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Appendix C: Biographical Sketches of Workshop Planning Committee Members and Speakers
Pages 101-118

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From page 101...
... She is best known for her work on national health reform, Medicaid and private insurance, Medicaid managed care, health care access for medically underserved communities and populations, and civil rights and health care.
From page 102...
... DeBakey Department of Surgery at the Baylor College of Medicine and the chief of the Abdominal Transplantation Division. He specializes in adult and pediatric liver transplantation, hepatobiliary surgery, and surgical management of liver tumors.
From page 103...
... from 2006 to 2007 and joined the National Institute of Diabetes and Digestive and Kidney Diseases at the National Institutes of Health in 2008. He is currently the senior advisor to the director of the Division of Kidney, Urologic, and Hematologic Diseases, where he has managed programs in HIVassociated kidney disease, acute kidney injury, clinical genetics of kidney disease, kidney precision medicine, clinical outcomes of kidney organ donation by African A ­ mericans, and opioid use in dialysis patients.
From page 104...
... Dr. Mazariegos has been involved in the academic field of transplantation surgery for more than 25 years and served as the past chair of the Society of Pediatric Liver Transplantation, the immediate past president of the Intestinal Rehabilitation and Transplant Association, a counselor for the International Pediatric Transplant Association, and the immediate past chair of the United Network for Organ Sharing/Organ Procurement and Transplantation Network pediatric committee.
From page 105...
... and Thomas Pozefsky Professor of Surgery and Epidemiology and the associate vice chair of surgery at Johns Hopkins University. He is the founder and the director of the Epidemiology Research Group in Organ Transplantation.
From page 106...
... Dr. Segev is most inspired by his role as a mentor, having mentored more than 100 graduate students, residents, and faculty, and he is the only general surgeon in the United States funded by an NIH/National Institute of Diabetes and Digestive and Kidney Diseases Mentoring Grant.
From page 107...
... Dr. Conrad's center has participated in national multicenter clinical research projects under the aegis of the Clinical Trials in Organ Transplantation in Children funding mechanism of the National Institutes of Health to discover mechanisms of lung graft failure in children.
From page 108...
... Ms. Edwards is also the co-chairperson of the National Forum of ESRD Networks Kidney Patient Advisory Council, actively involved with the National Kidney Foundation and the American Association of Kidney Patients, a patient advisor for studies with the National Institutes of Health and the National Institute of Diabetes and Digestive and Kidney Diseases, and the chief executive officer of her own advocacy
From page 109...
... K23 award in 2017 to examine cognition and brain changes from before to after kidney transplant to elucidate mechanisms underlying cognitive impairment in kidney disease. She has presented several abstracts and recently published a manuscript on brain changes from before to after transplant in the Journal of the American Society of Nephrology, a leading nephrology journal.
From page 110...
... Over the past 20 years, the focus of her work has been in liver diseases of children and liver transplantation. She conducts basic, clinical, and translational research in pediatric liver transplantation and immune-mediated liver disease, such as autoimmune hepatitis and primary sclerosing cholangitis.
From page 111...
... She directs the Muscle Function and Performance Lab and conducts research on skeletal muscle dysfunction and sarcopenia in people with chronic lung disease and solid organ transplant candidates and recipients. The goals of the research program are to understand the link between ­muscle structure and function, the relationship between sarcopenia and clinical outcomes, and the effect of exercise training on improving muscle dys­function.
From page 112...
... Her career objectives are to better understand how novel aging metrics (frailty, cognitive function, physical function, and quality of life) can help improve risk prediction of adverse outcomes in older kidney transplant recipients and identify novel interventions to prevent adverse outcomes of aging.
From page 113...
... Dr. Montgomery completed his general surgical training, multi-organ transplantation fellowship, and postdoctoral fellowship in human molecular genetics at Johns Hopkins University (JHU)
From page 114...
... He was recently elected the president of United ­Network for Organ Sharing/Organ Procurement and Transplantation Net work and the chair of the Advisory Committee on Organ Transplantation to the Secretary of Health and Human Services to lead the oversight and policy development of organ transplantation in the United States. He also serves as the councilor at large for the board of governors of the American Associa tion for the Study of Liver Diseases and the chair of the Business Practice Services Committee of the American Society of Transplant Surgeons.
From page 115...
... She is the director of community and stakeholder engagement for the Johns Hopkins Epidemiology Research Group in Organ Transplantation; core faculty at the Welch Center for Prevention, Epidemiology, and Clinical Research; and affiliated faculty with the B ­ loomberg American Health Initiative and the Center for Health Services and Outcomes Research. Nationally, Dr.
From page 116...
... board of directors and as a national chairperson of its Council of Nephrology Social Workers and Public Policy Task Force; the NKF of Arizona board of directors since 1988 and several affiliate committees; the medical review board of the Intermountain End Stage Renal Disease Network; United Network for Organ Sharing Patient Affairs Committee, Task Force on Access to Transplantation, and the chairperson of the Social Work Advisory Task Force; the National Living Donor Consensus Conference; and the Arizona Coalition on Donation as the president.
From page 117...
... Thomas to train its surveyors on the psychosocial issues of organ transplant recipients and living donors. He teaches social welfare policy and community practice to graduate and undergraduate social work students at Arizona State University.


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