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Health Literacy in Clinical Research Practice and Impact: Proceedings of a Workshop (2020) / Chapter Skim
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6 Reflections, Research Directions, and Potential Opportunities for Implementation
Pages 81-86

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From page 81...
... Patty Spears shared her key takeaways from the day as a cancer survivor and a scientific research manager and patient advocate at the University of North Carolina Lineberger Comprehensive Cancer Center, and Consuelo H Wilkins shared her summary and takeaways as vice president for health equity at the Vanderbilt University Medical Center and associate dean for health equity at Vanderbilt University.
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From page 82...
... • Implementing health literacy principles in clinical trials will require a variety of players and resource sharing, as well as patients as partners, network building, and outcome metrics, including patient-centric metrics. (Spears)
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From page 83...
... The course shares strategies for recruiting racial and ethnic minorities, she added, including providing culturally tailored materials.2 Wilkins noted that the course is free and intended to help recruiters improve their minority recruitment, communicate effectively, and build relationships and trust. The RIC also developed TrialsToday.org from ResearchMatch.org, Wilkins explained, which culls all the information available at Clinical Trials.gov, and provides a user-friendly sorting and filtering process for potential participants to find trials for which they might be eligible.
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From page 84...
... (McKee) • Patient advocates can serve important roles on research teams by being more likely to mirror participants and by helping to develop informed consent forms and processes or recruitment materials from a patient perspective.
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From page 85...
... Assaf, Gem Daus from the Health Resources and Services Administration, Terry C Davis, Jennifer Dillaha, Jay Duhig, Linda Harris, Nicole Holland, Michael McKee, Terri Ann Parnell from Health Literacy Partners, Lindsey Robinson from the California Dental Association, Steven Rush, Olayinka Shiyanbola, Vanessa Simonds, Lawrence G
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From page 86...
... " Assaf wondered how to build bridges across the variety of stakeholders invested in improving patient outcomes and helping people live healthier lives by embedding health literacy into clinical trials, and how to include newer technology in such efforts. Simonds noted that the findings discussed at the workshop should be reflected in Institutional Review Board policies, and those policies should be enforced with tools and incentives to improve the informed consent process.
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Key Terms

  • clinical trials
  • literacy principles
  • clinical trial
  • informed consent
  • research teams

  • health equity
  • embedding health
  • reading level
  • key takeaways
  • incorporating health

  • trial process
  • improving patient
  • medical science
  • consent process
  • vanderbilt university

  • final session
  • wilkins noted
  • patient outcomes
  • plain language
  • wilkins shared

  • minority recruitment
  • workshop health
  • implementing health
  • english health
  • mandating health

  • trial results
  • trial recruitment
  • consent documents
  • develop informed
  • clinical investigators


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