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2 Perspectives from Parents
Pages 9-18

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From page 9...
... • As partners with health care providers, parents are a critical emerging workforce in behavioral health care. (Sweeney)
From page 10...
... The family talked with their local school district, and tests revealed issues with fine motor skills and attention. Their pediatrician also sent the family to a local children's hospital for additional tests.
From page 11...
... Getting help for a physical condition is considered normal, but taboos still surround getting help from a mental health professional. She continued, "I've heard people say, ‘They're just not strong enough.
From page 12...
... It's very hard to see my son suffer on a daily basis." At the time, Gamel's older son was 2, and she had to be away from her family for extended periods while her newborn was in the neonatal intensive care unit. When she returned home, she began to notice issues with her older son.
From page 13...
... But "imagine what happens for disenfranchised families, fragile families, that are trying to piece together their lives day to day and are having these issues," she said. Gargan pointed out that crises are extremely unpredictable, as are physical health challenges.
From page 14...
... We have some work to do on normalizing behavioral health experiences." PARTNERING WITH BEHAVIORAL HEALTH CARE PROVIDERS When her daughter began to suffer from severe anxiety, Millie Sweeney downplayed the problem and attributed it to a phase. But as her daughter approached her teen years, her anxiety was affecting everyone in the family.
From page 15...
... DISCUSSION Terms that Can Reduce Stigma In response to a question about whether a term other than "mental health" or "behavioral health" might produce less stigma for parents and their children, Gamel responded that "calling it what it is has been the most empowering." When she attended a previous conference to speak about her successes dealing with behavioral health issues, she said she had not realized that mental health care was what she had been doing. "I thought it was coping, I thought it was surviving.
From page 16...
... Parents as Professionals and as Advocates Another topic raised in the discussion period was whether parents acting as professionals or partners with professionals may undermine their ability to advocate for their children. Gargan observed that everyone in the health care workforce should be an advocate working on behalf of families.
From page 17...
... confident." At the same time, Sweeney observed that health care providers need to help parents understand their evolving role. While young people are learning about their new responsibilities upon turning 18, parents need to get that information as well, she said.


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