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Suggested Citation:"Appendix B." Institute of Medicine. 1997. Approaching Death: Improving Care at the End of Life. Washington, DC: The National Academies Press. doi: 10.17226/5801.
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B Institute of Medicine Committee on Care at the End of Life Public Meetings

PUBLIC HEARING

National Academy of Sciences

Washington, D.C.

APRIL 29, 1996

Agenda

9:00–9:05

WELCOME

 

Dr. Christine Cassel

9:05–9:50

PANEL 1

American Academy of Pediatrics

Allen Fleischman, M.D., F.A.A.P.

Senior Vice President

New York Academy of Medicine

Alzheimer's Association

Ladislov Volicer, M.D., Ph.D.

Professor of Pharmacology and Psychiatry, Assistant Professor of Medicine

Boston University School of Medicine

American Cancer Society

Mary Simmonds, M.D.

Chair, ACS Advisory Group on Cancer Pain Relief

Agency for HIV/AIDS

Melvin Wilson

Agency Administrator

Suggested Citation:"Appendix B." Institute of Medicine. 1997. Approaching Death: Improving Care at the End of Life. Washington, DC: The National Academies Press. doi: 10.17226/5801.
×

9:50–10:30

PANEL 2

American Alliance of Cancer Pain Initiatives

Kim Calder

MPS Board of Directors

New York State Cancer and AIDS Pain Initiative

American Geriatrics Society

Joseph Fins, M.D.

Vice Chair, Ethics Committee

Gerontological Society of America

Marshall Kapp, J.D., M.P.H.

Director, Office of Geriatric Medicine and Gerontology

Wright State University School of Medicine

10:45–11:45

PANEL 3

American Board of Internal Medicine

Linda Blank

Vice President for Clinical Competence and Communications

American Medical Association

Thomas Reardon, M.D.

Vice Chair, Board of Trustees

American Academy of Family Physicians

Bruce Bagley, M.D.

Member, Board of Directors

American Nurses Association

Colleen Scanlon, R.N., J.D.

Director for Ethics and Human Rights

Academy of Hospice Physicians

Ira R. Byock, M.D.

President-Elect

Suggested Citation:"Appendix B." Institute of Medicine. 1997. Approaching Death: Improving Care at the End of Life. Washington, DC: The National Academies Press. doi: 10.17226/5801.
×

1:00–1:45

PANEL 4

American Academy of Neurology

Kenneth M. Viste, Jr., M.D.

President

National Association of Black Social Workers

Iris Carlton-LaNey, Ph.D.

Associate Professor

University of North Carolina Chapel Hill School of Social Work

American Pain Society

Mitchell B. Max, M.D.

Pain Research Clinic

National Institute of Dental Research/National Institutes of Health

1:45–2:30

PANEL 5

American Hospital Association

Jonathan T. Lord, M.D.

Senior Advisor for Clinical Affairs

National Hospice Organization

John J. Mahoney

President

American Association of Health Plans

Michael Felder, D.O., M.A.

Chair, Ethics Committee, Community Health Plan

American Association of Homes and Services for the Aging

Stephen Proctor

Chair-Elect

2:30–3:15

PANEL 6

VITAS Healthcare Corporation of Florida

Richard B. Fife, M.D.

Vice President for Bioethics and Pastoral Care

Melanie Merriman,. M.D.

Director of Outcome Management and Research

Suggested Citation:"Appendix B." Institute of Medicine. 1997. Approaching Death: Improving Care at the End of Life. Washington, DC: The National Academies Press. doi: 10.17226/5801.
×

Hospice of the Blue Grass

Gretchen Brown, M.S.W.

President and CEO

Washington Home and Hospice

Elizabeth Cobbs, M.D., F.A.C.P.

Medical Director

3:15–4:00

PANEL 7

Association of Academic Health Centers

Roger J. Bulger, M.D.

President

American Bar Association Commission on Legal Problems of the Elderly

Charles Sabatino, J.D.

Assistant Director

Additional Groups Submitting Written Testimony*

American Association of Retired Persons

American Board of Hospice and Palliative Medicine

American Hospice Foundation

American Medical Directors Association

Choice in Dying

Death with Dignity

The Hospice Nurses Association

International Institute for the Study of Death

The Islamic Medical Association

Kaiser Foundation Health Plan, Inc.

Memorial Sloan-Kettering Cancer Center

*  

100 Groups were invited to submit statements.

Suggested Citation:"Appendix B." Institute of Medicine. 1997. Approaching Death: Improving Care at the End of Life. Washington, DC: The National Academies Press. doi: 10.17226/5801.
×

PUBLIC MEETING

Arnold and Mabel Beckman Center

National Academy of Sciences

Irvine, California

November 23, 1996

Agenda

9:00

WELCOME

Dr. Christine Cassel

9:15–10:45

Supportive Care of the Dying: A Coalition for Compassionate Care

Alicia Super, R.N., B.S.N., O.C.N.

Project Coordinator

Kaiser Permanente of Southern California

Richard Della Penna, M.D.

Regional Elder Care Coordinator

10:45–Noon

Marin (California) Home Care

Patricia Murphy, R.N., M.A.

Director

Hospital Home Health Care Agency of California

Claire Tehan, M.A.

Vice President

Visiting Nurse Associates and Hospice of Northern California

Brad Stuart, M.D.

Medical Director

California Department of Justice

William Marcus, J.D.

Deputy Attorney General

Liaison Counsel, California Board of Pharmacy

Suggested Citation:"Appendix B." Institute of Medicine. 1997. Approaching Death: Improving Care at the End of Life. Washington, DC: The National Academies Press. doi: 10.17226/5801.
×

City of Hope National Medical Center

Betty Ferrell, Ph.D., F.A.A.N.

Associate Research Scientist

HealthCare Partners Medical Group

Lynne Emma, R.N., M.P.H.

Vice President, Population and Disease Management

2:30–5:00

Washington State Senate Health and Long-Term Care Committee

Donald Sloma

Senior Analyst and Staff Coordinator

Center for Ethics in Health Care, Oregon Health Sciences University

Susan Tolle, M.D., F.A.C.P.

Director

UCLA School of Medicine

Neil Wenger, M.D.

Chair, UCLA Medical Center Ethics Committee

Center for Biomedical Ethics, University of Minnesota

Steven Miles, M.D.

Associate Professor

General discussion

5:00

ADJOURN

Suggested Citation:"Appendix B." Institute of Medicine. 1997. Approaching Death: Improving Care at the End of Life. Washington, DC: The National Academies Press. doi: 10.17226/5801.
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Page 321
Suggested Citation:"Appendix B." Institute of Medicine. 1997. Approaching Death: Improving Care at the End of Life. Washington, DC: The National Academies Press. doi: 10.17226/5801.
×
Page 322
Suggested Citation:"Appendix B." Institute of Medicine. 1997. Approaching Death: Improving Care at the End of Life. Washington, DC: The National Academies Press. doi: 10.17226/5801.
×
Page 323
Suggested Citation:"Appendix B." Institute of Medicine. 1997. Approaching Death: Improving Care at the End of Life. Washington, DC: The National Academies Press. doi: 10.17226/5801.
×
Page 324
Suggested Citation:"Appendix B." Institute of Medicine. 1997. Approaching Death: Improving Care at the End of Life. Washington, DC: The National Academies Press. doi: 10.17226/5801.
×
Page 325
Suggested Citation:"Appendix B." Institute of Medicine. 1997. Approaching Death: Improving Care at the End of Life. Washington, DC: The National Academies Press. doi: 10.17226/5801.
×
Page 326
Next: Appendix C »
Approaching Death: Improving Care at the End of Life Get This Book
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When the end of life makes its inevitable appearance, people should be able to expect reliable, humane, and effective caregiving. Yet too many dying people suffer unnecessarily. While an "overtreated" dying is feared, untreated pain or emotional abandonment are equally frightening.

Approaching Death reflects a wide-ranging effort to understand what we know about care at the end of life, what we have yet to learn, and what we know but do not adequately apply. It seeks to build understanding of what constitutes good care for the dying and offers recommendations to decisionmakers that address specific barriers to achieving good care.

This volume offers a profile of when, where, and how Americans die. It examines the dimensions of caring at the end of life:

  • Determining diagnosis and prognosis and communicating these to patient and family.
  • Establishing clinical and personal goals.
  • Matching physical, psychological, spiritual, and practical care strategies to the patient's values and circumstances. Approaching Death considers the dying experience in hospitals, nursing homes, and other settings and the role of interdisciplinary teams and managed care. It offers perspectives on quality measurement and improvement, the role of practice guidelines, cost concerns, and legal issues such as assisted suicide. The book proposes how health professionals can become better prepared to care well for those who are dying and to understand that these are not patients for whom "nothing can be done."
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