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The Unequal Burden of Cancer: An Assessment of NIH Research and Programs for Ethnic Minorities and the Medically Underserved (1999)

Chapter: Appendix E: National Institutes of Health and National Cancer Institute Background Material

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Suggested Citation:"Appendix E: National Institutes of Health and National Cancer Institute Background Material." Institute of Medicine. 1999. The Unequal Burden of Cancer: An Assessment of NIH Research and Programs for Ethnic Minorities and the Medically Underserved. Washington, DC: The National Academies Press. doi: 10.17226/6377.
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E

National Institutes of Health and National Cancer Institute Background Material

In response to the Institute of Medicine Committee on Cancer Research Among Minorities and the Medically Underserved, the National Institutes of Health (NIH) and the National Cancer Institute (NCI) provide the following background material related to cancer survivorship:

  • Description of the Office of Cancer Survivorship, which was established in August 1996. The document indicates that there are currently 126 grants that deal with special populations and the medically underserved, 80 percent of which are R01 investigator-initiated grants. Since 1994, all NCI grants are evaluated in the review process to ensure the inclusion of women and minorities. (Indeed, the PHS 398 form used for NIH grant applications has sections asking investigators to demonstrate inclusion of women and minorities.) However, no data on the actual breakdown of women and minorities targeted in funded grants are available. For instance, virtually all breast cancer research will target women. However, it is not clear to what degree such research targets minority and medically underserved women.
  • Activities with advocacy and voluntary organizations.
  • A current program announcement entitled Cancer Survivorship Studies in Established Epidemiologic Cohorts (PA-98-027).
  • Agenda for a conference entitled Research Issues in Cancer Survivorship, sponsored by the Office of Cancer Survivorship, Division of Cancer Control and Populations Sciences, on March 9–10, 1998.
Suggested Citation:"Appendix E: National Institutes of Health and National Cancer Institute Background Material." Institute of Medicine. 1999. The Unequal Burden of Cancer: An Assessment of NIH Research and Programs for Ethnic Minorities and the Medically Underserved. Washington, DC: The National Academies Press. doi: 10.17226/6377.
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  • Background information from the NCI World Wide Web page on Creating the Director's Consumer Liaison Group, established in 1997. It is not clear how specifically these groups include targeted minority groups.
  • A list of 850 scientific journal publications resulting from awards or programs of NIH relative to cancer among minority and medically underserved population since 1985.
Suggested Citation:"Appendix E: National Institutes of Health and National Cancer Institute Background Material." Institute of Medicine. 1999. The Unequal Burden of Cancer: An Assessment of NIH Research and Programs for Ethnic Minorities and the Medically Underserved. Washington, DC: The National Academies Press. doi: 10.17226/6377.
×
Page 293
Suggested Citation:"Appendix E: National Institutes of Health and National Cancer Institute Background Material." Institute of Medicine. 1999. The Unequal Burden of Cancer: An Assessment of NIH Research and Programs for Ethnic Minorities and the Medically Underserved. Washington, DC: The National Academies Press. doi: 10.17226/6377.
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Page 294
Next: Appendix F: Information Provided by the National Center for Health Statistics on the Potential Reductions in Mortality from Cancer, by Ethnic Group »
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We know more about cancer prevention, detection, and treatment than ever before--yet not all segments of the U.S. population have benefited to the fullest extent possible from these advances. Some ethnic minorities experience more cancer than the majority population, and poor people--no matter what their ethnicity--often lack access to adequate cancer care. This book provides an authoritative view of cancer as it is experienced by ethnic minorities and the medically underserved. It offers conclusions and recommendations in these areas:

  • Defining and understanding special populations, and improving the collection of cancer-related data.
  • Setting appropriate priorities for and increasing the effectiveness of specific National Institutes of Health (NIH) research programs, to ensure that special populations are represented in clinical trials.
  • Disseminating research results to health professionals serving these populations, with sensitivity to the issues of cancer survivorship.

The book provides background data on the nation's struggle against cancer, activities and expenditures of the NIH, and other relevant topics.

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