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Digital Data Improvement Priorities for Continuous Learning in Health and Health Care Workshop Summary (2013) / Chapter Skim
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6 Strategies Going Forward
Pages 41-46

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From page 41...
... . Resource mapping.  Discussion during the final session yielded several suggestions from individual attendees on how to work toward getting a better understanding of digital health data sources.
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From page 42...
... Core elements.  In order to make progress on the goal of improving data quality, the development of more standardized digital health data definitions and representations was highlighted for attention. In particular, several participants emphasized the need for development of a set of core minimum standardized data elements to provide timely essential information on cost, quality, and health status and trends, available across institutions and geographic areas and designed to harmonize funder data set requirements.
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From page 43...
... A related concept of triangulating several data sources to improve predictive accuracy was also mentioned by several speakers as an important advantage to having large amounts of diverse data. PUBLIC AND PATIENT ENGAGEMENT: RAMP UP INVOLVEMENT Many participants stressed that successfully engaging stakeholders is crucial for fully realizing the learning and improvement potential of digital health data.
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From page 44...
... Along similar lines, the idea of studying the benefits and risks of patient-requested portable identifiers was suggested as a way to make progress on the issue of identity resolution and data linkage, and a first step toward developing a strategy for their development and application. BUILDING A CLINICAL DATA LEARNING UTILITY Throughout workshop presentations and discussions, some speakers and participants stressed the need to harness the potential for learning from the digital health data utility.
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From page 45...
... Domains.  Some participants pointed to a need to identify key domains for which governance structures are necessary to accelerate the evolution of the digital data utility, and begin to catalyze their engagement. Access and ownership.  Suggested approaches to ensuring participation included enabling broader access to data sources and ensuring that the flow of information is multidirectional.
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From page 46...
... 2012. Best care at lower cost: The path to continuously learning health care in America.
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Key Terms

  • digital health
  • data utility
  • digital data
  • clinical data
  • individual participants

  • data learning
  • data elements
  • learning health
  • health status
  • participants stressed

  • patients care
  • learning utility
  • final session
  • patient health
  • diverse data

  • health benefits
  • data quality
  • health literacy
  • data source
  • standardized data

  • minimum data
  • improving data
  • data definitions
  • increase health
  • automating data

  • data donors
  • potential data
  • data integration
  • funder data
  • current data


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