Improving Consent and Response in Longitudinal Studies of Aging Proceedings of a Workshop (2022) / Chapter Skim
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6 Wrap-Up Discussion
6 Wrap-Up Discussion
Pages 93-100
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From page 93... ...
He also asked them what areas they thought NIA should prioritize for further research that would help advance some of the concerns and issues raised in the workshop. TAKE-HOME POINTS AND RESEARCH PRIORITIES Davern returned to his initial remarks that surveys are in crisis due to challenges related to nonresponse and nonresponse bias, as well as the global pandemic.
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From page 94... ...
For research priorities, Davern suggested an engagement strategy for trying to stay in touch with and maintain contact information over time with participants in large surveys, even when there might not be funding for a regular data collection. He stressed the importance of being able to recontact them effectively later if there is funding or interest in follow-on studies with that group of people.
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From page 95... ...
In terms of research priorities, Sah suggested trying to understand the psychological processes of why people consent, in what situations, what factors influence their consent, and what factors influence their retention is important. Trust is an important factor, she said, and highlighted the discussion on the role of online influencers, friends, and family in building trust.
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From page 96... ...
Madans said that approach would not be easy or extremely successful, but neither is trying to tailor information to each individual respondent. Reducing Bias Madans then turned to the approach of addressing bias reduction after the fact, noting that it is still necessary to get a certain level of response in order to conduct bias reduction.
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From page 97... ...
She suggested NIA consider funding innovation panels to invest in research that is best done in conjunction with an ongoing survey without being concerned about losing cases. It would be especially useful to do coordinated research across multiple surveys that are looking at the same experimental conditions so that there is more power to look at experimental effects and interactions of different surveys and conditions, which would help identify innovations for improving the methodology for everybody, Madans suggested.
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From page 98... ...
He said that trying to work with commercial health care providers to get health care, medical record, laboratory, or payment information can be difficult but also worth the effort. Tools mentioned by Lisa Mirel around the use of Privacy Protected Record Linkage are being used by commercial entities to link data, he said, and commented it is a fascinating area to explore.
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From page 99... ...
Sah commented that valid consent is key to building trust and retaining participants. She noted that insinuation anxiety is probably more relevant to vulnerable populations, and the social pressure to get consent needs to be reduced.
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From page 100... ...
He added that when people are more aware of or had experience in health studies, they are less likely to be worried about consenting for a new one. He suggested building on this awareness, and that making the scientific and research process better understood may inherently improve people's willingness to participate.
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