Approaching Death Improving Care at the End of Life (1997) / Chapter Skim
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Appendix F
Appendix F
Pages 383-399
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From page 383... ...
Institute for Health and Aging University of California, San Francisco Organized by the Center to Improve Care of the Dying with support from the Nathan Cummings Foundation. Now at Brown University.
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From page 384... ...
Lombardi Cancer Center Georgetown University August 28 APPROACHING DEATH 9:00-10:00 Presentation and discussion of patient and family satisfaction Joan Teno, M.D. 10:00-11:00 Presentation and discussion of provider skill and continuity and advance care planning Molla Donaldson, M.S.
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From page 385... ...
Center for Survey Research University of Massachusetts Rosemary Gibson Program Officer Robert Wood Johnson Foundation Jane Ingham, M.D. Director, Palliative Care Program Lombardi Cancer Center Georgetown University 385
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From page 386... ...
Director of Outcomes Measurement VITAS Healthcare Corporation Vincent Mor, Ph.D. Associate Professor of Research Centers for Long-Term Care Gerontology and Health Care Research Brown University APPROACHING DEATH Naomi Naierman President/CEO American Hospice Foundation Donald Patrick, Ph.D.
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From page 387... ...
Institute for Health and Aging University of California, San Francisco William Stubing President, Greenwall Foundation Joan Teno, M.D. Co-Director, Center to Improve Care of the Dying The George Washington University Anne Wilkinson, Ph.D.
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From page 388... ...
With funding support from the Nathan Cummings Foundation and the Robert Wood Johnson Foundation, a multidisciplinary group of 27 persons assembled to review current knowledge about measuring quality of care at the end of life, make recommendations about the use of existing measures, and outline important issues that need urgent work for the vision of the toolkit to go forward. Deming stated that, "If you don't measure it, you can't improve it." Our ultimate vision for the toolkit was that health care institutions be able to use the toolkit to examine care of the dying, identify opportunities for improvement, and then undertake interventions to improve and enhance the quality of care.
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From page 389... ...
Measures must be responsive and eventually measures must be able to discriminate between health care institutions that are and are not delivering quality medical care. It is a realistic goal that measurement tools will be developed that both rate health care institutions on the quality of care and provide consumers with information on deciding which health care plan to select.
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From page 390... ...
It is important that measures reflect patient and family views of what defines quality medical care. An important litmus test is whether there is broad consensus or empirical studies that show that health care institutions ought to be held accountable for those outcomes.
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From page 391... ...
To that end, the toolkit conference aimed to provide a systemic review of the existing instruments to examine quality of care, make recommendations for promising instruments, create new instruments, and identify a research agenda that focuses on the rapid improvement in measurement of the quality of care at the end of life. Measurement Tools Suggested as Promising for Further Development and Testing in End-of-Life Care PHYSICAL SYMPTOMS, compiled and reviewed by Jane Ingham Verbal Rating Scale (Lasagna, L
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From page 392... ...
The descriptor differential scale: Applying psychophysical principles to clinical pain assessment.
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From page 393... ...
Measuring quality of life in hospice patients using a newly developed hospice quality of life index. Quality of Life Research.
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EMOTIONAL SYMPTOMS, compiled and reviewed by Joan Teno CES-D Scale (Radioff, S.F. The CES-D Scale: A self-report depression scale for research in the general population.
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From page 395... ...
The Medical Outcomes Study Physical Functioning Measure (Stewart, A., and Kamberg, C.J. Physical functioning measures.
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From page 396... ...
Death Attitudes Across The Life Span: Development and Validation of The Death Attitude Profile," Omega, 18~2~:113-128, 1987~. Life Attitude Profile: A 36-item multidimensional profile developed and tested in a college population and more recently in hospitalized patients .
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From page 397... ...
Testing The Death Transcendence Scale. f ournal for the Scientific Study of Religion, 32 (3~:279-283, 1993; Hood, R., and Morris, R
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From page 398... ...
Last Days: A Study of The Quality of Life of Terminally Ill Cancer Patients. journal of Chronic Diseases, 39~1)
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From page 399... ...
The family in hospital-based home care with special reference to terminally ill cancer patients.
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