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The Impacts of the Affordable Care Act on Preparedness Resources and Programs Workshop Summary (2014) / Chapter Skim
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5 Needs and Logistics of Data Sharing and Health Information Technology
Pages 51-60

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From page 51...
... A major theme throughout the workshop was how the collection, analysis, use, and sharing of health data is a driving force in the transformation of U.S. health care.
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From page 52...
... In the absence of knowing who was where, public health officials went door to door to identify those with medical special needs. This was clearly not efficient, so they also used Medicare claims data, in a way that complies with the Health Insurance Portability and Accountability Act (HIPAA)
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From page 53...
... There are sophisticated tools that facilitate the use of cell phones to collect public health information on the ground, and to use that information for decision support in an emergency; however, there is no common framework and no resources dedicated to developing them for use in disaster response. Because of this and other reasons, communication with medically vulnerable individuals in disasters is done differently in cities across the country and could benefit from standards or coordination.
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From page 54...
... Another key part of the Meaningful Use program is exchange with public health, including public health reporting and syndromic surveillance reporting. Justin Barnes, vice president of Greenway Medical Technologies and board member of the CommonWell Health Alliance, said a lot of money has been dedicated to support the development of health IT infrastructure for data exchange, from both the ACA and the ARRA, and there are many opportunities to build onto existing infrastructures.
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From page 55...
... Mobile EHRs, patient portals, state and regional HIEs, and personal health records (e.g., Blue Button mentioned by Larsen) can all be combined to support public health, emergency preparedness, and both individual and community resilience.
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From page 56...
... Population-based clinical data are captured and stored in many independent databases and information management systems, with different patient identifiers. The aggregate of information about an individual across such data sources could be used for many uses including the routine delivery of care, public health processes, clinical and comparative effectiveness research, preparedness activities, and other public health and health care–related processes.
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From page 57...
... For example, Epic Care Everywhere provides a framework for interoperability between Epic and non-Epic participating providers so that wherever the patient goes -- between health care systems in the same town or across state and national borders -- the clinicians providing care can have the details they need.5 Protected health information, including certain sensitive health information, can be shared with 5 For more information on Epic, see https://www.epic.com/software-interoperability.php (accessed May 10, 2014)
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From page 58...
... . Although the health care system has changed a lot since 1970, 42 CFR Part II has not been amended to account for changes in technology and integrated care.
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From page 59...
... NEEDS AND LOGISTICS OF DATA SHARING AND HEALTH IT 59 logistics to implement this concept at a small "race level" such as the marathon seem manageable, scaling the concept to a higher city, state, or regional level may become more difficult and require additional levels of privacy and approval. Benjamin added that there is political sensitivity to tracking people through a national patient identifier.
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Key Terms

  • medical equipment
  • patient identifier
  • syndromic surveillance
  • durable medical
  • national patient

  • addiction treatment
  • commonwell health
  • health data
  • health records
  • health officials

  • health reporting
  • health alliance
  • information infrastructure
  • emergency preparedness
  • information exchange

  • including public
  • community pharmacies
  • participating providers
  • decision support
  • representing health

  • state health
  • health insurance
  • health processes
  • sensitive health
  • electronic health

  • health registry
  • accessible health
  • clinical health
  • protected health
  • personal health


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