Privacy Issues in Biomedical and Clinical Research (1998) / Chapter Skim
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Introduction: Privacy Issues in Research
Introduction: Privacy Issues in Research
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In labs around the country genetic researchers find themselves face to face with ethical and legal quandaries concerning the collection, analysis, and dissemination of genetic information. As the potential benefits of genetic science have grown, particularly in the diagnosis and treatment of disease, so have the worries about possible abuse, and Congress and a number of state legislatures have begun looking into regulating the flow of genetic information.
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For example, in universities and research hospitals an important safeguard against the misuse of genetic information generated by research is the institutional review board (IRB) , which must review and approve all research affecting humans; workshop participants identified weaknesses that hamper IRE review of genetic research protocols.
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