Kidney Failure and the Federal Government (1991) / Chapter Skim
Currently Skimming:
Pages 37-50
The Chapter Skim interface presents what we've algorithmically identified as the most significant single chunk of text within every page in the chapter.
Select key terms on the right to highlight them within pages of the chapter.
From page 37... ...
Finally, in this part, Chapter 6 examines the structure of the ESRD provider institutions: kidney transplantation centers as well as outpatient dialysis units.
|
From page 39... ...
The committee wished to obtain information directly from ESRD patients on their experience. A patient survey was considered but rejected on feasibility grounds.
|
From page 40... ...
Home dialysis patients also have frequent telephone contact with their physician or with a nurse. Individuals wanting a transplant often have to wait for a kidney.
|
From page 41... ...
PERSPECTIVES OF ESRD PATIENTS 4 advice, guidance, information, and treatment. The participants reporting a good relationship with their physician were clearly committed to him or her.
|
From page 42... ...
42 KIDNEY FAILURE AND TTIE FEDERAL GOVERNMENT frustration with patient "noncompliance" and greater personal satisfaction in patient care. It doesn't matter where he is, or what he has to do, if you ask him a question and it takes him 2 hours to answer it—he'll give you the 2 hours.
|
From page 43... ...
PERSPECTIVES OF ESRD PATIENTS 43 you start all over from the beginning and say "this is my situation," and I don't like that. [Washington, D.C.]
|
From page 44... ...
Participants reported that the physician has a particularly strong influence at early stages. People who hang out their shingles as caring for patients with end-stage renal disease .
|
From page 45... ...
High flux, reuse, EPO dosage calculations, antirejection drugs for transplant patients all are controversial topics in the dialysis field that are of interest to patients as well as professionals. Many focusgroup participants were aware of these and other current issues, some through their own efforts to stay informed, others because of a physician or staff commitment to educate them.
|
From page 46... ...
46 KIDNEY FAILURE AND THE FEDERAL GOVERNMENT going on. What's happening to my Dad?
|
From page 47... ...
, now more than a decade old, is a notable exception. All patients openly discussed the financial hardships experienced since renal failure; most reported a change in occupation and nearly all reported a decrease in personal income "substantial" in many cases.
|
From page 48... ...
Many also reported difficulty in paying for and/or qualifying for private insurance and indicated that the financial hardship of renal failure was more difficult than the medical hardship. If you don't do anything, you can get help.
|
From page 49... ...
CONCLUSIONS The focus groups were intended to obtain information directly from patients on their experiences with renal failure and to identify opportunities for improvements from their viewpoint. The quotes of patients speaking for themselves accomplish this.
|
From page 50... ...
In particular, ESRD focus-group participants identified employment opportunities and problems, difficulties associated with private health insurance, the frequent dependence of ESRD patients on Social Security disability, and the disincentives that system raises to pursuing employment as matters of great concern. The barriers to rehabilitation physical, economic, and social are important to patients.
|
Key Terms
This material may be derived from roughly machine-read images, and so is provided only to facilitate research.
More
information on Chapter Skim is available.