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Suggested Citation:"Appendix E: Registered Attendees." National Academies of Sciences, Engineering, and Medicine. 2018. Understanding Disparities in Access to Genomic Medicine: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25277.
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Appendix E

Registered Attendees

Joanne Adelberg

American College of Medical Genetics and Genomics

Brian Ahmedani

Henry Ford Health System

Seun Ajiboy

American Association for Dental Research

Amanda Ampey

National Institutes of Health

Bryan Ampey

National Institutes of Health

Katherine Anderson

Denver Health

Kechi Anyadike

Regeneron Pharmaceuticals

Richardae Araojo

U.S. Food and Drug Administration

Katrina Armstrong

Massachusetts General Hospital

Connie Arnold

Louisiana State University Health Sciences Center, Shreveport

Mala Bansal

National Human Genome Research Institute

Whitney Barfield

National Institutes of Health

Rhea Bhatt

U.S. Government Accountability Office

Barbara Biesecker

RTI International

Katherine Blizinsky

All of Us Research Program, National Institutes of Health

Suggested Citation:"Appendix E: Registered Attendees." National Academies of Sciences, Engineering, and Medicine. 2018. Understanding Disparities in Access to Genomic Medicine: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25277.
×

Joann Bodurtha

McKusick-Nathans Institute of Genetic Medicine

Vence Bonham

National Human Genome Research Institute

Natasha Bonhomme

Genetic Alliance

Nicole Boschi

American Association for Cancer Research

Khaled Bouri

U.S. Food and Drug Administration

Cheryl Boyce

National Heart, Lung, and Blood Institute

Otis Brawley

American Cancer Society

Joel Brill

Predictive Health

Tara Burke

Association for Molecular Pathology

Charlisse Caga-anan

National Cancer Institute

Shawneequa Callier

George Washington University

Ann Cashion

National Institute of Nursing Research

Rita Charon

Columbia University

Bernie Chowdhury

Genomic Observatory

Helena Chung

AstraZeneca

Toby Citrin

University of Michigan School of Public Health

Jevin Clark

National Institutes of Health

Bernice Coleman

Cedars-Sinai Medical Center

Deborah Crandall

Crandall and Associates

Gwen Darien

Patient Advocate Foundation

Rina Das

National Institute on Minority Health and Health Disparities

Mollie Davidson

American Society for Clinical Pathology

Ulyana Desiderio

American Society of Hematology

Nadine Dogbe

National Institutes of Health

Shawn Dolley

Cloudera

Katherine Donohue

Northwestern University

Suggested Citation:"Appendix E: Registered Attendees." National Academies of Sciences, Engineering, and Medicine. 2018. Understanding Disparities in Access to Genomic Medicine: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25277.
×

Ute Dugan

Bristol-Myers Squibb

Leanne Dumeny

University of Florida

Carla Easter

National Human Genome Research Institute

Emily Edelman

The Jackson Laboratory

Julie Eggert

Clemson University

Rodney English

Consultant

W. Gregory Feero

Journal of the American Medical Association

Andrea Ferris

LUNGevity Foundation

Marika Frank

Johns Hopkins Medical Institutions

Joyce Frieden

MedPage Today

Sue Friedman

Facing Our Risk of Cancer Empowered

Malia Fullerton

University of Washington

John Gardenier

Independent

Turkan Gardenier

Pragmatica Corporation

Darrell Gaskin

Johns Hopkins Bloomberg School of Public Health

Elizabeth Gillanders

National Cancer Institute

Geoffrey Ginsburg

Duke University

Deanna Giraldi

American Society for Clinical Pathology

Katrina Goddard

Kaiser Permanente Northwest

Peter Goelz

Venn Strategies

Melissa Goldstein

George Washington University

Sara Gomez

Georgetown University

Krisi Graves

Georgetown University

Steven Grossman

National Alliance for Hispanic Health

Jill Hagenkord

Color Genomics

Michael Hahn

National Human Genome Research Institute

Suggested Citation:"Appendix E: Registered Attendees." National Academies of Sciences, Engineering, and Medicine. 2018. Understanding Disparities in Access to Genomic Medicine: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25277.
×

Nasreen Haque

New York Medical College

Emily Harris

National Cancer Institute

Candace Henley

The Blue Hat Foundation

Heather Hollen

Cancer Support Community

Brittany Hollister

National Human Genome Research Institute

Kent Hoskins

University of Illinois at Chicago

Alisa Hughley

DC Health Benefit Exchange Authority

Alejandra Hurtado de Mendoza

Georgetown University

Debbie Indyk

Icahn School of Medicine at Mount Sinai

James Ingram

Amgen

Pat Jolley

Patient Advocate Foundation

Nancy Jones

National Institute on Minority Health and Health Disparities

Cristina Kapustij

National Human Genome Research Institute

Mary Kelleher

Department of Veterans Affairs

Muin Khoury

Centers for Disease Control and Prevention

Paul Kimmel

National Institute of Diabetes and Digestive and Kidney Diseases

Brenda Kostelecky

American Association for Cancer Research

Karen Kwok

Public health consultant

Latrice Landry

Harvard Medical School; Partners HealthCare

Sandra Lee

Stanford University

Myrisha Lewis

Howard University School of Law

Erin Linnenbringer

Washington University School of Medicine

David Litwack

U.S. Food and Drug Administration

Yi Liu

National Institutes of Health

Megan Lyon

American College of Medical Genetics and Genomics

Suggested Citation:"Appendix E: Registered Attendees." National Academies of Sciences, Engineering, and Medicine. 2018. Understanding Disparities in Access to Genomic Medicine: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25277.
×

Preeti Malani

University of Michigan

Teri Manolio

National Human Genome Research Institute

David Marshak

Foundation Medicine

Angela Mazul

Washington University

Michelle McClure

American College of Medical Genetics and Genomics

Sean McConnell

American Medical Association

Martin Mendoza

U.S. Food and Drug Administration

Laurence Meyer

Veterans Health Administration

Nancy Miller

National Cancer Institute

Jen Mills

Foundation Medicine

Yesenia Miranda

Optum

John Moeschler

Geisel School of Medicine at Dartmouth College

Lonna Mollison

University of North Carolina at Chapel Hill

Maya Moore

National Institute of Human Genome Research

Sumitra Muralidhar

Department of Veterans Affairs

Harold Woody Neighbors

Michigan State University College of Human Medicine, Division of Public Health

Jeanne O’Brien

Shady Grove Fertility

Polly Painter

Yale University School of Medicine

Rena Pasick

University of California, San Francisco

Michelle Penny

Biogen

Sydney Philpott

Institute for Public Health, Washington University School of Medicine

Fabienne Placide

National Science Foundation

Stephanie Pope

Mary’s Center

Alice Popejoy

Stanford University

Victoria Pratt

Association for Molecular Pathology

Ronald Przygodzki

Department of Veterans Affairs

Suggested Citation:"Appendix E: Registered Attendees." National Academies of Sciences, Engineering, and Medicine. 2018. Understanding Disparities in Access to Genomic Medicine: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25277.
×

Bruce Quinn

Bruce Quinn Associates LLC

Andrew Racine

Rodale

Gillian Rai

Sublime, LLC

Elda Railey

Research Advocacy Network

Nishadi Rajapakse

National Institutes of Health

Erica Ramos

National Society of Genetic Counselors

Megan Raymond

University of Pittsburgh School of Medicine

Kait Reinert

Vibrent Health

Catharine Riley

Health Resources and Services Administration

Megan Roberts

National Cancer Institute

Loren Robinson

Pennsylvania Department of Health

Laura Rodriguez

National Human Genome Research Institute

Lindsey Rubin

University of South Carolina

Maya Sabatello

Columbia University

Meredith Safford

Johns Hopkins University

Sanjyot Sangodkar

American College of Medical Genetics and Genomics

Ulisses Santamaria

National Institute of Neurological Disorders and Stroke

Debi Sarkar

Health Resources and Services Administration

Sheri Schully

National Institutes of Health

Marc Schwartz

Georgetown Lombardi Comprehensive Cancer Center

Joan Scott

Health Resources and Services Administration

Jill Shuger

Health Resources and Services Administration

Eric Sid

National Institutes of Health

Niki Sidiropoulos

University of Vermont

Artemis Simopoulos

Center for Genetics Nutrition and Health

Suggested Citation:"Appendix E: Registered Attendees." National Academies of Sciences, Engineering, and Medicine. 2018. Understanding Disparities in Access to Genomic Medicine: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25277.
×

Wynton Sims

National Human Genome Research Institute

Todd Skaar

Indiana University

Amy Swanson

Northwestern University

Jacquelyn Taylor

New York University

Sharon Terry

Genetic Alliance

Wendy Toler

Independent

John Travis

Science (American Association for the Advancement of Science)

Lindsey Trischler

CRD Associates

Reed Tuckson

Tuckson Health Connections, LLC

Joyce Tung

23andMe

Sean Tunis

Center for Medical Technology Policy

Arti Varanasi

Advancing Synergy

Ashley Vargas

National Institutes of Health

Allison Viola

Kaiser Permanente

Mike Watson

American College of Medical Genetics and Genomics

Karen Weck

College of American Pathologists

Carol Weil

National Cancer Institute

Cara Weismann

National Human Genome Research Institute

Catherine Wicklund

National Society of Genetic Counselors

Janet Williams

American Academy of Nursing

Lori Williamson Dean

University of Arkansas for Medical Sciences

Kim Witherspoon

National Cancer Institute

Cari Young

National Institutes of Health

Kristen Young

Northwestern University

Lih Young

Claudia H. Zamora

Zamora Consulting Group

Suggested Citation:"Appendix E: Registered Attendees." National Academies of Sciences, Engineering, and Medicine. 2018. Understanding Disparities in Access to Genomic Medicine: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25277.
×

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Suggested Citation:"Appendix E: Registered Attendees." National Academies of Sciences, Engineering, and Medicine. 2018. Understanding Disparities in Access to Genomic Medicine: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25277.
×
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Suggested Citation:"Appendix E: Registered Attendees." National Academies of Sciences, Engineering, and Medicine. 2018. Understanding Disparities in Access to Genomic Medicine: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25277.
×
Page 100
Suggested Citation:"Appendix E: Registered Attendees." National Academies of Sciences, Engineering, and Medicine. 2018. Understanding Disparities in Access to Genomic Medicine: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25277.
×
Page 101
Suggested Citation:"Appendix E: Registered Attendees." National Academies of Sciences, Engineering, and Medicine. 2018. Understanding Disparities in Access to Genomic Medicine: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25277.
×
Page 102
Suggested Citation:"Appendix E: Registered Attendees." National Academies of Sciences, Engineering, and Medicine. 2018. Understanding Disparities in Access to Genomic Medicine: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25277.
×
Page 103
Suggested Citation:"Appendix E: Registered Attendees." National Academies of Sciences, Engineering, and Medicine. 2018. Understanding Disparities in Access to Genomic Medicine: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25277.
×
Page 104
Suggested Citation:"Appendix E: Registered Attendees." National Academies of Sciences, Engineering, and Medicine. 2018. Understanding Disparities in Access to Genomic Medicine: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25277.
×
Page 105
Suggested Citation:"Appendix E: Registered Attendees." National Academies of Sciences, Engineering, and Medicine. 2018. Understanding Disparities in Access to Genomic Medicine: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25277.
×
Page 106
Understanding Disparities in Access to Genomic Medicine: Proceedings of a Workshop Get This Book
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Genomic medicine is defined as the routine use of genomic information about an individual as part of his or her clinical care as well as the health outcomes and policy implications of that clinical use. It is one approach that has the potential to improve the quality of health care by allowing practitioners to tailor prevention, diagnostic, and treatment strategies to individual patients. In recent years, research breakthroughs, technological advances, and the decreasing cost of DNA sequencing have led to the wider adoption of genomic medicine. However, as with the introduction of new technologies into health care, there are concerns that genetic and genomic testing and services will not reach all segments of the population both now and in the near future, and there remains a gap in knowledge regarding potential health care disparities in genomic medicine and precision health approaches.

On June 27, 2018, the National Academies of Sciences, Engineering, and Medicine hosted a public workshop to examine the gaps in knowledge related to access to genomic medicine and to discuss health care disparities and possible approaches to overcoming the disparate use of genomic medicine among populations. Workshop participants discussed research on access to genetics and genomics services in medically underserved areas, model programs of care for diverse patient populations, and current challenges and possible best practices for alleviating health care disparities as they relate to genomics-based approaches. This publication summarizes the presentations and discussions from the workshop.

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