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Ensuring Patient Access to Affordable Cancer Drugs: Workshop Summary (2014)

Chapter: Appendix: Workshop Statement of Task and Agenda

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Suggested Citation:"Appendix: Workshop Statement of Task and Agenda." Institute of Medicine. 2014. Ensuring Patient Access to Affordable Cancer Drugs: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/18956.
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Appendix

Workshop Statement of Task and Agenda

STATEMENT OF TASK

An ad hoc committee will plan and host a 1.5-day public workshop that will feature panel discussions and invited presentations. Workshop participants will examine patient access to cancer therapies, with emphasis on cancer drug pricing, inflation in the cost of cancer drugs, differences among practice settings, and insurance benefit design. Participants will be invited to discuss topics that may include

  • Structural factors influencing drug pricing, such as patents (regulated monopolies), the role of health insurance, and information asymmetries between patients and providers;
  • Policy factors, such as cancer drug reimbursement and cost-sharing policies (e.g., co-pays and coinsurance), Medicare reimbursement policies and the legislative limitations on those policies, and state laws prohibiting restrictions on oncology drug prescribing;
  • Cancer drug distribution channels and access programs, such as the 340B program and co-pay assistance programs; and
  • Changing economics of oncology practice and the historic reliance on office-based drug prescribing for revenues.

The committee will develop the agenda for the workshop sessions, select and invite speakers and discussants, and moderate the discussions. An

Suggested Citation:"Appendix: Workshop Statement of Task and Agenda." Institute of Medicine. 2014. Ensuring Patient Access to Affordable Cancer Drugs: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/18956.
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individually authored workshop summary will be prepared by a designated rapporteur based on the information gathered and the discussions held during the workshop in accordance with institutional policy and procedures.

AGENDA

June 9, 2014

7:30 am Registration
8:00 am Welcome from the Institute of Medicine’s National Cancer Policy Forum
Michael Caligiuri, The Ohio State University Comprehensive Cancer Center
Chair, National Cancer Policy Forum
Overview of the Workshop
Peter B. Bach, Memorial Sloan Kettering Cancer Center
Planning Committee Chair
8:15 am Session 1: Trends in Oncology Care
Moderator: Barry Fortner, ION Solutions
Escalating drug prices
  • Kalipso Chalkidou, NICE International (via phone)
Consolidation of practices into hospital partnerships/changing landscape of oncology practice
  • Bruce Gould, Community Oncology Alliance
The financial toxicity of cancer treatment: Can patients cope with costs?
  • Yousuf Zafar, Duke University Medical School, Duke Cancer Center
Drug shortages
  • Peyton Howell, AmerisourceBergen
Suggested Citation:"Appendix: Workshop Statement of Task and Agenda." Institute of Medicine. 2014. Ensuring Patient Access to Affordable Cancer Drugs: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/18956.
×
CMS reimbursement policies in oncology
  • Marc Hartstein, Centers for Medicare & Medicaid Services (CMS)
Panel Discussion
10:45 am Break
11:00 am Keynote Address: Pharma pricing practices and the case for market self-correction
  • Alex Bastian, GfK Custom Research, LLC
11:30 am Lunch Break
12:15 pm Session 2: Paradoxes of Cancer Drug Reimbursement
Moderator: Jeffery Ward, Swedish Cancer Institute
Brand name drugs vs. generics
  • Jeffrey Peppercorn, Duke University Medical School
Oral vs. IV drugs
  • Lee Newcomer, UnitedHealth Group
340B vs. everyone else
  • Rena Conti, University of Chicago
Private practice vs. hospital-based care
  • Eric Hammelman, Avalere Health
Variable co-insurance and premiums
  • Michael Kolodziej, Aetna
Panel Discussion
2:45 pm Break
Suggested Citation:"Appendix: Workshop Statement of Task and Agenda." Institute of Medicine. 2014. Ensuring Patient Access to Affordable Cancer Drugs: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/18956.
×
3:00 pm Session 3: Value and Policy Options
Moderator: Scott Ramsey, Fred Hutchinson Cancer Center
The patient perspective
  • Shelley Fuld Nasso, National Coalition for Cancer Survivorship
Value-based insurance design
  • Mark Fendrick, University of Michigan Center for Value Based Insurance Design
Bundling of payments
  • Thomas Feeley, The University of Texas MD Anderson Cancer Center
Value-based drug pricing
  • Patricia Danzon, Wharton School, University of Pennsylvania
Lessons from the Health Evidence Review Commission, Oregon Health Authority
  • Kevin Olson, Providence Cancer Center
Panel Discussion
5:30 pm Adjourn
Suggested Citation:"Appendix: Workshop Statement of Task and Agenda." Institute of Medicine. 2014. Ensuring Patient Access to Affordable Cancer Drugs: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/18956.
×
Page 51
Suggested Citation:"Appendix: Workshop Statement of Task and Agenda." Institute of Medicine. 2014. Ensuring Patient Access to Affordable Cancer Drugs: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/18956.
×
Page 52
Suggested Citation:"Appendix: Workshop Statement of Task and Agenda." Institute of Medicine. 2014. Ensuring Patient Access to Affordable Cancer Drugs: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/18956.
×
Page 53
Suggested Citation:"Appendix: Workshop Statement of Task and Agenda." Institute of Medicine. 2014. Ensuring Patient Access to Affordable Cancer Drugs: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/18956.
×
Page 54
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In recent years, patients' out-of-pocket costs for cancer care have been rising rapidly. These costs include health insurance deductibles, coinsurance, and copayments for covered services, as well as services that are not covered by insurance. Many cancer patients are especially vulnerable financially because their illness and/or treatment impedes their ability to work, with some patients losing employment altogether. Even with insurance, cancer patients often experience financial hardships, such as going into debt, depleting all assets to pay for cancer treatment, and personal bankruptcy. Although many elements contribute to the cost of cancer care, one important component is the cost of new cancer drugs, which has been escalating rapidly in recent years. To explore the issue of cancer drug costs and patient access to affordable, appropriate drug therapies, the Institute of Medicine's National Cancer Policy Forum convened a workshop on ensuring patient access to affordable cancer drugs in June 2014. Affordability was considered from both individual and societal perspectives. The workshop featured discussion panels as well as invited presentations from clinicians, researchers, representatives from the health insurance and pharmaceutical industries, and patient advocates. Ensuring Patient Access to Affordable Cancer Drugs summarizes the presentation and discussion of the workshop.

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