Partnering with Patients to Drive Shared Decisions, Better Value, and Care Improvement Workshop Proceedings (2014) / Chapter Skim
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Appendix A: Workshop Agenda
Appendix A: Workshop Agenda
Pages 175-182
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From page 175... ...
3. Consider strategies and policies for activities to be undertaken at multiple levels to advance patients, in partnership with providers, as leaders and drivers of care delivery improvement through the protected use of clinical data, informed, shared decisions, and value improvement.
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From page 176... ...
• What competencies are required of patients, families, and clinicians to support shared decision making? Moderator: Lyn Paget, Health Policy Partners Presentations: • The key elements of information, connectedness, and continuity for patient engagement in health care decisions Gary Langer, Langer Research Associates • Planned patienthood: setting the expectation for shared decision making Sherrie Kaplan, University of California, Irvine • Clinician competencies for effective shared decision making Eric Holmboe, American Board of Internal Medicine Audience participation and open discussion 176
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From page 177... ...
8:15 am Knowledge generation and care improvement As many patients support sharing their protected clinical and outcomes data for research that improves care and outcomes for all patients, identify potential pathways and strategies for improved sharing, and use of insights gained from the care experience. Session questions: • What is the state of play with respect to using patient data for research and care improvement?
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From page 178... ...
• What is the pathway toward increased use of protected clinical and outcomes data for care improvement? Moderator: Sue Trinidad, University of Washington Presentations: • Ethical challenges of a changing research paradigm Nancy Kass, Johns Hopkins Berman Institute of Bioethics • Meaningful choice in a learning health care system: The relationship between privacy and data sharing for research Alice Leiter, Center for Democracy & Technology • The infrastructure needed for patient-engaged translational research Ken Mandl, Boston Children's Hospital • Patient engagement and data sharing for improvement, innovation and discovery Peter Margolis and Jill Plevinsky, Cincinnati Children's Hospital Medical Center Audience participation and open discussion 9:30 am Knowledge generation and care improvement (cont.)
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From page 179... ...
Key considerations: o Kinds of information needed, i.e., cost, quality o Presentation of information o Accessibility o Ease of use o Resulting behavior change Moderator: John Santa, Consumer Reports Presentations: • What patients perceive as valuable -- and how to effectively communicate information on cost and quality Judy Hibbard, University of Oregon Shoshanna Sofaer, Baruch College, CUNY • The road to increased patient engagement through public reporting of performance information Barbra Rabson, Massachusetts Health Quality Partners • Raising awareness on quality and waste Daniel Wolfson, ABIM Foundation • Seeking the citizen voice Marge Ginsburg, Center for Healthcare Decisions Audience participation and open discussion 1:00 pm Lunch keynote How American health care killed my father David Goldhill, Game Show Network 2:00 pm Driving the demand Explore cross-cutting strategies to advance patients, in partnership with providers, as leaders and drivers of care delivery improvement through informed, shared decision making, the authorized use of clinical data for research, and value improvement. Moderator: Susan Reinhard, AARP Presentations: • Behavioral economics and value generation Kevin Volpp, Philadelphia VA Medical Center • Communicating "value" to the public Tresa Undem, PerryUndem 179
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From page 180... ...
• Social media as a tool for change Kelly Young, Rheumatoid Arthritis Warrior Audience participation and open discussion 3:00 pm Building a pathway forward Reflecting on the presentations and discussions over the course of the 2-day workshop, participants will engage in an open dialogue to define the pathway forward for building patient demand for a continuously learning health system. Moderator: Christine Bechtel, National Partnership for Women & Families Panelists: Planning committee members • Mark Gorman, Patient advocate • Art Levin, Center for Medical Consumers • Susan Sheridan, Patient-Centered Outcomes Research Institute • Terry Adirim, Health Resources and Services Administration Audience participation and open discussion 4:15 pm Summary and next steps Thanks from the Chair Christine Bechtel, National Partnership for Women & Families Comments and thanks from the IOM Michael McGinnis, Institute of Medicine 4:30 pm Adjourn 180
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Reinhard, RN, PhD, AARP Craig Robbins, MD, MPH, Kaiser Permanente John Santa, MD, MPH, Consumers Union Susan Sheridan, MBA, MIM, Patient-Centered Outcomes Research Institute Susan Brown Trinidad, MA, University of Washington Staff officer: Claudia Grossmann, PhD cgrossmann@nas.edu (202)
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