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The Unequal Burden of Cancer An Assessment of NIH Research and Programs for Ethnic Minorities and the Medically Underserved (1999) / Chapter Skim
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Appendix D: Survey of Ethnic Minority Researchers and of Researchers Interested in Cancer Among Ethnic Minority and Medically Underserved Groups
Pages 285-292

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From page 285...
... Require participation and joint input with community agencies." "Support initiatives that involve minority and health care leaders tof organizations that serve these populations] in the development of cancer prevention and control research applications." "Speak with these communities, especially the young investigators." 2.
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From page 286...
... Scientists from minority and medically undersexed communities should be involved in the NIH priority-setting process and in staffing of NIH positions. "Recruit minorities in NIH Board of Scientific Counselors and peer review committees." "Increase minority staff at NIH at all levels, particularly in policy positions." "NIH staff at all levels must be part of cultural competency training.
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From page 287...
... Community members and community-based researchers should be partners in research priority setting. "Hold focus groups with community leaders, primary care doctors, and research scientists to review current priorities with the needs of the community." "Include members from target populations in committees which discuss and decide priorities." 5.
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From page 288...
... "Greater focus on training, translation research in minority and medically underserved communities, support of cancer centers at HBCUs." "Networking of research capabilities of minority research medical centers." "Use of black colleges and medical schools." .
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From page 289...
... You have been identified as an individual who has expertise in issues related to the study committee's charge, which are: to review the status of cancer research relative to minorities and the medically underserved at the various institutes, centers and divisions of NIH to evaluate the relative share of resources allocated to cancer in minority and medically underserved populations (including a review of the NIH's ability to prioritize its cancer research agenda for minorities and the medically underserved and the role of minority scientists in decisionmaking on research priorities) ; to examine how well research results are communicated and applied to cancer prevention and treatment programs for minorities and the medically underserved and the adequacy of understanding of survivorship issues that uniquely impact on minority and medically underserved communities; and, to assess the adequacy of NIH procedures for equitable recruitment and retention of minorities and the medically underserved in clinical trials.
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From page 290...
... . If you have any questions regarding this questionnaire, please contact Brian Smedley at (202)
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From page 291...
... : Your employer is: Federal, state or local Government Non-profit educational or research institution Health care service Other (please indicate) : Have you ever submitted a research proposal to NIH or its Institutes?
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From page 292...
... 2 3 4 5 6 7 very negative neutral Comments: very positive In general, how would you rate the value or priority that NIH places on training of minority scientists? 2 3 4 5 6 7 very negative neutral Comments: very positive Are there examples of NIH activities, programs, or initiatives that you feel have worked well to address the research needs of minority and medically underserved communities?
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Key Terms

  • cancer research
  • underserved communities
  • underserved populations
  • brian smedley
  • please describe

  • identifying information
  • addressing research
  • salary support
  • proposals focusing
  • cancer prevention

  • research proposals
  • please mail
  • nih procedures
  • care service
  • received research

  • care leaders
  • minority scientists
  • minority staff
  • promising minority
  • clinical trials

  • special populations
  • populations research
  • address listed
  • researching communities
  • training funds

  • community leaders
  • please indicate
  • research priority
  • reporting mechanism
  • cancer centers


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