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5 Case Studies in Changing Social Norms
Pages 49-58

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From page 49...
... Janet Turan, associate professor of public health, University of Alabama at Birmingham, presented her research on HIV-related stigma in different settings, globally and in the United States. Kay Cofrancesco, who was scheduled to speak on the stigma of lung cancer, was unable to attend.
From page 50...
... Since 2000, Austin reported, the Epilepsy Foundation has conducted yearly multifaceted campaigns to increase awareness and public education about epilepsy. Because of limited funds coming only from donations, it has targeted groups with the lowest awareness, the most negative perceptions, or the most negative attitudes.
From page 51...
... These targeted groups include child and adult daycare workers, first responders, law enforcement personnel, middle and high school students, parents of children with epilepsy, and school nurses. Austin has been most involved in the effort for school nurses.
From page 52...
... She added that because of all of the inaccurate information among the public, the IOM committee developed eight key messages with accurate information about epilepsy for use by health educators. Austin also discussed the challenges that persist in the field.
From page 53...
... The second component involves increasing contact by bringing together the affected group and a group of health workers to plan stigma reduction activities. The third component is improving coping through empowerment.
From page 54...
... Topics addressed included understanding stigma, different intersecting stigmas, outcomes of stigma, coping with stigma, why stigma is difficult to change, stigma reduction strategies, and the design of a tool to reach public health and primary health care workers. ­ According to Turan, a powerful part of the workshop was when people worked in pairs and told each other a story about when they experienced stigma and discrimination.
From page 55...
... Among providers, empathy scores tended to be higher in the post-test than in the pretest. Turan said these were promising initial results that could be taken further.1 Turan added that the ideas for reducing stigma in health care settings that emerged from the workshops focused on reaching medical personnel early, when they are in training, through interactive workshops, TED talks, or roleplay experiences.
From page 56...
... The session ended with brief final remarks from the chair of the Committee on the Science of Changing Behavioral Health Social Norms. Intersecting Stigma In response to a question about how to address intersecting stigma in primary care, Turan replied that this is currently a cutting-edge area of intervention and research and is extremely complex.
From page 57...
... Promoting Positive Behaviors The discussion of this topic started with a question about whether there is any research on the efficacy of promoting positive behaviors instead of discouraging negative ones. William Holzemer replied first, saying that Kate Lorig from Stanford had published a great deal on self-management, which really is an orchestrated training program on total health management with an emphasis on wellness, even for people with diagnosed chronic illnesses.
From page 58...
... However, because all of the prior discussions had been rich and the end of the day was near, it was decided that the workshop would be adjourned following brief remarks from David Wegman, chair of the Committee on the Science of Changing ­ Behavioral Health Social Norms. Wegman remarked that the day's presentations and discussions about the basic and applied science behind communication campaigns, as well as the implementation and evaluation of campaigns in various areas of public health, had indeed been very complex and thought provoking.


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