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Coordination and Resource Considerations
Pages 83-92

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From page 83...
... as a whole The panel strongly believes that these broader issues must be addressed in the context of this report because the successful implementation of an integrated and effective National Health Care Data System will to a large extent depend on their resolution. ADVISORY STRUCTURE FOR THE NATIONAL HEALTH CARE DATA SYSTEM NCHS, by legislative mandate, is the lead health statistics agency in the federal government.
From page 84...
... In fact, until the current efforts to develop a national health care survey, no new major survey had been devel
From page 85...
... Detailed specifications on the scope and content of an integrated National Health Care Data System that is responsive to the changing inflation needs will require concerted planning efforts, resources, and expert guidance and oversight. Recommendation 5-1: The panel recommends that a continuing external oversight group of health care professionals be established to monitor and advise NCHS and the Department of Health and Human Services on the overall directions and scope and content of the National Health Care Data System, in the context of the agenda set forth by the panel in its proposed strategy for implementation.
From page 86...
... Recommendation 5-2: The panel recommends that an external technical committee of relevant experts be established during the planning and implementation phase to help plan and review the research needed to complete the proposed design; to identify the priorities for feasibility and research projects; and to monitor the progress made by NCHS in completing the research agenda and implementing the recommended design for a National Health Care Data System on schedule. The technical committee could be part of the functions of the recommended oversight group for the National Health Care Data System or a separate working group functioning independently.
From page 87...
... Similar concerns have been expressed by others about the need for improved data on health care policy and the consequent need for coordinating and steering groups to detains priorities for development of data collection systems (see Citro and Hanushek, 1991, for a discussion on this subject)
From page 88...
... At the very time that major health policy issues are being increasingly debated and policy and program managers and researchers in government and in the private sector are seeking better information for their purposes, the data appear to be becoming less pertinent to their needs. As a result, the users are turning to the stewards of administrative data such as the Health Care Financing Administration and the newly created Agency for Health Care Policy and Research for primary national data collection for which NCHS has the mandate and should have the capacity to provide.
From page 89...
... Recommendation 5-4: The panel recommends that the department ensure that sufficient resources for maintaining capability for analysis and dissemination of the data collected be included in the resources allocated for implementation of the National Health Care Data System. RESOURCE REQUIREMENTS Moving from event-based statistics to comprehensive person-based statistics, which the panel believes is absolutely essential for the provision of adequate health care data, cannot be accomplished without a substantial infusion of new resources.
From page 90...
... The panel estimates that, in 1991 dollars, these data collection contract costs would be in the range of $74-77 million, even with a modest rate of inflation of 3-4 percent per year. The National Health Care Data System when fully implemented will include not only a largely expanded information base on providers and visits linked at the person level to the National Health Interview Survey, but also longitudinal components of the household and institutional populations linked to the National Health Interview Survey and the National Nursing iThe surveys included are the National Hospital Discharge Survey, the National Ambulatory Care Survey, the National Home Health and Hospice Care Survey, the National Health Provider Inventory (which will be conducted every three years; the last one was conducted in 1991)
From page 91...
... Recommendation 5-5: The panel recommends that adequate funds for operating the National Health Care Data System, estimated to be no less than $25-30 million per year, be included in the appropriated budget of the National Center for Health Statistics. In conclusion, the panel believes that the blueprint for action that it recommends will contribute toward a significantly improved and efficient data collection system that will go far toward meeting the data needs for monitoring and evaluating the quality, access to, effectiveness and outcomes, and costs and expenditures for health care in the United States into the next century.


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