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Pages 247-257

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From page 247...
... Ambulatory care, 30, 63, 73, 86, 99 American College of Surgeons National Trauma Registry, 68, 80 247 American Health Information Management Association, 34n American National Standards Institute, 89 Americans with Disabilities Act (ADA) , 79, 159 Analysis consultants, ll5n Analytic methods, 7, 8, 12- 13, 36, 113 Ancillary facilities, 78 Antitrust issues, 31, 78, 111 - 112 Appropriate health services, 1, 62, 72, 88, 114 Artificial intelligence, 77 Assessment, see Comparative data; Needs assessment; Quality assessment; Technology assessments Associations, see Business coalitions; Consumer interest groups; Professional associations Attorneys, 37, 65, 82, 141, 207 B Behavioral risks, 44, 80 Benefits, 76n.
From page 248...
... , 34, 59-60, 64 INDEX Community health needs, see Needs assessment Community interest groups, 37, 64-65, 81 Comparative data, 13, 30, 73, 78, 92, 97, 108, 127-129 Competition and competitor information, 31, 37, 70, 78, 100 managed competition, 71, 73 Completeness of data, 5-6, 7, 8, 85-89, 90, 107-108 Comprehensiveness of databases, 3, 5, 33, 35, 36, 44-47, 48n, 49, 54, 61, 85, 89, 239 limitations to, 30-31, 46-47, 84 research projects, 31 Compulsory process, 9, 16, 20, 21, 151, 185, 186, 191, 193-194, 207 Computer-based media, 91, 104- 105 public use data tapes, 30, 112, 114 Computer-based patient records (CPRs) , 7, 30, 32, 41, 43, 50, 51, 83n, 241 development of, 88-89, 90 privacy issues, 141-142 Computer Matching and Privacy Protection Act, 178-179, 189-190 Computer systems, see Computer-based media; Computer-based patient records; Networks (data)
From page 249...
... , 43, 64, 139 Department of Veterans Affairs, 66 Diagnosis-related Group Prospective Payment System (DRG-based PPS) , 72, 85-86 Diagnosis-specific analyses, 71, 85-86, 98 Diagnostic procedures, 46, 119, 153 Direct marketing firms, 65, 82, 138 Disadvantaged populations, 65, 70, 71, 81 Discharges, see Hospitals, discharge databases Disclosure, see Confidentiality; Informed consent; Privacy; Public disclosure; Redisclosure; Statistical disclosure limitation Disease incidence, 62, 65, 79 Disease registries, 41, 42, 79-80 DNA Identification Act, 138 DNA patterns, 6, 51 Dossiers, 144 in national identification systems, 18, 163-165 Drugs and medications, 46, 141 - 142 reactions and allergies to, 46, 74, 75 tracking of, 75, 146-147 Dual coverage, 44 Duty to warn, 151, 159 E Economics, see Costs of health care; Socioeconomic status Education, see Public education and outreach
From page 250...
... , 101, llln, 120-121, 148, 175-176 Free-standing surgery centers, 63 Fund-raising campaigns, 81 G Gender, 44, 65 Generalizability, 101, 102, 240 General releases, 183- 184 Genetic information, 44, 75, 82, 140 privacy issues, 138, 149, 158-159 Geographic variation, 65, 70, 77 Germany, 164 Global index, 101, 102- 103, 240 Good information practices, 192- 193 Government employees, 75 Group practices, 106 H Harm, see Potential for harm Harris/Equifax survey, 137, 156, 159, 164, 171-172, 211 Hartford, John A., Foundation, 33-34, 59-60, 62n Health Care Financing Administration (HCFA) , 43, 51, 53, 64, 70, 74 hospital mortality studies, 71-72, 96-98, 109 Health Care Policy Corporation, 50 Health care purchasing coalitions, 60, 64 Health care reform, 2, 32, 50, 61, 62, 65, 87, 88 and antitrust rules, 31
From page 251...
... , 149 I Identification, see Biometric identifiers; National identification system or dossier; Personal identification codes; Person-identifiable information; Person-identified information; Unique identifiers; Universal identifiers Illegal data acquisition, 160- 161, 162 Illinois, 79 Immunization records, 74, 80 Inadvertent release, 157 Inappropriate health services, see Appropriate health services Inclusiveness of databases, 3, 5, 33, 36, 47 49, 50, 52, 54, 61, 84, 89, 241 Independent practice associations (IPAs) , 52, 63, 98 Industrial health and safety, 99 Informational privacy, 15, 29, 143-147, 155 156, 242 Information brokers, 160- 161 Information-use policy, 155 - 156 Informed consent, 10, 17, 23-24, 139-140n, 148, 150, 152, 158, 173, 182-186, 202-203, 206 Injuries, see Trauma Insider threat, 160, 189 Institute for Health Care Assessment, 62n Institutional Review Boards, 10, 24, 114, ll5n, 202, 205 Insurance claims, 30, 32, 41, 43, 44, 51, 54, 60 automated processing, 2, 59, 75-76, 139, 141-142, 202 limitations as data source, 30, 31, 47, 86, 171 privacy issues, 139, 141-142, 150, 158, 161, 174 Insurance coverage and terms, 65, 70, 75, 76, 77 documentation in patient records, 44, 154 public knowledge, 93n Insurance premiums, 30, 77 Insurance support organizations, 172- 173 Insurers, 31, 37, 50, 63, 64, 70, 77, 92 identifiers, 52, 89
From page 252...
... , 167, 168, 192, 193 Internal validity, 243 Interpersonal performance, 62 Invasive procedures, 70, 119 Iowa, 50 K Kaiser Permanente, 98 L Laboratories and laboratory testing, 46, 63 Law enforcement agencies, 37, 65, 82, 141, 185, 186, 193, 194, 207 Laws, see Legislation and statutes Lawyers, see Attorneys Legal guardians, 10, 23, 202, 204 Legal cases, 141 improper disclosure, 149, 152, 157, 196, 213 libel lawsuits, 109, 115- 116 malpractice lawsuits, 37, 71, 82, 141 privacy rights, 146-147, 148, 175, 191 Legislation and statutes, 19, 37, 50, 106 insurance regulation, 78-79n preemptive, 9, 20-21, llln, 152, 180182, 190-194 on privacy and confidentiality, 9, 136, 138-140, 144, 146-147, 148, 149, 151-152, 155, 159, 168, 172-179, 180-182, 190-194, 212-213 of states, 6, 32, 35, 37, 50, 51, 60, 79n, 107, 140, 147, 182 Legislative charters, 175 Level of aggregation' 101, 106 Libel and defamation lawsuits, 109, 115- 116 Lifestyle, 44, 140, 153 Linkage, see Data linkage Local areas, 97-98 Logic programs, 76-77 Longitudinal records, 2, 30, 49, 52, 241 INDEX M Malpractice suits, 37, 71, 82, 141 Managed care, 63, 64, 75, 76-77, 100, 141 See also Health maintenance organizations; Independent practice associations; Preferred provider organizations Managed competition, 71, 73 Mandatory reporting requirements, 16, 150151, 159, 193-194 Manitoba Provincial Health Database, 67 Manual abstraction of records, 7, 31, 88 Marital status, 44, 154 Market research, 73, 77-78, 82, 98 Massachussetts Health l:) ata Consortium, 50, 97 Maternal and Child Health block grants, 64 Medco Containment Services, 142 Medicaid, 29, 43, 52, 149 Medical devices, 82, 99 Medical histories, 2, 32, 45, 46, 74-75, 153 of adopted children, 75 family, 44, 46, 74-75, 140 Medical Information Bureau, 152, 158 Medicare administrative data files, 29, 42, 43, 51, 70, 72, 74, 96 assignment of identifiers, 52, 53, 167168 Beneficiary Health Status Registry, 69 confidentiality regulations, 149 Current Beneficiary Survey, 51 Diagnosis-related Group Prospective Payment System, 72, 85-86 National Claims History, 29, 69 peer review organizations (PROs)
From page 253...
... , 43, 84 Out-of-range values, 86 National Committee on Quality Assurance, 98 Outpatient care, 30, 63, 73, 86, 99 National Health and Nutrition Examination Outreach, see Public education and outreach Survey, 30 National Health Board (proposed) , 40n, 139 140n National Health Care Survey, 84 National identification system or dossier, 18, 163-165 National information infrastructure, 88-89 National Institute of Diabetes and Digestive and Kidney Diseases, 74 National Medical Expenditures Surveys, 30, 43 National Quality Management Council (proposed)
From page 254...
... , 63, 98 identifiers, 52-53 Pregnancy, 46, 65 Prescriptions and prescription drugs, 46, 141-142 tracking of, 75, 146-147 Preventive care, 80 Price regulation, 73 Primary care, 30, 99 Primary patient records, 42, 42n, 55, 140 141, 171, 241 PrimeTime Live, 104 Privacy, 3, 15, 18-19, 33, 39, 46, 92, 136138, 142-143, 154, 162-172, 210213, 242 ethical issues, 148-149, 210-212 informational, 15, 29, 143-147, 155156, 242 institutional safeguards, 36, 83, 139140n, 162-163, 165-167, 176-180, 189- 190, 194-208 legislation on, 9, 136, 138-140, 144, 146147, 148, 149, 151-152, 155, 159, 168, 172-179, 180-182, 190-194, 212-213 opinion surveys, 137, 156, 159, 164, 171-172, 211 and research uses, 10, 23, 24, 114, 170172, 202, 205-206 right of, 15-16, 143, 145-147 See also Confidentiality Privacy Act of 1974, 15, 136, 144, 168, 176, 177-179, 197 Privacy Protection Study Commission (PPSC) , 136-137, 142, 178 Private sector databases, 6, 12, 32, 35, 50, 106-107, 187-188 Social Security number use, 168- 169 See also Competition and competitor .
From page 255...
... . questionnaires R Race and ethnicity, 37, 65 RAND Health Insurance Experiment, 30, 43, 93n, 127n Random error, 86n Randomized trials, 72 Recordkeeping privacy, 144- 145 Redisclosure, 17, 151-152, 156, 158-160, 171-172, 196, 198-199 Reform, see Health care reform; Health Security Act Regional data centers and networks, 6, 3435, 39, 138 in Clinton health plan, 40n See also Health database organizations Registries, 41, 42, 68, 79-80, 164 Regulation, 37, 97, 98, 190 on confidentiality, 149, 172 of insurance, 78-79n and quality assessment, 71, 73 See also Health care reform Release of data, see Access control; Public disclosure Reliability, see Data reliability Report cards, 98, 104 Repositories, 6, 29, 32, 59-60.
From page 256...
... , 19, 25, 52, 165, 167-170, 209 Social service agencies, 65, 80, 141 Socioeconomic status, 37, 44, 65 Southeast Organ Procurement Foundation, 74 Soviet Union, 164 Staff management, 73, 74, 79 Standards and standardization of coding and definitions, 6, 7, 31, 76, 87, 89 data exchange, 31, 43n, 89, 239-240 obstacles to, 31, 76 privacy safeguards, 21, 139-140n State laws, 6, 32, 35, 37, 50, 51, 60, 79n, 107, 182 privacy, 17, 140, 147, 149, 151, 152, 159, 186-189, 191 Statewide databases, 29-30, 32, 35, 43, 50, 55, 70, 80-81 and mortality rate studies, 71-72 public disclosure, 96-97, 98 Statistical disclosure limitation, 101-102n, 171 INDEX Stit ,matization, 157, 161, 162 Strategic planning, 73, 77-78 Substance abuse, 82, 149 Surgical procedures, 46, 71-74, 79, 96, 98, 99, 119, 123-135 Surveys and questionnaires, 41, 51, 60, 9798, 171 national, 30, 42, 43, 47, 84 on privacy concerns, 137, 156, 159, 164, 171-172, 211 Sweden, 164 Symbolic data presentation, 104, 105 Systematic error, 86n System security, 153, 154-155, 242-243 of HDOs, 22, 36, 189, 200-201 T Task Force on Privacy, 139 Tax Reform Act, 168, 192 Technology assessments, 32, 62, 72-73n Telecommunications, and privacy, 138, 152, 157, 200-201 Telephone Consumer Protection Act, 138 Terminology, 31, 89 Therapeutic procedures, 46, 119, 153 Therapists, 99 Third-party administrators (TPAs) , 37, 64, 76, 77, 159, 243 Third-party payers (TPPs)
From page 257...
... News & World Report, 97 Utilization management, see Case management Utilization patterns, 30, 54, 65, 70, 98 257 V Validity, 6, 31, 70, 85, 86, 87-88, 90, 243 of analytic techniques, 7, 8, 36, 113 and public disclosure, 11, 92-93, 95, 98, 99, 101, 108, 112, 113 Vermont Health Care Authority (VHCA) , 58-59, 60 Voluntary database participation, 6, 60 W Wallet incident, 170 Washington Checkbook, 97 Washingtonian, 97 Washington State, 50, 60, 79, 185n Wisconsin, 97 Work Group on Computerization of Patient Records, 89 Workgroup on Electronic Data Interchange (WEDI)


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