Monitoring HIV Care in the United States A Strategy for Generating National Estimates of HIV Care and Coverage (2012) / Chapter Skim
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4 Conclusions and Recommendations
4 Conclusions and Recommendations
Pages 135-144
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From page 135... ...
Given that there currently is no single data collec tion system that can be used to establish a baseline for health care cov erage and utilization for a nationally representative sample of people with HIV in the United States, the Office of National AIDS Policy should use multiple existing data sources to establish this baseline prior to 2014. These data sources might include 135
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Given the challenges discussed in the committee's first report of collecting and combining data from disparate systems to generate an overall picture of the care experiences of people with HIV in the United States (IOM, 2012, Chapters 4-6) , development of a unique mechanism for capturing relevant information would simplify the collection and analysis of data and provide more detailed and representative data than currently exist to monitor the impact of the ACA on health care coverage and utilization for people with HIV.
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From page 137... ...
by providing detailed and nationally representative information about the care experiences and needs of adults 18 years with diagnosed HIV who are in care. MMP collects data on dimensions of care that correspond to major components of health care reform, such as source of health coverage and the distribution of different sources of coverage; access to HIV care and unmet need for supportive services (including for people with different types of coverage)
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. Because MMP's current population of inference is limited to individuals ages 18 and older, however, it cannot be used to monitor health care coverage and utilization of adolescents 13 to 18 years of age.
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The Office of National AIDS Policy and the De partment of Health and Human Services should use the Medical Moni toring Project, once improved, to obtain nationally representative data on health care coverage and utilization for people with HIV. HIV surveillance needs shift over time.
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In addition to data from the Medical Monitoring Project, the Office of National AIDS Policy and the Department of Health and Human Services should use data from Medicaid, Medicare, the Ryan White HIV/AIDS Program, and private insurers to monitor the impact of the Patient Protection and Affordable Care Act on health care coverage and utilization at the state and program level. Increased access to health care through expanded coverage under the ACA will facilitate but not ensure linkage to, retention in, and provision of quality clinical HIV care for people living with HIV.
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on access to and quality of HIV care in the United States over time, facilitating identification of any difficulties encountered, and informing future planning with respect to the health care workforce and the potential redistribution of resources to improve efficiency and quality of care and reduce health disparities. Such data will be of interest and use to policy makers, health care coverage programs and plans, and organizations of health care professionals, among others.
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From page 142... ...
These resources include staffing and funding to support collection and analysis of data from MMP, Medicaid, Medicare, and the Ryan White HIV/AIDS Program to monitor trends in access to health insurance and health care for people with HIV; collection and analysis of data from MMP, Medicaid, Medicare, the Ryan White HIV/AIDS Program, and other data sources to estimate core indicators and assess care quality for people with HIV; and the production and dissemination of a report at least once every 2 years describing the care of people with HIV based on analysis of data from these sources. REFERENCES Altice, F
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2012. Monitoring HIV Care in the United States: Indicators and Data Systems.
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