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Ensuring Quality and Accessible Care for Children with Disabilities and Complex Health and Educational Needs - Workshop in Brief
Pages 1-8

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From page 1...
... As the southeast regional autism response team coordinator for Autism Speaks, she also took on the task of showing other parents how to advocate and care for their children. "When he was born, I thought Jackson was going to change the world," said Hurley.
From page 2...
... For example, sidewalk curb cuts, INCREASED PREVALENCE electronic communication devices, and other barriThe prevalence of childhood disabilities has risen er-free technologies serve not only people with dissteadily in recent decades in the United States, abilities, but also everyone else. In addition, all chilnoted Maureen Durkin, professor of population dren and their families gain empathy and the ability health sciences and Waisman Center investigator to appreciate diversity even as they benefit in other at the University of Wisconsin–Madison.
From page 3...
... Robin Everhart, assistant professor of psychology at An example of a behavioral health condition is Virginia Commonwealth University, discussed pedithe traumatic stress caused by the psychological atric asthma, another condition that has behavioral and physiological responses of children and their components in both children and families. Pediatfamilies to pain, injury, medical procedures, and ric asthma occurs at very different rates in different invasive or frightening treatment experiences.
From page 4...
... The inclusion of children with disabilities in multi- Inouye Graduate School of Nursing, talked about ple social settings involves the behavioral responses not only her experiences as a family nurse practinot only of those children and their families. Torrie tioner at USUHS, but also of her experiences as the Dunlap, chief executive officer of Kids Included mother of a son with autism spectrum disorder.
From page 5...
... ceptions of children with disabilities that are created Program, which found much greater improvement by the media. Science journalist Victoria Costello in a quality-of-life measure in people whose dura- noted that personal stories help break down the tion of untreated psychosis was less than 18 months stigma that surrounds mental illnesses.
From page 6...
... Similarly, Tony Foleno, senior vice presi- Andy Shih from Autism Speaks and Ed Schor from dent for research, planning, and evaluation at the the Lucile Packard Foundation for Children's Health, Ad Council, emphasized the importance of clarity, considered ways to design systems that work for simplicity, and emotional appeal. "The most effec- children with complex health care needs.
From page 7...
... Department Mental Health; the National Institutes of Health; the Robert Wood University of Justice Johnson Foundation; the Society for Child and Family Policy and Practice; the Society of Clinical Child and Adolescent Psychology; COLLEEN HORTON DONALD WERTLIEB the Society of Pediatric Psychology; Substance Abuse and Mental Hogg Foundation for Mental Health, American Orthopsychiatric Association Health Services Administration; U.S. Department of Health and University of Texas at Austin and Tufts University Human Services, Assistant Secretary for Planning and Evaluation; U.S.


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