Improving Health Research on Small Populations Proceedings of a Workshop (2018) / Chapter Skim
Currently Skimming:
8 Closing Remarks
8 Closing Remarks
Pages 103-112
The Chapter Skim interface presents what we've algorithmically identified as the most significant single chunk of text within every page in the chapter.
Select key terms on the right to highlight them within pages of the chapter.
From page 103... ...
Electronic health records are a great potential source of information for many, but will not include people who do not access health care. As an example, he cited the Mississippi Delta.
|
From page 104... ...
Optimization strategies for contemporary statistical and measurement approaches and alternative research designs that make more complete use of available information -- along with mixed methods that provide new possibilities in qualitative research and Bayesian approaches that optimize through use of prior information -- provide rigorous approaches to study important research questions that can only be addressed through small population research. Allen noted that the promise of many of the new approaches described at the workshop is in how they permit scientists to address significant research questions, instead of abandoning the questions because they cannot be investigated.
|
From page 105... ...
In closing, Allen cited a quote from a letter from Vincent Van Gogh to his brother Theo, in which he wrote, "Great things are done by a series of small things brought together." Allen noted this is also a good summary of the workshop discussions over the past 2 days. STATEMENT OF GRAHAM KALTON Kalton noted the challenge in justifying a study of a small population to federal funders.
|
From page 106... ...
He described similar definitional issues with disability studies, saying that surveys measuring disability in the past gave very different estimates in part because they used different definitions. However, a federal initiative among statistical agencies developed a question to measure disability, which he called a step in the right direction.
|
From page 107... ...
STATEMENT OF JANICE PROBST Probst focused her remarks on ethics and the importance of community. She noted that her research focuses on rural vulnerable populations, specifically rural minority populations.
|
From page 108... ...
OPEN DISCUSSION Mandi Pratt-Chapman asked the statisticians whether they had considered using qualitative comparative analysis as an alternative to some of the statistical approaches discussed at this workshop. She explained that qualitative comparative analysis comes out of the sociopolitical literature and is based on Boolean logic.
|
From page 109... ...
Second, mixed methods work with small population groups and can help improve everything from recruitment to new ways of analyzing the data. She added that qualitative comparative assessment is also called meta-analysis and should be considered as a tool in improving health research for small populations.
|
From page 110... ...
She said that they have a definition of health disparity populations that initially included racial/ethnic minorities, low socioeconomic status, and underserved rural people. They then promoted and now include sexual gender minorities as a health disparity population.
|
From page 111... ...
Srinivasan thanked the partners who helped convene the meeting, the steering committee, and the National Academies staff. Steering committee chair Colditz thanked the participants and suggested they respond to opportunities to refine understanding and improve the health of small populations.
|
Key Terms
This material may be derived from roughly machine-read images, and so is provided only to facilitate research.
More
information on Chapter Skim is available.