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Toward a 21st Century National Data Infrastructure: Managing Privacy and Confidentiality Risks with Blended Data (2024) / Chapter Skim
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Glossary of Selected Terms
Pages 97-106

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From page 97...
... Blended data Combined sources of previously collected data, product including data in nontabular formats. Commission on The Evidence-Based Policymaking Commission Evidence-Based Act of 2016 created the Commission on EvidencePolicymaking Based Policymaking.
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From page 98...
... reserving authorized restrictions on access and disclosure, including means for protecting personal privacy and proprietary information" (E-Government Act, 2002) .1 Data enclave A physical or virtual segregated space that "restricts the export of the original data and instead accepts queries from qualified researchers, runs the queries on the de-identified data, and responds with results.
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From page 99...
... . Data This term includes data assets; the technologies infrastructure used to discover, access, share, process, use, analyze, manage, store, preserve, protect, and secure those assets; the people, capacity, and expertise needed to manage, use, interpret, and understand data; the guidance, standards, policies, and rules that govern data access, use, and protection; the organizations and entities that manage, oversee, and govern the data infrastructure; and the communities and data subjects whose data are shared and used for statistical purposes and may be impacted by decisions made using those data assets (National Academies, 2023c)
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From page 100...
... This statute requires agency data to be accessible and requires agencies to plan to develop statistical evidence to support policymaking (Foundations for Evidence-Based Policymaking Act of 2018, 2019)
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From page 101...
... , Center for Behavioral Health Statistics and Quality (Substance Abuse and Mental Health Services Administration, Department of Health and Human Services) , and National Animal Health Monitoring System (Animal and Plant Health Inspection Service, Department of Agriculture)
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From page 102...
... They include, for example, laws, regulations, incentives for responsible data use, and access mechanisms like data enclaves and licensing arrangements. Postprocessing A requirement in disclosure management approaches invariance that making disclosure-avoidance plans available to the public does not increase disclosure risks.
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From page 103...
... . Private set A type of secure multiparty computation that can be intersection used to share information needed for linking records across ingredient data files (Freedman et al., 2004)
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From page 104...
... . Standard A uniform method for accessing federal confidential Application data assets to systematically provide permission to use Process protected data from any of the 16 federal statistical agencies and designated units for evidence building (Office of Management and Budget, 2022)
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From page 105...
... GLOSSARY OF SELECTED TERMS 105 Validation A disclosure management approach in which the server secondary data analyst requests that the agency run its statistical analysis on confidential data, and the agency provides outputs from the analysis, with disclosure protection, back to the analyst. Verification A disclosure management approach in which the server agency provides disclosure-protected measures of the similarity of the confidential and synthetic data results (e.g., how much confidence intervals from the confidential and synthetic data analyses overlap)
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Key Terms

  • disclosure risks
  • disclosure risk
  • synthetic data
  • confidential information
  • differential privacy

  • data assets
  • data release
  • disclosure management
  • management approach
  • federal statistical

  • policymaking act
  • based policymaking
  • agency data
  • ingredient data
  • data product

  • data equity
  • data subjects
  • policymaking commission
  • linking records
  • metadata describing

  • health statistics
  • stored data
  • protected data
  • allows data
  • data perturbation

  • protecting data
  • data values
  • equitable data
  • data infrastructure
  • output data


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