Childhood Cancer Survivorship Improving Care and Quality of Life (2003) / Chapter Skim
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6. Assuring Appropriate Educational Support Services
6. Assuring Appropriate Educational Support Services
Pages 128-139
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From page 128... ...
In addition, two background papers commissioned by the Board were helpful in preparing this chapter, "Cognitive Late Effects of Childhood Cancer and Treatment: Issues for Survivors," by F Daniel Armstrong, and "Policy Recommendations to Address the Employment and Insurance Concerns of Cancer Survivors," by Barbara Hoffman (www.
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From page 129... ...
are enrolled in federally sponsored special education programs (Department of Education, 2001~.1 Roughly 30 to 40 percent of 1The percentage of school-age children enrolled in federally sponsored special education programs (11.2 percent) is higher than the earlier mentioned estimate of children and adolescents with a chronic health condition or impairment and a disability related to schooling (5.5 percent)
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From page 130... ...
School districts nationally vary tremendously in their guidelines for providing such services, the amount of weekly teaching provided (from a few hours per week to daily contacts) , and in the preparation and familiarity of teachers in these settings to meet complex educational needs during limited teaching contacts.
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From page 131... ...
of 1975 and IDEA amendments of 1997 support states to ensure the provision of free appropriate public education of children with disabilities (age 3 to 21~; 2Neuropsychological evaluations were provided by nearly two-thirds of institutions. 3Much of this section is excerpted directly from the chapter in Principle and Practices of Pediatric Oncology, "Educational Issues for Children with Cancer" (Chapter 50)
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From page 132... ...
Any services needed by children in school, such as special education or classroom accommodations, have to be identified in a formal written plan according to specifications in the IDEA or in section 504 of the Rehabilitation Act. The written, signed plan protects affected children's rights and
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From page 133... ...
1400 et seq.) establishes a federal grant program to assist states in providing children with disabilities with a "free, appropriate public education which includes special education and related services, to meet the unique needs of all disabled individuals between the age of three and 21" (34 Code of Federal Regulation PCFR]
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From page 134... ...
Education must be provided in the least restrictive setting and where possible, school districts are required to provide children with disabilities an education in the regular classroom setting. To receive special education services under provisions of the IDEA, children must meet criteria for classification under at least one of several categories: mental retardation, hear.
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From page 135... ...
, continuing and adult education, adult services, independent living, or community participation. The coordinated set of activities must be based on the individual student's needs, taking into account the student's preferences and interests; and must include needed activities in the areas of instruction, community experiences, the development of employment and other post-school adult living objectives and, if appropriate, acquisition of daily living skills and functional vocational evaluation" (34 CFR, Sec.
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From page 136... ...
Cancer centers may also provide parent training on the basics of special education services, how IEPs should be tailored to the specific needs of their child, how to appeal limitations on educational services offered to a child, and how to get help from organizations such as Candlelighters and local legal aid societies when services are designated but not provided, or provided in an ineffective manner. In some areas, ombudsman programs are available to provide an advocate to attend the IEP session with a parent to help negotiate for needed services.
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From page 137... ...
for childhood cancer survivors who are provided with standardized access to special education services. Intervention studies are underway to assess programs designed to improve neurocognitive outcomes among survivors of childhood cancer (Armstrong, 2002~.
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From page 138... ...
Many cancer centers have school programs to ease the return of childhood cancer survivors to school following their treatment. Ideally, planning for school reentry begins at diagnosis and involves a school liaison to ensure that educational environments are supportive and can accommodate any late effects.
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From page 139... ...
2002. Survivorship resources for post-treatment cancer survivors.
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