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Epilepsy Across the Spectrum Promoting Health and Understanding (2012) / Chapter Skim
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Appendix C: Data on Specialized Epilepsy Centers: Report to the Institute of Medicine's Committee on the Public Health Dimensions of the Epilepsies
Pages 509-516

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From page 509...
... Committee on the Public Health Dimensions of the Epilepsies with data related to services provided by specialized epilepsy centers. BACKGROUND INFORMATION ON SPECIALIZED EPILEPSY CENTERS The goal of epilepsy treatment provided in a specialized epilepsy center is to eliminate seizures and side effects (CDC et al., 1997)
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From page 510...
... If seizure control is obtained, no further specialized epilepsy evaluation may be necessary. If seizures persist and cannot be brought under control by the primary care provider within 3 months, further neurological intervention is appropriate; the neurologist should assume full management of the patient's care at this point (Scheuer and Pedley, 1990)
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From page 511...
... Level 4 epilepsy centers serve as regional and/or national referral facilities for patients with refractory epilepsy and offer a complete evaluation for epilepsy surgery. These centers provide more complex forms of intensive neurodiagnostic monitoring, as well as more extensive medical, neuropsychological, and psychosocial treatment, including intracranial electrode placement, functional cortical mapping, evoked potential recording, electrocorticography, and resection of epileptogenic tissue in the absence of structural lesions; they also provide a broad range of surgical procedures for epilepsy.
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From page 512...
... 2011 National Association of Epilepsy Centers Designation Survey -- Data from 133 Centers Personnel Based on the information gathered in its designation survey, NAEC recognized 115 level 4 and 18 level 3 epilepsy centers. On average, level 3 centers reported having one to three epileptologists and a neurosurgeon.
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From page 513...
... Across all centers, the average percentage of patients referred from each source was as follows: Primary care providers: 40.30 percent (range of 5 to 95 percent) Neurologists: 35.6 percent (range of 5 to 80 percent)
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From page 514...
... NATIONAL ASSOCIATION OF EPILEPSY CENTERS SURVEY FOR THE INSTITUTE OF MEDICINE -- AUGUST 2011 As many of you know, the Institute of Medicine (IOM) is currently undertaking a review of the public health dimensions of the epilepsies.
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From page 515...
... , Epilepsy Foundation, and NAEC (National Association of Epilepsy Centers)
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Key Terms

  • specialized epilepsy
  • epilepsy surgery
  • epilepsy care
  • epilepsy center
  • refractory epilepsy

  • epilepsy evaluation
  • ongoing epilepsy
  • comprehensive epilepsy
  • health dimensions
  • centers provide

  • designation survey
  • treatment plan
  • waiting times
  • essential services
  • annual designation

  • seizure control
  • waiting time
  • treatment services
  • data related
  • care provider

  • epilepsy services
  • epilepsy specialists
  • epilepsy monitoring
  • tive epilepsy
  • epilepsy treatment

  • epilepsy seizures
  • provides epilepsy
  • epilepsy specialist
  • patients receive
  • response rate


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