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Appendix B: Survey of Users of National Health Care Statistics
Pages 111-124

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From page 111...
... In order to address its charge to evaluate plans for a National Health Care Survey, early in the study the panel decided to obtain the views of a wide group of users, policy makers, and other interested parties. Although the panel is comprised of experienced users of health care data and persons highly knowledgeable of the health care delivery system, it wanted to learn from users about the kind of health care data they use; how they use the data; their experience in using data from the current NCHS provider surveys (the National Hospital Discharge Survey, the National Ambulatory Medical Care Survey, the National Nursing Home Survey, and the National Master Facility Inventory)
From page 112...
... Nevertheless, attempts were made to ensure that all of the areas in the interview guide were covered even in this type of discussion. The areas in which questions were asked included the following: Uses of data from the NCHS Problems with uses of the data Current data needs Health care and health status issues of most concern for the next few years Knowledge of NCHS plans for an integrated National Health Care Survey Views on various features of the survey, such as: Coverage of the survey Content of the survey
From page 113...
... The following is a list of agencies that were represented in interviews: Agency for Health Care Policy and Research, PHS Alcohol, Drug Abuse, and Mental Health Administration, PHS Office of the Assistant Secretary for Planning and Evaluation, DHHS Health Resources and Services Administration, PHS Social Security Administration, DHHS Health Care Financing Administration, DHHS National Institute for Occupational Safety and Health, CDC, PHS National Institute of Diabetes and Digestive and Kidney Diseases, NIH, PHS National Institute on Aging, NIH, PHS Staff, House Subcommittee on Health and Environment State health agencies in Connecticut, New York, Pennsylvania, North Carolina, South Carolina, Iowa, Michigan, Utah, Wisconsin, Maine In addition, several individual data users from the private sector were interviewed. FINDINGS The survey of users of health care data was not a scientific sample and the results cannot be expressed statistically.
From page 114...
... The following list is illustrative of the problems surfaced for each of the provider surveys. National Hospital Discharge Survey .
From page 115...
... · The survey is conducted at too infrequent intervals. National Nursing Home Survey The survey does not sample persons.
From page 116...
... National Master Facility Inventory APPENDIX B The National Master Facility Inventory serves as the sampling, frame for the provider surveys. The overriding comment on the part of the users was that the coverage of the inventory was incomplete.
From page 117...
... Coverage, The respondents to the survey of users suggested 37 different types of providers not now being surveyed by NCHS that should be considered for inclusion in the National Health Care Survey: Adult day care centers Alcohol and drug abuse centers Board and care homes Chiropractors Chronic disease hospitals Emergency clinics Endoscopy units Foster care Group and residential care facilities HMOs Home care facilities Homes for the aged Hospices Hospital outpatient services Managed care facilities
From page 118...
... The primary interest of most of the users surveyed was in data on individuals in order to be able to answer questions about episodes of illness, costs of care over specific periods of time, the use of multiple providers, transition from one type of facility to another, access to health care, etc. Several users were interested in data on providers in order to get basic information on the supply of health resources, including characteristics of providers, staffing patterns of providers, number of new nursing home beds, etc.
From page 119...
... Following a cohort of persons seen by a particular type of provider to assess outcome or to determine what additional care they received from the entire range of providers over a period of time. Each of these approaches implies obtaining information from respondents about the health care they received over a period of time and then obtaining more specific information from their providers.
From page 120...
... On the subject of linkage with other data sets, most of the respondents wanted to see linkages not just with other NCHS databases, but with social security records, HCFA databases, and several databases in the private sector. It was recognized that, in order to link the databases, identif~ers will be needed.
From page 121...
... yes National Master Facility Inventory or Inventory of Long-Term Care Places National Hospital Discharge Survey National Ambulatory Medical Care Survey National Nursing Home Survey No IF YES, ASK WHICH SURVEYS.
From page 122...
... 12) Have you had projects for which these surveys should be uniquely suited but cannot be used because of problems of design or lack of relevant data elements or sample size or other problems?
From page 123...
... Have you been aware of NCHS plans for an integrated National Health Care Survey ? Yes IF NO, BRIEFLY DESCRIBE no The new survey might include information covering a number of topic areas: Health care facilities Health care services provided Health manpower Recipients of health care Outcomes of health care The context within which the care is provided 16)
From page 124...
... In the area of health care surveys, the unit of analysis may be facility (hospital, nursing home, doctor's office) , event (admission, discharge, visit, particular services)


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