Data Integration in Learning Health Care Systems for Traumatic Brain Injury Proceedings of a Workshop (2024) / Chapter Skim
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The heterogeneity of TBI makes care and research challenging. The true prevalence of TBI is also not fully understood, given that most surveillance data come from hospital and patient health records, and many people who experience TBI, particularly at the milder end of the severity spectrum, do not seek hospital care.
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INTEGRATING THE LEARNING HEALTH SYSTEM CONCEPT AND THE TRAUMATIC BRAIN INJURY ROAD MAP Odette Harris, professor of neurosurgery at Stanford University and deputy chief of staff for rehabilitation at the Veterans Affairs Palo Alto Health Care System, provided an overview of the development of the LHS concept and how this concept intersects with TBI needs and opportunities to advance research and improve care and recovery. In 2006, the Institute of Medicine (now the National Academy of Medicine)
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Harris also underscored the importance of emphasizing effectiveness research rather than only efficacy research to understand results in real-world settings. In 2020, the National Academies convened the Committee on Accelerating Progress in Traumatic Brain Injury Research and Care to develop a report that identifies major barriers and knowledge gaps impeding progress, highlights opportunities for collaborative action, and provides a road map to guide the TBI field, said Harris.
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ecological • Difficulty accessing specialized care system to identify and address ongoing iCal • Loss of access to care over time and emerging needs, including chological ecological Some people who experience chronic symptoms will need long-term services and supports. psyc hologica l provision BIO of community-based support services.
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. Following publication of the TBI Roadmap report, the National Academies established the ongoing Forum on Traumatic Brain Injury, the convener of this workshop, to advance the implementation of the report's recommendations and foster continued progress and innovation in TBI prevention, care, and recovery.3 This workshop was designed to bring together lessons from the TBI report and LHS principles to explore how LHS practices can be operationalized to integrate knowledge and advance TBI care and research .
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ORGANIZATION OF THE PROCEEDINGS OF THE WORKSHOP This proceedings summarizes the presentations and discussions from the workshop Data Integration in Learning Health Care Systems for Traumatic Brain Injury. The workshop highlighted selected opportunities, challenges, and strategies for fostering learning health systems, moving from the LHS concept and its applicability to unmet TBI care and research needs to the types of data, infrastructure, and partnerships needed to establish such systems.
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Chapter 7 explores the use of LHSs to build and enhance the TBI response capacity of community systems to combat inequitable TBI outcomes within vulnerable populations and geographic locations. Appendix A contains the reference list.
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PREPUBLICATION COPY -- Uncorrected Proofs
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