Informed Consent and Health Literacy Workshop Summary (2015) / Chapter Skim
Currently Skimming:
6 Reflections on the Workshop
6 Reflections on the Workshop
Pages 93-100
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From page 93... ...
Brach asked if there are other things that leadership cares about that can be a driver for change, such as patient-centered care or shared decision making. She also commented on the need to "hardwire" these change agents through sustained attention and the role that better consent forms, communication tools, supervision, and documental and other structural processes can play as levers in that regard.
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From page 94... ...
Another thing to keep in mind, said Alvarado-Little, is that a patient's caretaker, regardless of education, may not have the foresight to ask certain questions, particularly when the caretaker has an emotional connection to the patient. She stressed the need to educate health care providers on the proper use of an interpreter in the consent process.
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From page 95... ...
Catina O'Leary commented that the discussions at the workshop were rather narrow in their focus on what is informed consent and why it matters, whereas the paper that the roundtable commissioned also highlighted the fact that not much is known about health literacy and informed consent in community-based research. While acknowledging that it is important to talk about risks involved in participating in clinical trials in a hospital setting, she said that the risks of doing informed consent poorly in the community setting is that it can destroy the trust of researchers and health care providers throughout a community.
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From page 96... ...
Benard Dreyer focused his initial comments on the role of language in informed consent and said that the field is nowhere near where it should be in terms of providing appropriate interpretation of any kind to the large and growing population of people in this country who have limited English proficiency. He said that raising awareness of the challenges in achieving health literacy in this group of less-than-proficient English speakers is an important task, given how little progress has been made in this area despite its obviousness.
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From page 97... ...
He also noted that by increasing health care plan enrollment, the Affordable Care Act has created opportunities to reach a larger proportion of the American public as well as created the challenge of obtaining consent from more of them. His final comment was that he supported the use of infographics and pictures to enhance comprehension throughout the consent process.
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From page 98... ...
He also said that there is enough evidence on health literacy, shared decision making, and how to create informed decisions among patients in health care contexts to move that bar forward now. "More research is always nice, but not at the expense of actual action," he said.
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From page 99... ...
She made the point that "until we understand what the person with whom we are engaging wants and needs in their lives and how our conversation fits with that, I think we have missed the boat." Francis also said that testing should extend not only to patient comprehension but also to health care provider comprehension. "Test us on if we understand the priorities of the people we are sitting across from and how this informed consent fits within their priorities," said Francis.
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From page 100... ...
1 According to the Institute for Healthcare Improvement's website, "The Improvement Map is a free, interactive, Web-based tool designed to bring together the best knowledge available on the key process improvements that lead to exceptional patient care." See http://www.ihi. org/Engage/Initiatives/Improvemaphospitals/Pages/default.aspx (accessed December 10, 2014)
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