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Protecting Data Privacy in Health Services Research (2000) / Chapter Skim
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Appendix A Study Activities
Pages 101-105

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From page 101...
... . The workshop, which was open to the public, included presentations from IRB administrators and chairs, research foundations, and health care services companies (see Appendix B)
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From page 102...
... IRB Administrators Art Anderson, M.D., Fort Detrick, U.S. Army Angie Khan, University of Texas Health Science Center, San Antonio 10:45 IRB Chairs/or Members James Kahn, M.D., University of California at San Francisco Robert Amdur, M.D., University of Florida Steve Garfinkel, Ph.D., Research Triangle Institute Tora Bikson, Ph.D., RAND Corporation 1 1:45 Discussion 12:30 p.m.
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From page 103...
... 8:30 a.m. Call to Order, welcome by Chair, Brief Introductions of Committee 9:00 Technical Update Lawrence Dietz, Esq., Axent Technologies 9:15 Discussion 9:30 Special Considerations Regarding Data on Minors Ross Thompson, Ph.D.
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From page 104...
... We expect that this information request will be of interest to those who currently chair, serve on, or administer an IRE, and whose committee at least occasionally receives protocols for research that depend on secondary data mining or linkage, in health services research or similar secondary analyses of health-related data. By "health services research" we mean studies primarily using alreadycollected data to examine the impact of organization, financing, and management of health care services on access to, or the delivery, cost, outcomes, or quality of, services.
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From page 105...
... 9. Provisions, procedures and/or principles that should be more widely adopted by IRBs in safeguarding data privacy in health services research.
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Key Terms

  • data privacy
  • institutional review
  • care services
  • protecting data
  • identified below

  • contact information
  • services companies
  • safeguarding data
  • iom staff
  • health information

  • list serve
  • special considerations
  • issues identified
  • feel free
  • identifiable health

  • contribute information
  • review board
  • follows workshop
  • considerations regarding
  • academies current

  • access file
  • occasionally receives
  • response identified
  • responsible iom
  • included presentations

  • current projects
  • telephone conference
  • similar secondary
  • file created
  • specific identification


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