Informing the Future Critical Issues in Health (2000) / Chapter Skim
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Large-Scale Biology
Large-Scale Biology
Pages 69-76
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From page 69... ...
At the same time, it is important that we, as a society, protect the privacy of individuals and of vulnerable groups, and the confidentiality of information that patients share with health care providers. Protecting Data Privacy ir' Health Services Research, 2000 Mapping the human genome, the cell's complete set of genetic instructions that guides each person's basic life processes, will revolutionize disease diagnosis arid treatment.
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From page 70... ...
Public trust and confidence In clinical research has eroded, complicahug the challenges of holding clinical trials and finding sufficient subjects to participate In them. The Damework of regulatory controls and ethical guidelines covering coccal research must be updated to more adequately protect patient interests and to rebuild public trust.
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From page 71... ...
Addressing the Crisis in Clinical Research Translating the flood of new discovenes in basic research into effective treatment requires a robust clinical research system. Clinical research is the funnel through which basic research must travel on its way into clinical application.
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From page 72... ...
It does so by serving as a forlorn for leaders from the academic health community, federal agencies, private organizations that sponsor clinical research, health plans and insurance companies, corporate purchasers of health care, foundations, arid patient advocacy groups to explore approaches for resolving both acute arid long-term issues affecting clinical research. Specific topics addressed thus far include health and professional education and training and public confidence and participation.
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From page 73... ...
Each institution that conducts research has its own IRB (or group of TRBs) that reviews protocols proposing clinical research and determines whether the risks to human subjects are reasonable in the light of expected benefits to the subjects and the knowledge to be gained.
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From page 74... ...
Sponsored by the National Multiple Sclerosis Society, the report offers a strategic vision for research and training, suggesting ways to engage scientific fields that may not previously have focused on the disease. Also of increasing importance in the design and conduct of basic, applied, and clinical research is understanding the biological basis of sex and gender differences and their determinants.
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From page 75... ...
The lOM plays an important role in providing objective scientific advice about the safety and efficacy of vaccines. Our Immunization Safety Review Project meets quarterly to assess emerging information and to recommend appropriate responses including research regarding putative adverse events involving vaccines.
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From page 76... ...
(Potential Radiation Exposure in Military Operations: Protecting the Soldier Before, During, and After3 VA Formulary: VA should examine drugs newly approved by FDA in a timely manner. Drugs providing significant improvement in treatment options should be given priority review and serious consideration for the National Formulary.
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