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Suggested Citation:"Appendix G: Committee Biographies." Institute of Medicine. 2015. Dying in America: Improving Quality and Honoring Individual Preferences Near the End of Life. Washington, DC: The National Academies Press. doi: 10.17226/18748.
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Appendix G

Committee Biographies

Philip A. Pizzo, M.D. (Co-Chair), served as dean of the School of Medicine and Carl and Elizabeth Naumann professor at Stanford University School of Medicine from 2001 to 2012. He is currently founding director of the Stanford Distinguished Careers College and David and Susan Heckerman professor of pediatrics and of microbiology and immunology at Stanford. Before joining Stanford, he was physician-in-chief of Children’s Hospital in Boston and chair of the Department of Pediatrics at Harvard Medical School from 1996 to 2001. Dr. Pizzo is recognized for his contributions as a clinical investigator, especially in the treatment of children with cancer and HIV. He devoted much of his medical career to the diagnosis, management, prevention, and treatment of childhood cancers and the infectious complications that occur in children whose immune system is compromised by cancer and AIDS. He and his research team pioneered the development of new treatments for children with HIV infection, lengthening and improving their quality of life. Dr. Pizzo served as head of the National Cancer Institute’s (NCI’s) infectious disease section, chief of its pediatric department, and acting scientific director for its Division of Clinical Sciences between 1973 and 1996. He was elected to the Institute of Medicine (IOM) in 1997 and served on the IOM Council from 2006 to 2012. He has held numerous leadership positions, including chair of the Council of Deans of the Association of American Medical Colleges, and has received numerous honors and awards for his work and contributions. He received his undergraduate degree from Fordham University and his M.D. from the University of Rochester School of Medicine. He completed an internship and residency at Children’s Hospital Medical Center in Boston.

Suggested Citation:"Appendix G: Committee Biographies." Institute of Medicine. 2015. Dying in America: Improving Quality and Honoring Individual Preferences Near the End of Life. Washington, DC: The National Academies Press. doi: 10.17226/18748.
×

David M. Walker (Co-Chair) founded and served as CEO of the Comeback America Initiative (CAI). In this capacity, he led CAI’s efforts to promote fiscal responsibility and sustainability by engaging the public and assisting key policy makers on a nonpartisan basis to help achieve solutions to America’s federal, state, and local fiscal imbalances. Previously, Mr. Walker served as the seventh comptroller general of the United States and was head of the U.S. Government Accountability Office (GAO) for almost 10 years (1998-2008). His previous government positions included serving as a public trustee for Social Security and Medicare and as assistant secretary of labor for pension and welfare benefit programs. He also has more than 20 years of private-sector experience, including approximately 10 years as a partner and global managing director of Human Capital Services for Arthur Andersen, LLP. He holds a B.S. in accounting from Jacksonville University and a senior management in government certificate in public policy from Harvard University’s John F. Kennedy School of Government and is a certified public accountant.

Patricia A. Bomba, M.D., FACP, is vice president and medical director of geriatrics for Excellus BlueCross BlueShield. In this role, she serves as a geriatric consultant on projects and program development affecting seniors. She is a nationally recognized palliative care and end-of-life expert who designs and oversees the implementation of community projects. Prior to her work at Excellus BlueCross BlueShield, she was in private practice in internal medicine and geriatrics in Rochester, New York. Dr. Bomba is New York State’s representative on the National POLST Paradigm Task Force, a multistate collaborative. In addition to serving as a New York State Delegate to the White House Conference on Aging, she served as a member of the Review Committee of the National Quality Forum’s “Framework and Preferred Practices for a Palliative and Hospice Care Quality” project and the American Board of Internal Medicine’s Primary Palliative Care Committee, and chaired the BlueCross and BlueShield Association’s National Medical Management Forum. She chairs New York’s MOLST Statewide Implementation Team, serves as eMOLST program director, and is a member of the Medical Society of the State of New York’s Ethics Committee. Dr. Bomba earned a bachelor’s degree from Immaculata College and graduated from the University of Virginia School of Medicine. She completed her residency in internal medicine at the University of Rochester and is board certified in internal medicine, with added qualifications in geriatric medicine.

Eduardo Bruera, M.D., is clinical medical director and department chair of palliative care and rehabilitation medicine at The University of Texas MD Anderson Cancer Center. He also holds the F.T. McGraw Chair in the Treatment of Cancer at The University of Texas. Dr. Bruera has been

Suggested Citation:"Appendix G: Committee Biographies." Institute of Medicine. 2015. Dying in America: Improving Quality and Honoring Individual Preferences Near the End of Life. Washington, DC: The National Academies Press. doi: 10.17226/18748.
×

interested in the development of palliative care programs internationally, particularly in the developing world, where he helped in the establishment of numerous palliative care programs in the Latin American region, India, and throughout Europe. He served as president of the International Association of Hospice and Palliative Care for a period of 4 years ending in January 2006. He established the first academic fellowship in palliative care at the University of Alberta in Canada and one of the first academic palliative care fellowships in the United States at The University of Texas MD Anderson Cancer Center. He obtained his M.D. from the University of Rosario in Argentina. He trained in medical oncology and relocated to the University of Alberta in Edmonton, Canada, where he directed the clinical and academic palliative care programs until 1999.

Charles J. Fahey, M.S.W., M.Div., is a program officer with the Milbank Memorial Fund and a priest of the Diocese of Syracuse, New York. He previously served as an aging studies professor in the Fordham University Graduate School of Social Services. He was also a member of the National Commission on Quality in Long Term Care. He founded the Third Age Center at Fordham University in 1979. Msgr. Fahey was a charter member of the Federal Council on Aging, serving under Presidents Nixon, Ford, and Carter. He was a spokesperson for the Holy See at the 1982 World Assembly on Aging (Vienna); he served in leadership roles for the 1971, 1981, 1995 White House Conferences on Aging, and served as a delegate in 2005. He has been a board member and president of Catholic Charities USA, the American Association of Homes and Services for the Aging, and the American Society on Aging. He also has been a board member of the Catholic Health Association, the Daughters of Charity National Health System (Ascension), the Sisters of Mercy Health Care System, and Volunteers of America. He is currently a board member of ArchCare, the continuing care community of the Archdiocese of New York, and immediate past chair and board member of the National Council on Aging. He was ordained as a Roman Catholic priest in the Diocese of Syracuse, New York, and earned his master of social work degree from Catholic University in Washington, DC.

Pamela S. Hinds, Ph.D., R.N., FAAN, is director of the Department of Nursing Research and Quality Outcomes and associate director of the Center for Translational Science at Children’s National Health System in Washington, DC. She has expertise in the care of children with cancer and in the development of effective team care to meet the immediate and long-term needs of children and their families. Her research focuses on decision making in pediatric oncology, coping and adolescents, the good parent concept in end-of-life care, and the experience of pediatric oncology nurses.

Suggested Citation:"Appendix G: Committee Biographies." Institute of Medicine. 2015. Dying in America: Improving Quality and Honoring Individual Preferences Near the End of Life. Washington, DC: The National Academies Press. doi: 10.17226/18748.
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She was founding director of the Division of Nursing Research at St. Jude Children’s Research Hospital, where she led the nursing research program for more than two decades. Dr. Hinds currently serves on NCI’s Symptom and Quality of Life Scientific Committee and is co-director of the Patient-Reported Outcomes (PRO) Resource Center for the Children’s Oncology Group. She is a member of the National Institute of Nursing Research’s Ad Hoc Evaluation Advisory Committee for End-of-Life and Palliative Care Science: A Needs Assessment of Federal and Private Research Funding Trends, Project Grants, and National Research Priorities. She also served on the National Quality Forum’s panel on palliative and end-of-life care in America and on the 2003 IOM Committee on Palliative and End-of-Life Care for Children and Their Families. Dr. Hinds received her undergraduate degree magna cum laude from the University of Vermont, Burlington, and her M.S.N. in psychiatric nursing (summa cum laude) and Ph.D. in clinical nursing research from the University of Arizona, Tucson.

Karla F. C. Holloway, Ph.D., M.L.S., M.A., is James B. Duke professor of English at Duke University. She also holds appointments in the Law School, Women’s Studies, and African & African American Studies. She has been an affiliated faculty member with the Duke Institute on Care at the End of Life and the Trent Center for Bioethics and Medical Humanities. Her research and teaching interests focus on African American cultural studies, biocultural studies, gender, ethics, and law. Dr. Holloway serves on the Greenwall Foundation’s Advisory Board in Bioethics and the Princeton University Council on the Study of Women and Gender. She is the author of more than 50 essays and eight books, including Passed On: African-American Mourning Stories (2002) and Private Bodies, Public Texts: Race, Gender and a Cultural Bioethics (2011). She has held fellowships from the Rockefeller Foundation (Bellagio Residency) and the Ford Foundation (DuBois Institute, Harvard University). Dr. Holloway was recently elected to the Hastings Center Fellows Association, a selected group of leading researchers who have made a distinguished contribution to the field of bioethics. She holds an M.L.S. from Duke University School of Law and an M.A. and a Ph.D. (English/linguistics) from Michigan State University.

Naomi Karp, J.D., is a senior policy analyst at the Consumer Financial Protection Bureau’s (CFPB’s) Office for Financial Protection for Older Americans, where she works on a range of issues, including elder financial exploitation, diminished capacity, financial education, retirement, and long-term planning. From 2005 to 2011, Ms. Karp was a senior strategic policy advisor at AARP’s Public Policy Institute. She conducted research, developed policy positions, and supported advocacy efforts regarding elder abuse, guardianship, advance care planning, end-of-life care, probate, vot-

Suggested Citation:"Appendix G: Committee Biographies." Institute of Medicine. 2015. Dying in America: Improving Quality and Honoring Individual Preferences Near the End of Life. Washington, DC: The National Academies Press. doi: 10.17226/18748.
×

ing rights, and other legal rights issues. Her recent studies include protecting investors with diminished capacity, guardianship residential decision making, state implementation of the Physician Orders for Life-Sustaining Treatment (POLST) protocol for advanced illness care, power of attorney abuse, guardianship monitoring practices, and criminal background check screening in home care. Before joining AARP, she served as an associate staff director for the American Bar Association’s Commission on Law and Aging. Ms. Karp has been a member of the Elder Justice Working Group, the Federal Partners Group of the National Council on Aging, the Department of Justice’s Project Advisory Group for Elder Justice Roadmap Project, and the Ethics Committee of Washington Home and Hospices. She completed her undergraduate studies in English at the University of Michigan and holds a J.D. from the Northeastern University School of Law.

Jean S. Kutner, M.D., M.S.P.H., is Gordon Meiklejohn endowed professor of medicine and associate dean for clinical affairs at the University of Colorado School of Medicine and chief medical officer at the University of Colorado Hospital. She was the founding director of the University of Colorado Hospital Palliative Care Consult Service. She is board certified in internal medicine, geriatrics, and hospice and palliative medicine. Dr. Kutner developed the Population-based Palliative Care Research Network (PoPCRN) and is co-chair of the Palliative Care Research Cooperative (PCRC), a palliative care cooperative trials group funded by the National Institute of Nursing Research. These national networks of organizations providing palliative care facilitate the conduct of multisite studies of hospice and palliative care, addressing operational as well as clinical issues. Dr. Kutner’s own research focuses on symptoms, care delivery, and family caregivers in hospice and palliative care. She received the Distinguished Service Award from the American Academy of Hospice and Palliative Medicine in 2010. Dr. Kutner received her M.D. from the University of California, San Francisco (UCSF), and completed residency training in internal medicine at UCSF. She completed a National Research Service Award (NRSA) primary care research fellowship, earning an M.S.P.H. degree with honors and a fellowship in geriatric medicine at the University of Colorado Denver.

Bernard Lo, M.D., is president of The Greenwall Foundation, whose mission is supporting bioethics research and young researchers in bioethics. He had been director of the Greenwall Faculty Scholars Program since 2001. He is professor emeritus of medicine and director emeritus of the Program in Medical Ethics at UCSF. Dr. Lo serves on the Board of Directors of the Association for the Accreditation of Human Research Protection Programs and on the Medical Advisory Panel of Blue Cross/Blue Shield. From 1996 to 2001, he served as a member of the National Bioethics Advisory Com-

Suggested Citation:"Appendix G: Committee Biographies." Institute of Medicine. 2015. Dying in America: Improving Quality and Honoring Individual Preferences Near the End of Life. Washington, DC: The National Academies Press. doi: 10.17226/18748.
×

mittee. From 1997 to 2001, he chaired the expert panel convened by the American College of Physicians to develop clinical, ethical, and policy recommendations regarding care near the end of life. He is a member of the IOM and previously served as chair of the Health Policy Board and as a member of the IOM Council. He chaired an IOM committee on Conflicts of Interest in Medical Research, Education, and Practice. Dr. Lo developed a course on responsible conduct of research taken by 120 UCSF postdoctoral fellows and junior faculty each year, and he is author of Resolving Ethical Dilemmas: A Guide for Clinicians (4th ed., 2010) and of Ethical Issues in Clinical Research (2010). He is a graduate of Stanford University Medical School, did his residency at both the University of California, Los Angeles, and Stanford, and completed a fellowship at Stanford as a Robert Wood Johnson Foundation clinical scholar.

Salimah H. Meghani, Ph.D., M.B.E., R.N., FAAN, is an associate professor in the Department of Biobehavioral Health Sciences and a member of the NewCourtland Center for Transitions and Health at University of Pennsylvania School of Nursing. Her research focuses on understanding sources of disparities in cancer pain and symptom outcomes among underserved and vulnerable populations. Dr. Meghani is chair of the American Pain Society’s Pain Disparities Special Interest Group. She serves on the Editorial Board of Pain Medicine, the official journal of the American Academy of Pain Medicine, and on the Board of Directors of the Foundation for Ethics in Pain Care. Dr. Meghani has served on the Pennsylvania Department of Aging’s statewide Task Force for Improving Quality at the End of Life for Pennsylvanians. She is a fellow of the American Academy of Nursing. She received her undergraduate degree in nursing summa cum laude from the Aga Khan University, Karachi. She holds an M.S.N. from the University of Pennsylvania School of Nursing and a Ph.D./M.B.E. (nursing/bioethics), both summa cum laude, from the University of Pennsylvania, Philadelphia. Her postdoctoral training is in health disparities research.

Diane E. Meier, M.D., is Director of the Center to Advance Palliative Care (CAPC), a national organization devoted to increasing access to quality palliative care in the United States. Under her leadership the number of palliative care programs in U.S. hospitals has more than tripled in the past 10 years. She is also co-director of the Patty and Jay Baker National Palliative Care Center; Vice-Chair for Public Policy and Professor of Geriatrics and Palliative Medicine; Catherine Gaisman Professor of Medical Ethics; and was the founder and Director of the Hertzberg Palliative Care Institute from 1997-2011, all at the Icahn School of Medicine at Mount Sinai in New York City. Dr. Meier is the recipient of the 2008 MacArthur Fellowship and the American Cancer Society’s Medal of Honor for Cancer

Suggested Citation:"Appendix G: Committee Biographies." Institute of Medicine. 2015. Dying in America: Improving Quality and Honoring Individual Preferences Near the End of Life. Washington, DC: The National Academies Press. doi: 10.17226/18748.
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Control in recognition of her leadership of the effort to bring nonhospice palliative care into mainstream medicine. She is a member of the IOM of the National Academy of Sciences. Dr. Meier has published more than 200 original peer review papers and several books. Her most recent book, Meeting the Needs of Older Adults with Serious Illness: Challenges and Opportunities in the Age of Health Reform was published by Springer in 2014. Dr. Meier received her B.A. from Oberlin College and her M.D. from Northwestern University Medical School. She completed her residency and fellowship training at Oregon Health Sciences University in Portland. She has been on the faculty of the Department of Geriatrics and Palliative Medicine and Department of Medicine at Mount Sinai since 1983.

William D. Novelli, M.A., is a professor in the McDonough School of Business at Georgetown University. He teaches in the M.B.A. program and has created and leads the Global Social Enterprise Initiative at the school. He is also co-chair of the Coalition to Transform Advanced Care (C-TAC), a national organization dedicated to reforming advanced illness care by empowering consumers, changing the health care delivery system, improving public policies, and enhancing provider capacity. Earlier, he was CEO of AARP, a membership organization of more than 40 million people aged 50 and older. Prior to that, he was president of the Campaign for Tobacco-Free Kids, whose mandate is to change public policies and the social environment, limit tobacco companies’ marketing and sales practices to children, and serve as a counterforce to the tobacco industry and its special interests. He now serves as chairman of the board. Previously, Mr. Novelli was executive vice president of CARE, the world’s largest private relief and development organization. Earlier, he co-founded and was president of Porter Novelli, now one of the world’s largest public relations agencies. Porter Novelli was founded to apply marketing to social and health issues, and grew into an international marketing/public relations agency with corporate, not-for-profit, and government clients. Mr. Novelli received his B.A. from the University of Pennsylvania and his M.A. from the University of Pennsylvania Annenberg School for Communication.

Stephen G. Pauker, M.D., is professor of medicine and psychiatry at Tufts Medical Center and a faculty member of the Department of Medicine’s Division of Clinical Decision Making, Informatics and Telemedicine at Tufts Medical Center. His research has focused on the application of decision analysis to clinical problems, cost-effectiveness and cost-benefit analyses, and medical informatics. His current interests include health policy and guidelines for cardiac disease, utility acquisition and comparison of health status measurement, expert systems for decision support in cardiovascular disease, inference and support of individual patients’ decisions in genet-

Suggested Citation:"Appendix G: Committee Biographies." Institute of Medicine. 2015. Dying in America: Improving Quality and Honoring Individual Preferences Near the End of Life. Washington, DC: The National Academies Press. doi: 10.17226/18748.
×

ics, neonatal screening programs, and decision analysis software. He is a long-standing member of the medical center’s ethics committee. Dr. Pauker is a member of the IOM, the Association of American Physicians, and the American Society for Clinical Investigation. He is a past president of the Society for Medical Decision Making, now serving as its historian. He is a master of the American College of Physicians and a fellow of the American College of Medical Informatics, the American College of Cardiology, the American Society for Clinical Hypnosis, and the Society for Clinical and Experimental Hypnosis, of which he is immediate past president. He is also president of the American Board of Medical Hypnosis. He received his M.D. from Harvard Medical School and completed his postgraduate training at Boston City Hospital, Massachusetts General Hospital, and Tufts Medical Center. He is board certified in internal medicine, cardiology, and medical hypnosis.

Judith R. Peres, M.S.W., is currently an expert consultant in the areas of long-term care and palliative end-of-life care at Altarum Institute’s Center for Elder Care and Advanced Illness. Her career spans more than four decades in both Medicare and Medicaid health policy, as well as direct clinical work. She maintains a private practice as a clinical social worker serving Medicare beneficiaries. Ms. Peres recently worked for 5 years with the U.S. Department of Health and Human Services (HHS) in the Office of the Assistant Secretary for Planning and Evaluation (ASPE) to develop the Report to Congress on Advance Care Planning. Previously, she was vice president for policy and advocacy of the former Last Acts Partnership and deputy director of the Last Acts National Program Office, funded by the Robert Wood Johnson Foundation to improve care and caring near the end of life. In those roles, she developed major policy pieces speaking to the need to improve end-of-life care in this country. Prior to her appointment at Last Acts, she served as director of health policy for the American Association of Homes and Services for the Aging, specializing in quality, reimbursement, and workforce issues. In addition, she had a distinguished career in Medicare and Medicaid reimbursement and financing policy for HHS. Her clinical practice also included employee assistance program work for the Sheppard Pratt Institute in Baltimore, Maryland, and work as a practicing psychotherapist for Kaiser Permanent, with a specialty in cognitive-behavioral therapy and mind/body health. Ms. Peres is a founding board member of the Social Work Hospice and Palliative Care Network. She holds a master’s degree in social work from the University of Maryland, and received additional training at the Mind/Body Institute in Washington, DC, and in rational emotive behavioral therapy at the Albert Ellis Institute in New York.

Suggested Citation:"Appendix G: Committee Biographies." Institute of Medicine. 2015. Dying in America: Improving Quality and Honoring Individual Preferences Near the End of Life. Washington, DC: The National Academies Press. doi: 10.17226/18748.
×

Leonard D. Schaeffer is currently Judge Robert Maclay Widney chair and professor at the University of Southern California (USC) and a senior advisor to TPG Capital, a private equity firm. Mr. Schaeffer was chairman and CEO of WellPoint from 1992 to 2004 and continued as chairman through 2005. He was CEO of WellPoint’s predecessor company, Blue Cross of California. Previously, he served as president and CEO of Group Health, Inc., executive vice president and chief operating officer of the Student Loan Marketing Association (Sallie Mae), and vice president of Citibank. Mr. Schaeffer has held appointments as administrator of the federal Health Care Financing Administration (now the Centers for Medicare & Medicaid Services); assistant secretary for management and budget of the federal Department of Health, Education, and Welfare; director of the Bureau of the Budget for the State of Illinois; chairman of the Illinois Capital Development Board; and deputy director of the Illinois Department of Mental Health. He was elected to the IOM in 1997 and as a member of the Health Affairs editorial board. He serves on the boards of various companies and organizations, including Amgen Inc.; the Brookings Institution; Harvard Medical School; RAND Corporation; Quintiles Transnational Corporation; USC; the Coalition to Transform Advanced Care; and the USC Schaeffer Center for Health Policy and Economics, which he established in 2009. Mr. Schaeffer is a graduate of Princeton University and was the Regent’s lecturer at the University of California, Berkeley, and a Gilbert fellow at Princeton University.

W. June Simmons, M.S.W., is founding president and CEO of Partners in Care Foundation, formerly the Visiting Nurse Association (VNA) of Los Angeles, a nonprofit foundation that develops and tests health services innovations and works to ensure access to home and community care. In this role, she develops initiatives and proactive programs that meet the mutual needs of patient populations, providers, and health care delivery networks to encourage cost-effective, patient-friendly integration of care from hospital to home and community. Previously, she worked as an associate hospital administrator at Huntington Memorial Hospital, and before that she was founding director of Senior Care Network. Ms. Simmons is just completing a term as a member of the National Advisory Council to the National Institute on Aging. Among other professional memberships and experiences, she has contributed her expertise by serving on the Leadership Council of the National Council on Aging, the Executive Committee and National Board of the American Society on Aging, and the Advisory Board and Mentor Panel of the Practice Change Fellows. She is a founding member of the national Evidence Based Leadership Council and was founding chair of the National Chronic Care Consortium. In addition, Ms. Simmons has served on several local technical committees, panels,

Suggested Citation:"Appendix G: Committee Biographies." Institute of Medicine. 2015. Dying in America: Improving Quality and Honoring Individual Preferences Near the End of Life. Washington, DC: The National Academies Press. doi: 10.17226/18748.
×

and advisory boards, including the L.A. County Long Term Care Strategic Planning Team, the Board of Councilors of the USC School of Social Work (chair), the Federal Hispanic Elders Project, and the USC Roybal Institute. She holds an M.S.W. from USC.

Christian T. Sinclair, M.D., FAAHPM, is assistant professor in the Division of Palliative Medicine at the University of Kansas Medical Center. Previously, he was a national hospice medical director at Gentiva Health Services, where he led physician support, education, and compliance for the North Central region of Gentiva Hospice. He has provided hospice and palliative care in nursing facilities, homes, hospitals, clinics, and standalone hospice units. Dr. Sinclair is serving his second term on the American Academy of Hospice and Palliative Medicine’s Board of Directors and has experience as a palliative medicine fellowship director. He is the editor of the website Pallimed (www.pallimed.org), which discusses important research and media articles related to hospice and palliative care. He is highly active in social media for health care professionals, utilizing Facebook, Twitter, and other platforms to increase awareness of hospice and palliative care. Dr. Sinclair received his M.D. from the University of California, San Diego, and completed internal medicine residency training at Wake Forest University Baptist Medical Center. He completed his fellowship in hospice and palliative medicine at the Hospice and Palliative Care Center in Winston-Salem, North Carolina.

Joan M. Teno, M.D., M.S., is professor of health services, policy, and practice and associate director of the Center for Gerontology and Health Care Research at the Brown Medical School; she is also associate medical director at Home and Hospice Care of Rhode Island. She is a board-certified internist with added qualification in geriatrics and palliative medicine. Dr. Teno’s research has focused on measuring and evaluating interventions designed to improve the quality of medical care for seriously ill and dying patients. She led the effort in the design of the Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatments (SUPPORT) intervention analysis and was lead author of 12 publications resulting from that research effort, which ranged from addressing the role of advance directives to describing the dying experience of seriously ill and older adults. She was also lead investigator for a research effort to create a Toolkit of Instruments to Measure End-of-Life Care (TIME). She is a lead investigator for research examining health care transitions and the use of feeding tubes in persons with advanced cognitive impairment. Dr. Teno is a graduate of Hahnemann Medical University. She completed her internal medicine residency at Rhode Island Hospital in Providence and fellowships in geriatric medicine and health services research in gerontology at Brown University.

Suggested Citation:"Appendix G: Committee Biographies." Institute of Medicine. 2015. Dying in America: Improving Quality and Honoring Individual Preferences Near the End of Life. Washington, DC: The National Academies Press. doi: 10.17226/18748.
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Also from Brown, she received her M.S. in community health, with a specialty in gerontology and chronic disease epidemiology.

Fernando Torres-Gil, Ph.D., is professor of social welfare and public policy at the University of California, Los Angeles (UCLA), adjunct professor of gerontology at USC, and director of the UCLA Center for Policy Research on Aging. He has served as associate dean and acting dean at the UCLA School of Public Affairs, and most recently as chair of the Social Welfare Department. His research focuses on such topics as health and long-term care, disability, entitlement reform, and the politics of aging. Dr. Torres-Gil was appointed to the Federal Council on Aging by President Jimmy Carter in 1978; he later was selected as a White House fellow and served under Joseph Califano, then secretary of the U.S. Department of Health, Education, and Welfare (HEW). He continued as a special assistant to the subsequent secretary of HEW, Patricia Harris. He was appointed (with Senate confirmation) by President Bill Clinton as the first-ever U.S. assistant secretary on aging in HHS. In 2010, he was appointed (with Senate confirmation) by President Barack Obama as vice chair of the National Council on Disability. He has written 6 books and more than 100 publications, including The New Aging: Politics and Change in America (1992). Dr. Torres-Gil earned his A.A. in political science at Hartnell Community College (1968), a B.A. with honors in political science from San Jose State University (1970), and an M.S.W. (1972) and a Ph.D. (1976) in social policy, planning, and research from the Heller Graduate School in Social Policy and Management at Brandeis University.

James A. Tulsky, M.D., is professor of medicine and nursing and chief, Duke Palliative Care at Duke University. His research focuses on clinician-patient communication, quality of life at the end of life, trajectories of patient experience, and the evaluation of interventions to improve the care of patients with serious illness. He has authored more than 150 publications on these topics, including a book titled Mastering Communication with Seriously Ill Patients: Balancing Honesty with Empathy and Hope (2009). He was a Project on Death in America faculty scholar; serves on the Advisory Council for the National Institute of Nursing Research; chairs the Greenwall Foundation Faculty Scholars Program Advisory Committee; and is a founding director of VitalTalk, a nonprofit dedicated to transforming the culture of communication throughout the medical community. He has received multiple awards for his work, including the 2002 Presidential Early Career Award for Scientists and Engineers; the 2006 American Academy on Hospice and Palliative Medicine Award for Research Excellence; and the 2013 George L. Engel Award from the American Academy on Communication in Healthcare for “outstanding research contributing to the theory,

Suggested Citation:"Appendix G: Committee Biographies." Institute of Medicine. 2015. Dying in America: Improving Quality and Honoring Individual Preferences Near the End of Life. Washington, DC: The National Academies Press. doi: 10.17226/18748.
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practice and teaching of effective healthcare communication and related skills.” He is a graduate of the University of Illinois at Chicago School of Medicine, and he completed both his residency in internal medicine and a Robert Wood Johnson Foundation clinical scholar fellowship at UCSF.

Suggested Citation:"Appendix G: Committee Biographies." Institute of Medicine. 2015. Dying in America: Improving Quality and Honoring Individual Preferences Near the End of Life. Washington, DC: The National Academies Press. doi: 10.17226/18748.
×
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Suggested Citation:"Appendix G: Committee Biographies." Institute of Medicine. 2015. Dying in America: Improving Quality and Honoring Individual Preferences Near the End of Life. Washington, DC: The National Academies Press. doi: 10.17226/18748.
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Suggested Citation:"Appendix G: Committee Biographies." Institute of Medicine. 2015. Dying in America: Improving Quality and Honoring Individual Preferences Near the End of Life. Washington, DC: The National Academies Press. doi: 10.17226/18748.
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Suggested Citation:"Appendix G: Committee Biographies." Institute of Medicine. 2015. Dying in America: Improving Quality and Honoring Individual Preferences Near the End of Life. Washington, DC: The National Academies Press. doi: 10.17226/18748.
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Suggested Citation:"Appendix G: Committee Biographies." Institute of Medicine. 2015. Dying in America: Improving Quality and Honoring Individual Preferences Near the End of Life. Washington, DC: The National Academies Press. doi: 10.17226/18748.
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For patients and their loved ones, no care decisions are more profound than those made near the end of life. Unfortunately, the experience of dying in the United States is often characterized by fragmented care, inadequate treatment of distressing symptoms, frequent transitions among care settings, and enormous care responsibilities for families. According to this report, the current health care system of rendering more intensive services than are necessary and desired by patients, and the lack of coordination among programs increases risks to patients and creates avoidable burdens on them and their families. Dying in America is a study of the current state of health care for persons of all ages who are nearing the end of life.

Death is not a strictly medical event. Ideally, health care for those nearing the end of life harmonizes with social, psychological, and spiritual support. All people with advanced illnesses who may be approaching the end of life are entitled to access to high-quality, compassionate, evidence-based care, consistent with their wishes.

Dying in America evaluates strategies to integrate care into a person- and family-centered, team-based framework, and makes recommendations to create a system that coordinates care and supports and respects the choices of patients and their families. The findings and recommendations of this report will address the needs of patients and their families and assist policy makers, clinicians and their educational and credentialing bodies, leaders of health care delivery and financing organizations, researchers, public and private funders, religious and community leaders, advocates of better care, journalists, and the public to provide the best care possible for people nearing the end of life.

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