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Suggested Citation:"Appendix A: Statement of Task." National Academies of Sciences, Engineering, and Medicine. 2019. Integrating Health Care and Social Services for People with Serious Illness: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25350.
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Page 53
Suggested Citation:"Appendix A: Statement of Task." National Academies of Sciences, Engineering, and Medicine. 2019. Integrating Health Care and Social Services for People with Serious Illness: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25350.
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Page 54

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Appendix A Statement of Task An ad hoc committee will plan and host a one-day public workshop to examine strategies, approaches, and key challenges to implementation of quality measures for community-based care programs for serious illness. The workshop will feature invited presentations and panel discussions on topics that may include • An overview of the role of patient experience and shared decision making in defining quality across a range of evolving care settings, including community-based organizations and home-based care; • Model programs such as those developed by BlueCross BlueShield of Massachusetts and the Veterans Health Administration, as well as international efforts such as the Harvard Global Equity Initiative on Pain Control; • The roles of key stakeholders driving implementation of quality measures, including: private and public payers,; accreditation organizations, and National Quality Forum’s National Quality Partners; • Potential tools and mechanisms for implementation, such as public report cards (i.e., Centers for Medicare & Medicaid Services, state-based) and quality improvement efforts undertaken by care programs for serious illness; • Challenges and opportunities for using potential data sources, including: electronic health records, claims, registries, patient-reported data, and crowdsourcing; and • Ways to develop a feasible approach and timeline for implementing quality measures. PREPUBLICATION COPY: UNCORRECTED PROOFS 63

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A growing body of research indicates that social determinants of health have a significant impact on health care utilization and outcomes. Researchers and policymakers in the United States have spent decades exploring and discussing approaches to integrating health care and social services. While no nation has a truly integrated system, many other industrialized nations invest more heavily in social services than the United States, and are more effective in integrating these services with health care. Integrating health care and social services, such as accessible housing, meals and nutrition services, transportation, and caregiver training, is particularly important for those facing serious illness who typically encounter multiple chronic conditions, pain and other symptoms, functional dependency, frailty, and significant family caregiver needs.

In an effort to better understand and facilitate discussions about the challenges and opportunities related to integrating health care and social services for people with serious illness, the National Academies of Sciences, Engineering, and Medicine held a full-day public workshop on July 19, 2018 in Washington, DC. The workshop featured a broad range of experts and stakeholders including researchers, policy analysts, patient and family caregiving advocates, and representatives of federal agencies. This publication summarizes the presentations and discussions from the workshop.

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