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Challenges and Opportunities in Using Residual Newborn Screening Samples for Translational Research Workshop Summary (2010) / Chapter Skim
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Appendix A: Workshop Agenda
Pages 57-60

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From page 57...
... • How can we make these samples available without compromising the main function of the newborn screening program?
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From page 58...
... Anne Comeau, Deputy Director New England Newborn Screening program; Associate professor, Department of pediatrics, Uniersity of Massachusetts Medical School Opportunities for broader research 10:50–11:10 A.M. Sharon Kardia, professor and Chair of Epidemiology; Director, public Health Genetics program; Director, Life Science and Society program; Co-Director, Center for Genomics and public Health School of public Health, Uniersity of Michigan Implications of dataset linkage 11:10–11:30 A.M.
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From page 59...
... born screening programs Alan Fleischman, Medical Director, March of Dimes Foundation Balancing issues from the patient/parent 1:40–2:00 P.M. perspective Sharon Terry, president and CEO, Genetic Alliance Informed consent and stewardship 2:00–2:20 P.M.
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From page 60...
... Wylie burke, Roundtable Chair and professor and Chair of the Department of bioethics and Humanities, Uniersity of Washington
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Key Terms

  • screening samples
  • york state
  • wylie burke
  • roundtable chair
  • michele caggana

  • alissa johnson
  • alan fleischman
  • johnson policy
  • born screening
  • screening program

  • screening programs
  • wright clayton
  • legal issues
  • england newborn
  • dried blood

  • storing newborn
  • anne comeau
  • ellen wright
  • discussion examining
  • nbs samples

  • medical director
  • kelly edwards
  • research versus
  • policy consulting
  • testing section

  • translational research
  • main function
  • kenneth pass
  • health school
  • blood spots


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