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Suggested Citation:"Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2019. Improving Access to and Equity of Care for People with Serious Illness: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25530.
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Appendix B

Workshop Agenda

THURSDAY, APRIL 4, 2019

8:00 am Registration and Breakfast
8:30 am Welcome from the Roundtable on Quality Care for People with Serious Illness
Leonard D. Schaeffer, University of Southern California (Chair)
James Tulsky, M.D., Harvard Medical School, Brigham and Women’s Hospital, and Dana-Farber Cancer Institute (Vice Chair)
Overview of the Workshop
Darci Graves, M.P.P., M.A., Special Assistant to the Director, Centers for Medicare & Medicaid Services
Peggy Maguire, J.D., President, Cambia Health Foundation
Workshop Planning Committee Co-Chairs
Suggested Citation:"Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2019. Improving Access to and Equity of Care for People with Serious Illness: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25530.
×
8:45 am Session 1
Overview of the Landscape for Improving Access to and Equity of Care for People with Serious Illness
Moderator: Peggy Maguire, J.D., President, Cambia Health Foundation
  • Bridgette Hempstead, President and Founder, Cierra Sisters
  • Marshall Chin, M.D., M.P.H., Richard Parrillo Family Professor of Healthcare Ethics, Department of Medicine, The University of Chicago Medicine
  • Kimberly Sherell Johnson, M.D., Associate Professor of Medicine, Senior Fellow in the Center for the Study of Aging and Human Development, Duke University School of Medicine
  • Edward Machtinger, M.D., Professor of Medicine, Director, Center to Advance Trauma-informed Health Care and Director, Women’s HIV Program, University of California, San Francisco
Panel Discussion/Audience Q&A
10:15 am Break
10:30 am Session 2
Improving Access to Care and Achieving Health Equity for People with Serious Illness: Organizational and Community Perspectives
Moderator: Nadine Barrett, Ph.D., M.A., M.S., Assistant Professor, Department of Community and Family Medicine, Duke School of Medicine
  • Sister Anne Francioni, RN, M.A., SSND, Executive Director, Whole Kids Outreach
Suggested Citation:"Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2019. Improving Access to and Equity of Care for People with Serious Illness: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25530.
×
  • Adán Merecias, Community Health Worker, Patient Navigator Program Manager, Familias en Acción
  • Sandy Chen Stokes, RN, M.S.N., Founder, Chinese American Coalition for Compassionate Care
Panel Discussion/Audience Q&A
12:00 pm Lunch
1:00 pm Session 3
Improving Access to Care and Achieving Health Equity for People with Serious Illness: Patients/Families and Clinicians
Moderator: Darci Graves, M.P.P., M.A., Special Assistant to the Director, Centers for Medicare & Medicaid Services
  • Video: Jay: Privilege and Discrimination in One Man’s Life
  • Alice Huan-mei Chen, M.D., M.P.H., Deputy Director and Chief Medical Officer, San Francisco Health Network, Professor of Clinical Medicine, Department of Medicine, University of California, San Francisco
  • Justin J. Sanders, M.D., M.Sc., Faculty, Serious Illness Care Program, Ariadne Labs, Attending Physician, Psychosocial Oncology and Palliative Care Department, Dana-Farber Cancer Institute and Brigham and Women’s Hospital, Instructor in Medicine, Harvard Medical School
  • Liz Margolies, LCSW, Founder and Executive Director, National LGBT Cancer Network
Panel Discussion/Audience Q&A
2:30 pm Break
Suggested Citation:"Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2019. Improving Access to and Equity of Care for People with Serious Illness: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25530.
×
2:45 pm Session 4
A Policy Agenda to Improve Access to Care and Achieve Health Equity for People with Serious Illness
Moderator: Sarah Downer, J.D., Associate Director, Whole Person Care and Clinical Instructor on Law, Health Law and Policy Clinic, Harvard Law School
  • Diane Rowland, Sc.D., Executive Vice President, Henry J. Kaiser Family Foundation
  • Andy Slavitt, M.B.A., Founder and General Partner, Town Hall Ventures, Former Acting Administrator, Centers for Medicare & Medicaid Services
  • Lori Bishop, M.H.A., B.S.N., RN, CHPN, Vice President of Palliative and Advanced Care, National Hospice and Palliative Care Organization
Panel Discussion/Audience Q&A
4:00 pm Session 5
Next Steps for Implementing Solutions to Improve Access to Care and Achieve Health Equity for People with Serious Illness
Moderator: Shonta Chambers, M.S.W., Executive Vice President, Health Equity Initiatives and Community Engagement, Patient Advocate Foundation
  • Daniel Dawes, J.D., Director of the Satcher Health Leadership Institute, Morehouse School of Medicine, Principal Investigator and Co-Founder, Health Equity Leadership & Exchange Network
Suggested Citation:"Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2019. Improving Access to and Equity of Care for People with Serious Illness: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25530.
×
  • Steven Clauser, Ph.D., M.P.A., Director, Healthcare Delivery and Disparities Research Program, Patient-Centered Outcomes Research Institute
  • Nadine Barrett, Ph.D., M.A., M.S., Assistant Professor, Department of Family and Community Health, Duke University School of Medicine
  • Peggy Maguire, J.D., President, Cambia Health Foundation
Panel Discussion/Audience Q&A
5:25 pm Closing Remarks
5:30 pm Adjourn
Suggested Citation:"Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2019. Improving Access to and Equity of Care for People with Serious Illness: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25530.
×

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Suggested Citation:"Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2019. Improving Access to and Equity of Care for People with Serious Illness: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25530.
×
Page 81
Suggested Citation:"Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2019. Improving Access to and Equity of Care for People with Serious Illness: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25530.
×
Page 82
Suggested Citation:"Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2019. Improving Access to and Equity of Care for People with Serious Illness: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25530.
×
Page 83
Suggested Citation:"Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2019. Improving Access to and Equity of Care for People with Serious Illness: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25530.
×
Page 84
Suggested Citation:"Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2019. Improving Access to and Equity of Care for People with Serious Illness: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25530.
×
Page 85
Suggested Citation:"Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2019. Improving Access to and Equity of Care for People with Serious Illness: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25530.
×
Page 86
Improving Access to and Equity of Care for People with Serious Illness: Proceedings of a Workshop Get This Book
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The Centers for Disease Control and Prevention estimates that approximately 40 million people in the United States suffer from a serious illness that limits their daily activities. These illnesses include heart and lung disease, cancer, diabetes, and Alzheimer’s disease and other forms of dementia. However, significant disparities exist across different communities in the quality and access to care for these illnesses. Factors such as race, ethnicity, gender, geography, socioeconomic status, or insurance status exacerbate these complex disparities. It is critical to reevaluate the current models of care delivery across diverse communities and vulnerable populations.

On April 4, 2019, The National Academies of Sciences, Engineering, and Medicine convened a workshop to investigate barriers, policy initiatives, and opportunities for improving access to and equity of care for people living with a serious illness. Discussions explored the current climate of health care and opportunities to improve access to care using organizational, community, patient and family, and clinician perspectives. This publication summarizes the discussions and presentations from the workshop.

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