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Appendix A: Workshop Agendas
Pages 445-460

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From page 445... ... Claude Wasterlain, University of California, Los Angeles, School of Medicine, Department of Veterans Affairs Greater Los Angeles Health Care System Jeffrey Catania, Children's Institute, Inc. 1 Surveillanceis defined broadly as continuous and methodical data collection and analysis for public health programs, including registries and disease-specific reporting systems, surveys, and administrative and clinical data sets. Read the entire page →
From page 446... ... 10:10-10:20 Impact Across Populations -- Health Disparities and Considerations for Subpopulations Samuel Wiebe, Hotchkiss Brain Institute at the University of Calgary Medicine 10:20-11:00 Discussion with the Committee Questions: • What is known about the impact of epilepsy on patients, families, the health care system, and society? • How is the impact of epilepsy measured for direct and indirect costs and quality of life? Read the entire page →
From page 447... ... 11:00 Break 11:15 Panel 2: Epilepsy Surveillance -- Gaps and Opportunities Facilitator: David Grant 11:15-11:20 Panel Introductions 11:20-11:30 Current State of Epilepsy Surveillance Edwin Trevathan, St. Louis University School of Public Health 11:30-11:40 Building on Existing Public Health Surveillance Systems Wayne H Read the entire page →
From page 448... ... 1:40-1:50 Veterans Surveillance Systems Paul D Varosy, Department of Veterans Affairs, Eastern Colorado Health Care System 1:50-2:00 Future Opportunities for Use of Existing Data Collection Systems -- The Health Maintenance Organization Research Network Stephen K Read the entire page →
From page 449... ... 2:30 Break 2:45 Panel 4: Improving Epilepsy Surveillance -- Overcoming the Complexities of Data Collection Facilitator: Joseph Sirven 2:45-2:50 Panel Introductions 2:50-3:00 Defining and Classifying the Epilepsies Jerome Engel, University of California, Los Angeles, Seizure Disorder Center 3:00-3:10 Comorbidities -- Pediatric, Adolescent, and Young Adult Populations Anne Berg, Northern Illinois University 3:10-3:20 Comorbidities -- Adult and Geriatric Populations Frank Gilliam, Geisinger Health System 3:20-3:30 Emerging Models of Data Collection and Surveillance Arien Malec, Nationwide Health Information Network 3:30-4:00 Discussion with the Committee Questions: • How do definitions vary in the epilepsies and how do these variations affect data collection? • What are the limitations and barriers associated with current classification systems and how can they be overcome? Read the entire page →
From page 450... ... • How can risk factors be used to inform efforts in prevention? • What epidemiologic research or public health studies are needed to inform the development of strategies to prevent epilepsy? Read the entire page →
From page 451... ... Gumnit, National Association of Epilepsy Centers 9:25-9:35 Department of Veterans Affairs (VA) Epilepsy Centers of Excellence Karen Parko, San Francisco VA Medical Center Read the entire page →
From page 452... ... 10:30 Break 10:45 Panel 2: Health Care for the Epilepsies: Quality of Care Facilitators: Ramon Diaz-Arrastia and Carolyn Cocotas Read the entire page →
From page 453... ... • How could health care reform affect the access to and quality of care for people with epilepsy? • What innovative approaches are needed to improve health care? Read the entire page →
From page 454... ... 1:25-1:35 Lessons Learned from the Epilepsy Learning Collaborative Deanna McPherson, Health Resources and Services Administration 1:35-1:45 Care Coordination: Improving Transitions and Coordination Between Health Care Providers and Intersections with Community Services Diane Carter, University of Virginia, Care Coordination for Children 1:45-1:55 Innovative Approaches to Improving Access to Care Jeanette Hartshorn, Telemedicine Epilepsy Management Program of Texas 1:55-2:25 Committee Questions and Discussion 2:25-2:30 Concluding Remarks and Panel Summary Questions: • What are the barriers to access and care across populations? For specific populations? Read the entire page →
From page 455... ... 2:30 Break 2:45 Panel 4: Education of Health Care Professionals Facilitator: Gregory Holmes 2:45-2:50 Panel Introductions 2:50-3:00 Educating Neurologists and Epileptologists David Labiner, University of Arizona 3:00-3:10 Educating Primary Care Providers Paul Levisohn, University of Colorado 3:10-3:20 Nursing Education Janice Buelow, University of Indiana 3:20-3:30 Psychiatry Deborah Hales, American Psychiatric Association 3:30-3:40 Geriatrics Ilo Leppik, University of Minnesota 3:40-4:10 Committee Questions and Discussion 4:10-4:15 Concluding Remarks and Panel Summary Questions: • What are the current approaches being used to educate and test knowledge and competence of health professionals about the epilepsies? • Are there core competencies and/or curricula currently available that focus on the epilepsies? Read the entire page →
From page 456... ... 4:50-5:00 Ensuring Health Literacy and Cultural Appropriateness Cheryl Bettigole, Philadelphia Department of Public Health 5:00-5:10 The Role of Technology in Educating Patients and Families Michael Wolf, Northwestern University 5:10-5:40 Committee Questions and Discussion 5:40-5:45 Concluding Remarks and Panel Summary Questions: • What are the health care (psychosocial as well as medical) education needs of patients? Read the entire page →
From page 457... ... 5:45 Adjourn June 29: OPEN SESSION 8:15 a.m. Welcoming Remarks Mary Jane England, Committee Chair 8:30 Public Testimony Moderator: Mary Jane England • John Pellock, American Epilepsy Society • Robert Moss, SeizureTracker.com • Richard Leslie, Wyoming Epilepsy Association • Mary Jo Pugh, Veterans Health Administration • John Gambo • Michael Bornemann • Sabrina Cooke 9:00 Panel 6: Improving Quality of Life: Community Programs and Resources Facilitator: Dilip Jeste 9:00-9:05 Panel Introductions 9:05-9:15 Mental Health Services and Resources Across the Lifespan Naomi Chaytor, University of Washington (via phone) Read the entire page →
From page 458... ... • What are your priority recommendations for improving community programs to better meet the needs of people with epilepsy? 10:30 Break Read the entire page →
From page 459... ... • What are the key components and best practices that are required to develop a successful public education and awareness campaign? • How can online tools and social media effectively be used for public education and awareness campaigns? Read the entire page →
From page 460... ... 12:15 p.m. Closing Remarks Mary Jane England, Committee Chair 12:30 Adjourn Read the entire page →

From page 445...

... Claude Wasterlain, University of California, Los Angeles, School of Medicine, Department of Veterans Affairs Greater Los Angeles Health Care System Jeffrey Catania, Children's Institute, Inc. 1 Surveillanceis defined broadly as continuous and methodical data collection and analysis for public health programs, including registries and disease-specific reporting systems, surveys, and administrative and clinical data sets.

Appendix A: Workshop Agendas Pages 445-460

Appendix A: Workshop Agendas
Pages 445-460