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Appendix A: Workshop Agenda
Pages 73-80

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From page 73...
... • Identify key challenges in the evidence evaluation process. • Elicit pragmatic approaches to facilitate the effective translation of genomics into the clinic by improving evidence-based policy development.
From page 74...
... Terry, Roundtable Co-Chair President and Chief Executive Officer Genetic Alliance Geoffrey Ginsburg, Roundtable Co-Chair Director, Genomic Medicine, Duke Institute for Genome Sciences & Policy Executive Director, Center for Personalized Medicine, Duke Medicine Professor of Medicine and Pathology, Duke University Medical Center 8:35–8:45 a.m. Charge to Workshop Speakers and Participants David Veenstra Professor, Pharmaceutical Outcomes Research and Policy Program University of Washington SESSION I: HOW EVIDENCE IS GATHERED AND ASSESSED/GRADED/EVALUATED Moderator: Debra Leonard, University of Vermont 8:45–10:15 a.m.
From page 75...
... Jonathan Berg Assistant Professor Department of Genetics University of North Carolina School of Medicine Katrina Goddard Senior Investigator Kaiser Permanente Center for Health Research Shashikant Kulkarni Director of Cytogenomics and Molecular Pathology Genomics and Pathology Services Washington University School of Medicine Heidi Rehm Associate Professor of Pathology, Brigham and Women's Hospital and Harvard Medical School Director, Laboratory for Molecular Medicine Partners Healthcare Center for Personalized Genetic Medicine Madhuri Hegde Executive Director, Emory Genetics Laboratory Professor, Department of Human Genetics Emory University School of Medicine
From page 76...
... • Under what circumstances are high throughput sequencing tests covered by payers? Robert McDonough Head of Clinical Policy and Research Aetna Louis Jacques Director, Coverage and Analysis Group Office of Clinical Standards and Quality Centers for Medicare & Medicaid Services 1:00–1:35 p.m.
From page 77...
... Research Program Associate Director for Research, Partners Center for Personalized Genetic Medicine Division of Genetics, Department of Medicine Brigham and Women's Hospital and Harvard Medical School Howard M Saal Director, Clinical Genetics Division of Human Genetics Cincinnati Children's Hospital Medical Center Gary Lyman Co-Director, Hutchinson Institute for Cancer Outcomes Research Fred Hutchinson Cancer Research Center University of Washington 2:20–2:55 p.m.
From page 78...
... And, what is the patient response to reports of incidental findings? Kathleen Hickey Assistant Professor of Nursing Columbia University School of Nursing Jessica Everett Clinical Instructor, Internal Medicine Certified Genetic Counselor Cancer Genetics Clinic University of Michigan Amy Hower Neuroscientist and Patient Michael Gambello Associate Professor of Human Genetics and Pediatrics Section Chief, Division of Medical Genetics Emory University School of Medicine 4:10–4:45 p.m.
From page 79...
... • How do risk–benefit tradeoffs influence evidentiary requirements? Jonathan Berg Assistant Professor Department of Genetics University of North Carolina School of Medicine Jessica Everett Clinical Instructor, Internal Medicine Certified Genetic Counselor Cancer Genetics Clinic University of Michigan Katrina Goddard Senior Investigator Kaiser Permanente Center for Health Research Robert C
From page 80...
... 80 GENOME SEQUENCE INFORMATION IN HEALTH CARE DECISIONS Brigham and Women's Hospital and Harvard Medical School Shashikant Kulkarni Director of Cytogenomics and Molecular Pathology Genomics and Pathology Services Washington University School of Medicine Robert McDonough Head of Clinical Policy and Research Aetna 5:30–5:45 p.m. Summary and Concluding Remarks 5:45 p.m.


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