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8 Maximizing the Utility of the HIV Infection Listings
Pages 101-108

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From page 101...
... The committee heard from disability examiners and medical consultants that the introductory text for the HIV Infection Listings provides helpful guidance for implementing the listings. At the same time, many indicated it was confusing, disjointed, and difficult to read.
From page 102...
... Detailed clinical descriptions pertain mostly to disability examiners and medical consultants, while the general discussion about what qualifies as a disabling condition is most useful for patients, their families, and advocates. In an effort to make the introductory text more audience appropriate and better organized, the committee suggests reorganizing the text to focus on the broad, general issues and to put the highly technical discussions into a different section.
From page 103...
... . Technical Overview The technical overview portion envisioned by the committee would describe specifics about the sublistings to help disability examiners, medical consultants, and adjudicators make decisions based on the HIV Infection Listings.
From page 104...
... Finally, because HIV is perpetually replicating and evolving, complications of nonadherence and resistance is another issue to consider in future revisions of the HIV Infection Listings. Resistance can result from a number of causes, such as nonadherence and individual pharmacodynamics, which can lead to severe adverse health outcomes similar to those that occurred before widespread use of combination antiretroviral therapy.
From page 105...
... Making deidentified data publicly accessible and available for relevant analysis could result in improved timeliness and applicability of the HIV Infection Listings. The process of making these deidentified data accessible for improved scholarship could follow a process similar to that of the Centers for Medicare and Medicaid Services or the National Institutes of Health.
From page 106...
... Many Disability Determination Services have developed forms specifically to supplement HIV claims so that disability examiners and medical consultants have adequate information at the beginning of a decision process, saving time and resources. This reflects a need for SSA's application forms to be updated.
From page 107...
... When evaluating a claimant's level of functioning and ability to work, a broader base of expertise may be needed to ensure that the most informed health professional is assessing the claim, as expressed in SSR 06-03p.2 In these situations, the opinions of other practitioners have equal or greater applicability to the disability decision than those of the professionals listed as "acceptable medical sources." The committee concludes that SSA should consider including a wide array of licensed health professionals as acceptable medical sources (e.g., nurses, dentists, allied health professionals) for determining the functional effects of impairments.
From page 108...
... Training on the technical details of the HIV Infection Listings and the most current advances in HIV medicine are essential to correctly interpreting and applying the Listings. As in continuing medical education, continuing training of medical examiners and disability examiners is also expected to enhance the professionalism and reduce turnover of these key personnel.


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