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Informatics Needs and Challenges in Cancer Research Workshop Summary (2012) / Chapter Skim
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6 Proposal for a Coalition of All Stakeholders
Pages 91-94

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From page 91...
... In considering a path forward, Kean said it was important to leverage the successes of previous models of collaboration, exploit existing assets and capabilities, and play to the strengths and needs of all the different constituencies in biomedicine as well as in other industries and communities. ACHIEVING DATA LIQUIDITY IN THE CANCER COMMUNITY The proposed coalition was envisioned by Kean as a nonprofit membership organization comprising all stakeholders in the cancer community and beyond, who are deeply committed to actualizing a common vision of data liquidity to achieve personalized cancer care and a rapid-learning health care system.
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From page 92...
... The coalition could convene; advocate; mobilize participation; serve as an honest broker; select and apply standards and catalyze standards development where none exist; provide consulting and project management services via contracts to members; catalyze the building of capabilities that serve immediate needs via contracts to members or others; leverage success
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From page 93...
... · Biomedical innovation and achievement of personalized cancer care can be accelerated and improved by facilitating connec tivity and seamless data exchange among research and care collaborators. · Open IT frameworks -- defining standards by which technology components can interoperate -- provide such capability through open interfaces, enabling researchers to seamlessly capture, aggregate, integrate, analyze, interpret, and transmit data.
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From page 94...
... A host of potential benefits would accrue from the successful launch and implementation of such a coalition, Kean concluded. In addition to addressing many or even most of the challenges discussed at the workshop, the activities of a successful stakeholder coalition could accelerate studies and advance new approaches to evidence generation and, ultimately, achieve benefits for all constituencies.
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Key Terms

  • data exchange
  • proposed coalition
  • personalized cancer
  • seamless data
  • honest broker

  • project management
  • stakeholder coalition
  • cancer community
  • coalition principles
  • achieving data

  • developed incrementally
  • exploit existing
  • management services
  • none exist
  • achieve personalized

  • principles kean
  • foundation grants
  • integrate capabilities
  • challenges discussed
  • highlighted throughout

  • nonprofit organization
  • serve immediate
  • proprietary software
  • kean referred
  • kean invited

  • deeply committed
  • bership organization
  • deliver rapid
  • address specific
  • apply standards


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