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Informatics Needs and Challenges in Cancer Research Workshop Summary (2012) / Chapter Skim
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7 Transforming Cancer Informatics: From Silos to Systems
Pages 95-98

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From page 95...
... Participants discussed the need to move from silos full of information to integrated systems that provide actionable knowledge to advance cancer care. Scientific and clinical discoveries can be realized much more rapidly with this type of systems infrastructure in place than without, said Lawrence Shulman of Dana-Farber, adding that every year that an important discovery is delayed, thousands of patients die.
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From page 96...
... 3.Establish an ecosystem of partners, including, but not limited to, the following: · patients, consumers, advocates; · cancer centers, physicians; · biomedical research; · clinical researchers, quantitative scientists, basic scien tists, outcomes researchers; in industry, academia, and government; · cancer clinical trials cooperative groups; · information technology developers and providers; · payers, administrators; and · federal agencies. 4.Generate trust.
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From page 97...
... Changing Minds, Changing Behaviors As suggested by George Poste (Chapter 5) , embracing the complexity of cancer informatics and taking action to drive change will require the courage to acknowledge both the challenges and the need for radical change; the resilience to continue forward in the face of entrenched constituencies; competitiveness and new participants (including consumers)
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From page 98...
... Apparent throughout the discussion of the gaps, challenges, and potential solutions for cancer informatics was the overarching theme that data should be used for the benefit of society. Data are accumulating fast.
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Key Terms

  • digital framework
  • moving forward
  • biomedical organizations
  • taking action
  • cancer care

  • amy abernethy
  • main objectives
  • clinical discoveries
  • lawrence shulman
  • core underlying

  • proposed coalition
  • public databases
  • participants discussed
  • security solutions
  • clinical trials

  • potential solutions
  • underlying issue
  • move cancer
  • framework stays
  • medical oncology

  • abernethy summarized
  • feinstein kean
  • standardized protocols
  • trials cooperative
  • drive change

  • disruptive change
  • stays current
  • informatics forward
  • cancer clinical
  • technology developers


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