through her extensive contact with patients and health care providers throughout the United States, she recognized that limited access to genetic counseling expertise was compromising patient care.
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From page 66... ...
She is a member of the board of directors of the Biotechnology Institute and on the advisory board of the Johns Hopkins Genetics and Public Policy Center funded by the Pew Charitable Trusts. She is the chair of the Coalition for Genetic Fairness, composed of advocates, health care providers, and industry working to enact effective federal policy to prohibit genetic information discrimination.
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From page 67... ...
As a leader in NSGC, she has represented the organization on several national committees, including the Secretary's Advisory Committee on Genetics, Health, and Society, and she is a member of the Institute of Medicine Roundtable on Translating Genomic-Based Research for Health. She is also active on a state level and is working with the Illinois Department of Public Health on genetics education and finance and reimbursement issues and is on the Genetic and Metabolic Diseases Advisory Committee.
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