National Academies Press: OpenBook

The Economics of Genomic Medicine: Workshop Summary (2013)

Chapter: Appendix D: Registered Attendees

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Suggested Citation:"Appendix D: Registered Attendees." Institute of Medicine. 2013. The Economics of Genomic Medicine: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/18276.
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Appendix D

Registered Attendees

Adetayo Adewolu

Prince George’s County Health Department

Kris Anderson

Freelance

Katrina Armstrong

University of Pennsylvania

Naomi Aronson

Blue Cross and Blue Shield Association

Euan Ashley

Stanford University

Eric Assaraf

WRG

Carlos Avila

Abt Associates

Erin Balogh

Institute of Medicine

Arthur Beaudet

Baylor College of Medicine

Paul Billings

Life Technologies

Gregory Bloss

National Institute on Alcohol Abuse and Alcoholism

Bruce Blumberg

Kaiser Permanente

Juli Bollinger

Johns Hopkins University

Denise Bonds

National Heart, Lung, and Blood Institute

Suggested Citation:"Appendix D: Registered Attendees." Institute of Medicine. 2013. The Economics of Genomic Medicine: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/18276.
×

Vence Bonham

National Human Genome Research Institute

Joann Boughman

American Society of Human Genetics

Jen Bowman

American Clinical Laboratory Association

Pamela Bradley

American Association for Cancer Research

Kenneth Brigham

Emory University

Stacye Bruckbauer

FasterCures

Wylie Burke

University of Washington

Ned Calonge

The Colorado Trust

Sarah Carter

J. Craig Venter Institute

C. Thomas Caskey

Baylor College of Medicine

Lon Castle

Express Scripts

Frederick Chen

University of Washington

Melina Cimler

Illumina

Erin Cole

Mayo Clinic

Richard Conroy

National Institutes of Health

Sara Copeland

Health Resources and Services Administration

Cecilia Copperman

Genetic Alliance

Jeff Cossman

United States Diagnostics Standards, Inc.

Claude Desjardins

Johns Hopkins University

Patricia Deverka

Center for Medical Technology Policy

Noel Doheny

Epigenomics, Inc.

Siobhan Dolan

Albert Einstein College of Medicine/Montefiore Medical Center

Maria DeTolve Donoghue

G&M Consulting Services

Subash Duggirala

Centers for Medicare & Medicaid Services

Victor Dzau

Duke University Health System

Suggested Citation:"Appendix D: Registered Attendees." Institute of Medicine. 2013. The Economics of Genomic Medicine: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/18276.
×

Peggy Eastman

Oncology Times

Stephen Eck

Astellas

Matt Elrod

American Physical Therapy Association

Rebecca English

Institute of Medicine

Raith Erickson

Complete Genomics

James Evans

University of North Carolina at Chapel Hill

W. Gregory Feero

National Human Genome Research Institute

J. Michael Fitzmaurice

Agency for Healthcare Research and Quality

Heather Tollerson Flannery

Obesity PPM

Mark Fleury

American Association for Cancer Research

Andrew Freedman

National Cancer Institute

Michelle Gilats

Chicago Center for Jewish Genetics

Geoffrey Ginsburg

Duke University, Institute for Genome Sciences and Policy

Pamela Goetz

National Coalition for Cancer Survivorship

Jeanne Gorman

JMG Associates

Scott Grosse

Centers for Disease Control and Prevention

John Haaga

National Institute on Aging

Evan Hadley

National Institute on Aging

Kelly Haenlein

Genentech

Chris Havasy

Presidential Commission for the Study of Bioethical Issues

Kristy Hawley

American Medical Association

Richard Heimler

Patient

C. J. Hoban

Multiple Myeloma Research Foundation

India Hook-Barnard

National Academy of Sciences

Suggested Citation:"Appendix D: Registered Attendees." Institute of Medicine. 2013. The Economics of Genomic Medicine: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/18276.
×

Gillian Hooker

National Human Genome Research Institute

Kathi Huddleston

Inova Translational Medicine Institute

Jean Jenkins

National Human Genome Research Institute

Janet Jenkins-Showalter

Roche/Genentech

Irene Jillson

Georgetown University

Heajin Jung

Heajin Jung Law Firm

Francis Kalush

U.S. Food and Drug Administration

Jeffrey Kant

University of Pittsburgh Medical Center

Sharon Kardia

University of Michigan

David Kaufman

Genetics and Public Policy Center

Rebecca Kelly

American College of Cardiology

Mohamed Khan

British Columbia Cancer Agency

Muin Khoury

Centers for Disease Control and Prevention

Roger Klein

University of South Florida School of Medicine

John Lauerman

Bloomberg News

Thomas Lehner

National Institute of Mental Health

Jennifer Leib

HealthFutures, LLC

Debra Leonard

Weill Cornell Medical College

Laura Levit

Institute of Medicine

Timothy Ley

Washington University

Jeffrey Lin

Johns Hopkins University Applied Physics Laboratory

Stephen Lincoln

InVitae/Genomic Health

Nicole Littmann

Quorum Consulting

Michele Lloyd-Puryear

Office of Rare Diseases Research, National Institutes of Health

Suggested Citation:"Appendix D: Registered Attendees." Institute of Medicine. 2013. The Economics of Genomic Medicine: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/18276.
×

Jenny Luray

BD

Julie Lynch

U.S. Department of Veterans Affairs

Elizabeth Mansfield

Office of In Vitro Diagnostics and Radiological Health, U.S. Food and Drug Administration

Gary Marchant

Arizona State University

Saralyn Mark

NASA

Priscilla Markwood

Association of Pathology Chairs

Robert McCormack

Veridex, LLC

Scott McGoohan

American Clinical Laboratory Association

Kathryn McLaughlin

Health Resources and Services Administration

Brian McTigue

Partners Healthcare

Kala Menon

Booz Allen Hamilton

Douglas C. Monroe

Kaiser Permanente

Jennifer Moser

U.S. Department of Veterans Affairs

Sharon Murphy

Institute of Medicine

Marc Newman

TeleCenter

Robert Nussbaum

University of California, San Francisco

Kenneth Offit

Memorial Sloan-Kettering Cancer Center

Lydia Pan

Pfizer Inc.

Herbert Pardes

New York-Presbyterian Hospital

Meeta Patnaik

Transtek Clinical Systems, Inc.

Michelle Penny

Eli Lilly and Company

Aidan Power

Pfizer Inc.

Victoria Pratt

Quest Diagnostics

Oscar Puig

Roche

Bruce Quinn

Foley Hoag LLP

Suggested Citation:"Appendix D: Registered Attendees." Institute of Medicine. 2013. The Economics of Genomic Medicine: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/18276.
×

Scott Ramsey

Fred Hutchinson Cancer Research Center

Kate Reed

National Coalition for Health Professional Education in Genetics

John Reppas

Neurotechnology Industry Organization

Steven Richardson

Genomic Health, Inc.

Denise Robinson

bioTheranostics, Inc.

Allen Roses

Duke University

Julie Sakowski

University of California, San Francisco

Carol Sardinha

CAS Healthcare Associates

Mari Savickis

American Medical Association

Derek Scholes

National Human Genome Research Institute

Joan Scott

National Coalition for Health Professional Education in Genetics

Cecili Sessions

Air Force Medical Support Agency

Paul Sheives

Biotechnology Industry Organization

Leah Silva

Genetic Alliance

Tania Simoncelli

Office of Medical Products and Tobacco, U.S. Food and Drug Administration

Naoko Simonds

National Cancer Institute

Mary Lou Smith

Research Advocacy Network

James Sorace

U.S. Department of Health and Human Services

Noemie Sportiche

U.S. Department of Health and Human Services

Tamara Stuchlak

Air Force Medical Support Agency

Jayson Swanson

Genetic Alliance

Katie Johansen Taber

American Medical Association

Sharon Terry

Genetic Alliance

Suggested Citation:"Appendix D: Registered Attendees." Institute of Medicine. 2013. The Economics of Genomic Medicine: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/18276.
×

Tamar Thompson

Kimbell & Associates

Kuo Tong

QUORUM Consulting

David Veenstra

University of Washington

Xiaobin Wang

Johns Hopkins Bloomberg School of Public Health

Michael Watson

American College of Medical Genetics and Genomics

Meredith Weaver

American College of Medical Genetics and Genomics

Lale White

XIFIN, Inc.

Ross White

The Hastings Center

Catherine Wicklund

Northwestern University

Jacqueline Wieneke

U.S. Food and Drug Administration

David Wierz

OCI, LLC

Wendy Wifler

Agendia Inc.

Mara Wilber

Genetic Alliance

Erin Wilhelm

Georgetown University

Marc Williams

Geisinger Health System

Mary Williams

Association for Molecular Pathology

Stephen Williams

Marwood Group

Martin Willie

Universal Genomic Systems, Inc.

Rina Wolf

XIFIN, Inc.

Marta Wosinska

U.S. Food and Drug Administration

Suggested Citation:"Appendix D: Registered Attendees." Institute of Medicine. 2013. The Economics of Genomic Medicine: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/18276.
×

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Suggested Citation:"Appendix D: Registered Attendees." Institute of Medicine. 2013. The Economics of Genomic Medicine: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/18276.
×
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Suggested Citation:"Appendix D: Registered Attendees." Institute of Medicine. 2013. The Economics of Genomic Medicine: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/18276.
×
Page 102
Suggested Citation:"Appendix D: Registered Attendees." Institute of Medicine. 2013. The Economics of Genomic Medicine: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/18276.
×
Page 103
Suggested Citation:"Appendix D: Registered Attendees." Institute of Medicine. 2013. The Economics of Genomic Medicine: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/18276.
×
Page 104
Suggested Citation:"Appendix D: Registered Attendees." Institute of Medicine. 2013. The Economics of Genomic Medicine: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/18276.
×
Page 105
Suggested Citation:"Appendix D: Registered Attendees." Institute of Medicine. 2013. The Economics of Genomic Medicine: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/18276.
×
Page 106
Suggested Citation:"Appendix D: Registered Attendees." Institute of Medicine. 2013. The Economics of Genomic Medicine: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/18276.
×
Page 107
Suggested Citation:"Appendix D: Registered Attendees." Institute of Medicine. 2013. The Economics of Genomic Medicine: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/18276.
×
Page 108
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The sequencing of the human genome and the identification of links between specific genetic variants and diseases have led to tremendous excitement over the potential of genomics to direct patient treatment toward more effective or less harmful interventions. Still, the use of whole genome sequencing challenges the traditional model of medical care where a test is ordered only when there is a clear indication for its use and a path for downstream clinical action is known. This has created a tension between experts who contend that using this information is premature and those who believe that having such information will empower health care providers and patients to make proactive decisions regarding lifestyle and treatment options.

In addition, some stakeholders are concerned that genomic technologies will add costs to the health care system without providing commensurate benefits, and others think that health care costs could be reduced by identifying unnecessary or ineffective treatments. Economic models are frequently used to anticipate the costs and benefits of new health care technologies, policies, and regulations. Economic studies also have been used to examine much more specific issues, such as comparing the outcomes and cost effectiveness of two different drug treatments for the same condition. These kinds of analyses offer more than just predictions of future health care costs. They provide information that is valuable when implementing and using new technologies. Unfortunately, however, these economic assessments are often limited by a lack of data on which to base the examination. This particularly affects health economics, which includes many factors for which current methods are inadequate for assessing, such as personal utility, social utility, and patient preference.

To understand better the health economic issues that may arise in the course of integrating genomic data into health care, the Roundtable on Translating Genomic-Based Research for Health hosted a workshop in Washington, DC, on July 17-18, 2012, that brought together economists, regulators, payers, biomedical researchers, patients, providers, and other stakeholders to discuss the many factors that may influence this implementation. The workshop was one of a series that the roundtable has held on this topic, but it was the first focused specifically on economic issues. The Economics of Genomic Medicine summarizes this workshop.

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