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4 Legal and Ethical Implications
Pages 37-42

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From page 37...
... . • Individuals may have difficulty interpreting biomarker re sults, including the clinical implications, and so clinicians and researchers need to carefully consider the best way to disclose this information (Peterson)
From page 38...
... During their remarks, panelists covered both the potential harms and benefits of SSA using biomarkers to assist in disability determination. Jerome Bickenbach, professor of law in the Department of Health Sciences and Medicine at the University of Lucerne, described much of his work with former Soviet countries to move away from a purely medical approach to one that identifies disability as a clear function of the environmental context in which a person lives.
From page 39...
... Andrew Peterson, assistant professor of philosophy and public policy at George Mason University, shared his research on patients who have experienced traumatic brain injuries resulting in comas and required the use of assessment tools to understand prognosis (Peterson and Bayne, 2018; Peterson et al., 2015, 2020a)
From page 40...
... A person may not have a condition or disability that meets the threshold, he said, but they have lives that are unlivable because they are dealing with so many conditions at once. Cook suggested that the use of biomarkers for disability determination needs to occur in the context of an interdisciplinary discussion that includes people with disabilities who can help inform how the intersecting social model of disability and biological model of disability work to influence important life functions.
From page 41...
... LEGAL AND ETHICAL IMPLICATIONS 41 that new technologies and findings in medicine may divert attention from what is actually needed and emphasized that anything being explored should be fit for its purpose. In Europe, there is an increasing focus on integration and a participatory role -- understanding what can help people live their lives more fully, he said.


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